Surgery next --- now the insurance game

Discuss here about Medical Disability claims and Insurance possibilities for PN treatment options
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A's Mommy
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Joined: Fri Sep 17, 2010 12:46 pm
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Surgery next --- now the insurance game

Post by A's Mommy »

Hi friends,

I have a regional insurance company. Not one person in network takes care of PNE. I have (I think) made successful appeals/claims/whatever you call it thus far to cover treatment I have had in Phoenix. We had to write all these letters and submit some medical dictated reports, etc, through my PCP to my insurance's medical management department. They authorized us going out-of-network. Now, I have a few worries.

1) Does authorization to go "out-of-network" automatically mean they will pay all costs? I'm thinking not.... but the lady doing all this at my PCP's office didn't know either. I guess it's too late now, because I've already had some treatment out there (Botox).
2) Now that I'm going to have surgery, which from what I've read on TIPNA is a major cost, I want to be absolutely SURE SURE SURE that everything will be covered by my insurance. How do I go about this? I'm so confused. Do I call my medical management division of my insurance directly? It seems like the well-meaning lady at my PCP's office is as clueless as I am with this whole insurance out of network thing.
3) Where can I find the latest scientific articles?

Thanks in advance,

A's Mommy
Daughter grew completely on left side of pelvis
Multiple uterine surgeries to fix uterine adhesions, septum, and endo
Had all the conservative workups done, 3Tesla (Potter), recovering from L sided TG (Hibner) 11/10, Botox 6/11 failed, bilateral anterior PNE decompression (distal Alcock's/perineal branch), Aszmann, Vienna, 10/11; dx'd with CRPS Type 2, 12/11, Ketamine @ CCF 2/12, doing 75% better PRAISE JESUS!
http://fighting-pne.blogspot.com
http://www.thepelvicmessenger.org
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Celeste
Posts: 574
Joined: Sat Sep 18, 2010 2:24 am
Location: central Ohio

Re: Surgery next --- now the insurance game

Post by Celeste »

Out of network means they don't pay as much as in network. But hospitals and doctors settle for less in some cases. I think your only negotiating power is up front, before surgery. Is there any way for you to have a consult with the hospital finance department in AZ to see if they have any advice for you now that you have a surgery date?

FWIW, many people went into surgery having their insurance say it was covered, only to have it denied afterwards. This is a common insurance tactic, BTW. Some people just paid what insurance did not, and others fell into a loophole where they weren't liable for it because the insurance had authorized it.

Also, it's easier to get the preliminary appointments covered out of state than it is surgery, from what I have seen on the forums.
PNE as a result of childbirth, 2002. Treatment by the Houston team, with neurosurgery by Dr. Ansell in 2004. My left side ST and SS ligaments were found to be grown together, encasing the pudendal nerve.

I am cured. I hope you will be, too.

There are no medical answers on the forum. Your only hope is to go to a doctor. I was very happy with the Houston team, which has treated the most PNE patients (well over 400), more than any other US provider.

http://www.tipna.org
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Celeste
Posts: 574
Joined: Sat Sep 18, 2010 2:24 am
Location: central Ohio

Re: Surgery next --- now the insurance game

Post by Celeste »

I also wonder if you might get a referral on a Patient Advocate in your area. This past winter I spoke with somebody on the forum who said that hiring one was just a key thing for her, to help get somebody who really knew how to make problems like yours get taken care of. It kind of makes sense that if somebody deals with insurance companies all the time, they would know how to get these things done. I think it's probably harder for the rest of us who just don't even know where to begin.
PNE as a result of childbirth, 2002. Treatment by the Houston team, with neurosurgery by Dr. Ansell in 2004. My left side ST and SS ligaments were found to be grown together, encasing the pudendal nerve.

I am cured. I hope you will be, too.

