...staying at the Bentley Hotel tonight awating my POtter MRI tomorrow. anyone stayed here and know of any breakfast spots nearby? I'm by myself and don't want to "venture" too far:)
cari
NYC
Re: NYC
Don't know of any breakfast spots. But just wanted to know I'll be thinking of you tomorrow. I hope it goes well and gives you insight to what is causing your pain!
-11/08 vulvodynia began around conception of first & only pregnancy
-3/10 sacral/sitting pain began after SIJD manipulation
-Progressive widespread pain- central sensitization
-PT, meds, injections, botox, ESWT = debilitated.
-5/12 Potter MRI - scarring of left ST, coccygeous & posterior alcock
-12/12 - left FAI/labral hip tear surgery
2014-2019 managed w/ gabapentin, massage, and lifestyle mod
2020 - big flare up
www.thepurposeofpain.blogspot.com
-3/10 sacral/sitting pain began after SIJD manipulation
-Progressive widespread pain- central sensitization
-PT, meds, injections, botox, ESWT = debilitated.
-5/12 Potter MRI - scarring of left ST, coccygeous & posterior alcock
-12/12 - left FAI/labral hip tear surgery
2014-2019 managed w/ gabapentin, massage, and lifestyle mod
2020 - big flare up
www.thepurposeofpain.blogspot.com
Re: NYC
Cari,
Ditto Faith's comments. Thinking of you. I've often thought that it's a shame that we PNers (who choose to go for a Potter scan) can't take in all the wonderful (other) things that the city has to offer because of our pain. I visited NYC twice before my PN pain hit and I absolutely loved it. There is a wonderful little breakfast spot in Soho that I know of, but you're not there, are you?
Again, good luck tomorrow and may you find the source of your pain so that you can move forward and eliminate it for good!
Ditto Faith's comments. Thinking of you. I've often thought that it's a shame that we PNers (who choose to go for a Potter scan) can't take in all the wonderful (other) things that the city has to offer because of our pain. I visited NYC twice before my PN pain hit and I absolutely loved it. There is a wonderful little breakfast spot in Soho that I know of, but you're not there, are you?
Again, good luck tomorrow and may you find the source of your pain so that you can move forward and eliminate it for good!
Athlete until pain started in 2001. Diagnosed with PN in Nov. 2010. Probable cause: 3 difficult labors, 5 pelvic surgeries for endometriosis, and undiagnosed hip injuries. 60% better after 3 rounds of shockwave therapy in Cornwall, Ontario (Dec - Feb/12). 99% better after bilateral hip scopes for FAI and labral tears (April and July/12). Pelvic pain life coach Lorraine Faendrich helped me overcome the mind/body connection to chronic pain: http://www.radiantlifedesign.com
Re: NYC
Ask at the front desk as the concierge should be able to give you suggestions. Also, NYC is such a great place to just walk down the street and find a little breakfast cafe or grocery store that has a breakfast nook. The latter is my favorite way to eat when I go to NYC.
Good luck tomorrow. I hope you get to talk with Dr. Potter about your results. Let us know how it goes.
Good luck tomorrow. I hope you get to talk with Dr. Potter about your results. Let us know how it goes.
2/07 LAVH and TOT 7/07 TOT right side removed 9/07 IL, IH and GN neuropathy 11/07 PN - Dr. Howard
6/08 Obturator neuralgia - Dr. Conway 11/08 Disability, piriformis syndrome - Dr. Howard
4/09 Bilateral obturator decompression surgery, BLL RSD - Dr. Howard
9/10 Removed left side TOT, botox, re-evaluate obturator nerve - Dr. Hibner
2/11 LFCN and saphenous neuralgia - Dr. Dellon 2/11 MRI with Dr. Potter - confirmed entrapment
5/11 Right side TG - Dr. Hibner 2012 Left side TG - Dr. Hibner
6/08 Obturator neuralgia - Dr. Conway 11/08 Disability, piriformis syndrome - Dr. Howard
4/09 Bilateral obturator decompression surgery, BLL RSD - Dr. Howard
9/10 Removed left side TOT, botox, re-evaluate obturator nerve - Dr. Hibner
2/11 LFCN and saphenous neuralgia - Dr. Dellon 2/11 MRI with Dr. Potter - confirmed entrapment
5/11 Right side TG - Dr. Hibner 2012 Left side TG - Dr. Hibner
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helenlegs 11
- Posts: 1779
- Joined: Fri Sep 17, 2010 9:39 am
- Location: North East England
Re: NYC
Good luck, I hope the scan shows something to answer your questions at last carolynm.
Fall 2008. Misdiagnosed with lumber spine problem. MRN June 2010 indicated pudendal entrapment at Alcocks canal. Diagnosed with complex variant piriformis syndrome with sciatic, pudendal and gluteal entrapment's by Dr Filler 2010.Guided piriformis botox injection 2011 Bristol. 2013, Nerve conduction test positive; new spinal MRI scan negative, so diagnosed for the 4th time with pelvic nerve entrapment, now recognised as Sciatic, pudendal, PFCN and cluneal nerves at piriformis level.
Re: NYC
Just a miniscule hard part of being a Pner.. Having to be alone at a time like this..Best wishes to you NYC... 
Surgery Jan.05 2011 TG with Dr Antalok. Dr.Chambi May of 2012 showed injury from a fall on back, 11 years ago. My piriformis muscle caused a large amount of fibrosis .My sciatic nerve was growing through the piriformis muscle which caused a bifid p.muscle. . Dr Chambi decompressed the sciatic,pudendal,pfcn ,and peroneal nerves. I hope to have a nuerostimulator put in to help with the sciatic pain that never goes away. Most days are better with the pudendal if I do not sit at all.
Re: NYC
Good luck tomorrow Cari. Hopefully Dr. Potter will have time to go over your images as she did with me. Be sure to tell her PA that you're willing to wait if necessary. I left HSS with my CD and report in hand. Wishing you all the best and hope you find some answers in NYC. Keep us posted.
Don
Don
Mild to moderate PN for 5 plus years, pain controlled by lyrica and opiates.
Nerve block (unguided) 9/10 Dr. Jerome Weiss - sciatica for 5 months but got numb in painful perineal/scrotal area - he diagnosed entrapment - but no more cortisone for me
Potter MRI 5/11 - rt STL entrapment of PN at Alcocks
Consult with Dr. Hibner Feb. 2012
Bilateral inguinal hernias diagnosed by dynamic ultrasound - surgery on 6/20/13
Feeling a little better, a few more months will tell
Nerve block (unguided) 9/10 Dr. Jerome Weiss - sciatica for 5 months but got numb in painful perineal/scrotal area - he diagnosed entrapment - but no more cortisone for me
Potter MRI 5/11 - rt STL entrapment of PN at Alcocks
Consult with Dr. Hibner Feb. 2012
Bilateral inguinal hernias diagnosed by dynamic ultrasound - surgery on 6/20/13
Feeling a little better, a few more months will tell