Health Organization for Pudendal Education

Hello, I have been through a thorough investigation of my left-sided pudendal neuralgia (neurophysiology twice, MRI, QST with temperature and sensory thresholds, duplex ultrasound of pudendal arteries) and thereafter a treatment period of 4 pudendal nerve blocks, with good temporary effect. I have all the typical symtoms of the illness, and neurophysiological findings consistent with the diagnosis. What I can conclude from my thorough investigation is that MRI adds very little to the diagnostic work-up, and that the diagnosis is made up from several elements. Finally I have now done the transperineal surgery with Dr Jacques Beco, very recently. It is much to early to know if the surgery will be beneficial for me, but I can really recommend the overall caretaking from Dr Beco. I have also been in contact with the other prominent physicians within this field, and Dr Beco is absolutely outstanding regarding being available, being empathic and explaining, and he is also very meticulous in his work, and most importantly he is rather reluctant to propose surgery, due to the potential side effects. I think this is a sign of wisdom. He has a scientific approach and wants all patients to be followed up postoperatively with questionnaires and neurophysiological exams. My surgery was uneventful. If somebody wants additional info and is considering consultation in Belgium, I can give him/her more info if desired. Send med an e-mail. Best regards Johannes Jacks Sweden. E-mail: johannes.jacks@sodersjukhuset.se

Hi Johannes,
I do hope that things go well for you. It would be great if you could post with any update as your recovery progresses, wishing you all the best and thanks for the information.
Take care,
Helen

Johannes, thanks for your report on your surgery with Dr. Beco. He has done a lot to advance the PNE cause -- through his publications and his website. I wish you all the best in your recovery and would also appreciate occasional updates.

Best regards,

Violet

Johannes

Thank you for your update regarding Dr Beco. i attend Dr Van Buyten in Sint Niklaas so I am familiar with Belgium and i attend there annually now and will hav eto for life to update my Stimulator.
I wish you best of luck following your surgery and hope that your pain is reduced as a result.

Dear Violet and Helen,
I will keep you informed about my postoperative evolution! Prior to the surgery, I had a period of CBT therapy and that restored the emotional consequences of the pain. I would maybe not have been emotionally "fit" enough for the surgery if I had not done the CBT. Personnally, I regard the period of all investigations, infiltration blocs and surgery as finished once and for all (a relief in itself), and now I will dedicate all energy to rehabilitation and maintenance of quality of life. Best regards Johannes

Good for you Johannes,That determination will serve you well.
Take care,
Helen

Wishing you a speedy and full recovery! Please keep us posted.

I have been in contact with Dr. Beco over the last few months and I have nothing but the highest regard for him, he truly cares about peoples well being who are dealing with this problem.