There are no medical answers on the forum. Your only hope is to go to a doctor. I was very happy with the Houston team, which has treated the most PNE patients (well over 400), more than any other US provider.

http://www.tipna.org
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Karyn
Posts: 1655
Joined: Fri Sep 17, 2010 12:59 pm
Location: Lowell, MA

Re: Surgery next --- now the insurance game

Post by Karyn »

Hi AM,
Celeste wrote:I also wonder if you might get a referral on a Patient Advocate in your area.
That's an excellent suggestion! Instead of going through your PCP, I would contact your insurance company DIRECTLY.
"Out of network" coverage usually means that you pay a percentage. It varies from insurance company to insurance company. I would also think you'd need a pre-authorization prior to surgery. Ususally, the surgeons office gets that but for your own peace of mind, please contact your insurance provider, so there are no unpleasant surprises.
Warm regards,
Karyn
Ultra Sound in 03/08 showed severely retroverted, detaching uterus with mulitple fibroids and ovarian cysts.
Pressure and pain in lower abdomen and groin area was unspeakable and devastating.
Total lap hysterectomy in 06/08, but damage was already done.
EMG testing in NH in 04/10 - bilateral PN and Ilioinguals
3T MRI at HSS, NY in 09/10
Bilateral TG surgery with Dr. Conway on 03/29/11. Bilat ilioinguinal & iliohypogastric neurectomy 03/12. TCD surgery 04/14.
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A's Mommy
Posts: 447
Joined: Fri Sep 17, 2010 12:46 pm
Location: Pennsylvania
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Re: Surgery next --- now the insurance game

Post by A's Mommy »

I spoke with my insurance company regarding my last trip to AZ. We obtained prior auth to go out of network.... sent in all my medical records, wrote numerous letters, etc. I double checked with them today and asked them if my entire Botox procedure was 100% covered and they said yes, because the hospital negotiated for a lower rate with my insurance or vice versa. Something like that, I'm not sure. Regardless, I asked them if we should go through the same steps to get prior auth for the surgery. They said yes, have your PCP's office write a letter of medical necessity, send in everything, blah blah blah. But what Celeste said scares me. I don't want to go in "thinking" that I'm 100% covered then get stuck with huge bills. How do I prevent this? This is the part I'm not understanding. If they tell me I have a prior auth number and everything, how can I be sure? What's the "gold standard" for complete peace of mind?
Daughter grew completely on left side of pelvis
Multiple uterine surgeries to fix uterine adhesions, septum, and endo
Had all the conservative workups done, 3Tesla (Potter), recovering from L sided TG (Hibner) 11/10, Botox 6/11 failed, bilateral anterior PNE decompression (distal Alcock's/perineal branch), Aszmann, Vienna, 10/11; dx'd with CRPS Type 2, 12/11, Ketamine @ CCF 2/12, doing 75% better PRAISE JESUS!
http://fighting-pne.blogspot.com
http://www.thepelvicmessenger.org
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Celeste
Posts: 574
Joined: Sat Sep 18, 2010 2:24 am
Location: central Ohio

Re: Surgery next --- now the insurance game

Post by Celeste »

A's Mommy wrote:I don't want to go in "thinking" that I'm 100% covered then get stuck with huge bills. How do I prevent this? This is the part I'm not understanding. If they tell me I have a prior auth number and everything, how can I be sure? What's the "gold standard" for complete peace of mind?
I'm not really sure you can have that complete peace of mind in today's insurance climate. There is no law that prevents them from reneging. I think there should be, but that 's neither here nor there. Get everything in writing in case you need to use it later. I know LesM actually sued his insurance company for failure to pay for his son's surgery. I don't know if anybody in Hibner's office can help, but maybe there is somebody at the hospital they can direct you to if you ask. They court this business from travelers, and somebody has to have an answer for you.
PNE as a result of childbirth, 2002. Treatment by the Houston team, with neurosurgery by Dr. Ansell in 2004. My left side ST and SS ligaments were found to be grown together, encasing the pudendal nerve.

I am cured. I hope you will be, too.

There are no medical answers on the forum. Your only hope is to go to a doctor. I was very happy with the Houston team, which has treated the most PNE patients (well over 400), more than any other US provider.

http://www.tipna.org
pomegranate
Posts: 157
Joined: Sat Sep 18, 2010 3:12 am
Location: Oklahoma

Re: Surgery next --- now the insurance game

Post by pomegranate »

A'sMommy,

LesM emailed me a template and other files for appealing to an insurance company to cover surgery. You might be able to use some of the documents. PM me your email address, and I'll send you everything he sent me. It's a bit old, but you might find it useful. I haven't looked through much of it, as I'm currently not pursuing that route.

I also have a regional insurance company--such a drag, huh?

Lauren
2008: mild pelvic pain and PFD began
2009: true PN/PFD pain, two PN blocks, normal PNMLT
2010: PT and conservative management with moderate improvement in PN/PFD symptoms
2011: surgery for extensive endometriosis; arthroscopic hip surgery to repair labral tear and FAI (right hip)
2012: C-section delivery of first child
2014: arthroscopic hip surgery to repair labral tear and FAI (left hip); C-section delivery of second child
Ongoing physical therapy since 2010 for both pelvic floor and hips.
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Amanda
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Joined: Thu Sep 02, 2010 2:33 pm
Location: Dublin, Ireland
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Re: Surgery next --- now the insurance game

Post by Amanda »

I cant help you with US Insurance applications, however Les did manage eventually to succeed in getting funding for his son Aaron.
The main thing I believe is that it does take a huge amount of perseverance and tolerance to get claims through....so hang in and stick with it.
PNE started 2003 following Vaginal Hysterectomy, pelvic floor repair and right oophorectomy; eventually after many tests had BilateralTG surgery Nantes 2004; following this tried many other treatments including 7 day epidural, ketamin infusions to no avail; Trialed and was implanted with a Neurostimulator in 2007- Dr Van Buyten Belgium, this has enabled me to manage my pain much better.
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Celeste
Posts: 574
Joined: Sat Sep 18, 2010 2:24 am
Location: central Ohio

Re: Surgery next --- now the insurance game

Post by Celeste »

Amanda wrote:I cant help you with US Insurance applications, however Les did manage eventually to succeed in getting funding for his son Aaron.
The main thing I believe is that it does take a huge amount of perseverance and tolerance to get claims through....so hang in and stick with it.
He paid for surgery out of pocket. He took the money he was going to use to pay for his older daughter's college, paid for the surgery, and took out a loan for her tuition and expenses. Then he sued because what they did was wrong and he wanted them to be accountable, not just to him but to the next person. I never found out how the court case ended. He was such a mensch. I've met such good people through this shared misfortune (and it continues). Life's funny that way.
PNE as a result of childbirth, 2002. Treatment by the Houston team, with neurosurgery by Dr. Ansell in 2004. My left side ST and SS ligaments were found to be grown together, encasing the pudendal nerve.

I am cured. I hope you will be, too.

There are no medical answers on the forum. Your only hope is to go to a doctor. I was very happy with the Houston team, which has treated the most PNE patients (well over 400), more than any other US provider.

http://www.tipna.org
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Quilter 2
Posts: 163
Joined: Fri Sep 17, 2010 6:24 pm
Location: North East TN

Re: Surgery next --- now the insurance game

Post by Quilter 2 »

Hello to all;
Since I'm going to be needing this info in the near future, I need to understand what all these abbrevaions mean. Please tell me what PLP, FWIW and BTW means.
Sorry for my computer ignorance;
Doreen
Five pudendal nerve infiltrations with good results.
Sixth Injection left me with more burning, more pain, pain in buttocks.
Botox shot didn't notice any difference
Physical Therapy - Aquatic and Myofascial
External and Internal Manual Therapy on the obturator muscle.
3T MRI with Dr. Potter
2nd opinion with Dr. Hibner in Phoenix
Loretta Robertson PT Phoenix
Decompression surgery Nov. 1, 2011
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