SI joint laxity

Hysterectomy, Ovary Removal, SIJD, Piriformis Syndrome etc
Faith
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Joined: Fri Oct 15, 2010 5:15 pm

SI joint laxity

Post by Faith »

Those who have known SI joint laxity and PN (violet you are the only one I can think of) what problem do you fix first? When I saw LoRetta, dr Hibner's PT, she says I have widespread joint laxity including the SI bit that the PN is the main issue right now. So if the PN is fixed will it not just happen again if I have SI joint laxity?
-11/08 vulvodynia began around conception of first & only pregnancy
-3/10 sacral/sitting pain began after SIJD manipulation
-Progressive widespread pain- central sensitization
-PT, meds, injections, botox, ESWT = debilitated.
-5/12 Potter MRI - scarring of left ST, coccygeous & posterior alcock
-12/12 - left FAI/labral hip tear surgery
2014-2019 managed w/ gabapentin, massage, and lifestyle mod
2020 - big flare up
www.thepurposeofpain.blogspot.com
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Violet M
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Re: SI joint laxity

Post by Violet M »

Faith, I never really had the SI joint laxity fixed except for one prolotherapy injection into the R SI ligament. Just having PN surgery lowered my pain levels immensely and so far (7 years later) the pain has not returned, in fact it is only improving.

The reason I think surgery fixed it and that the pain will not return is because if the pelvis is out of alignment with ligaments sagging, that puts undue pressure on the nerve that's running between the ligaments. If you release the nerve from between the ligaments then you've released the impingement on the nerve.
PNE since 2002. Started from weightlifting. PNE surgery from Dr. Bautrant, Oct 2004. Pain now is usually a 0 and I can sit for hours on certain chairs. No longer take medication for PNE. Can work full time and do "The Firm" exercise program. 99% cured from PGAD. PNE surgery was right for me but it might not be for you. Do your research.
Faith
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Joined: Fri Oct 15, 2010 5:15 pm

Re: SI joint laxity

Post by Faith »

Thanks for your input Violet. I have thought about prolotherapy, but Dr. Hibner's Pt didn't think prolo would help me until I got the PN calmed down. So you had your prolo after surgery?

I guess I'm confused though because if you release the impingement on the nerve from between the ligaments but your ligaments stay "lax" then whats to keep the nerve from re-entrapping? (This may be an ignorant question as I am sure I dont' fully understand exactly how TG surgery is done). Like especially if I have TG with Hibner who doesn't sever the ligament?
-11/08 vulvodynia began around conception of first & only pregnancy
-3/10 sacral/sitting pain began after SIJD manipulation
-Progressive widespread pain- central sensitization
-PT, meds, injections, botox, ESWT = debilitated.
-5/12 Potter MRI - scarring of left ST, coccygeous & posterior alcock
-12/12 - left FAI/labral hip tear surgery
2014-2019 managed w/ gabapentin, massage, and lifestyle mod
2020 - big flare up
www.thepurposeofpain.blogspot.com
Faith
Posts: 697
Joined: Fri Oct 15, 2010 5:15 pm

Re: SI joint laxity

Post by Faith »

One more question: Why don't you think SIJD is a problem for you anymore? Or are you just out of alignment but the pain isn't a problem because you had decompression surgery?

I just can't seem to find many people with both PN and SIJD (both here and other SIJD forums I am on) to help me understand how one with affect the other.
-11/08 vulvodynia began around conception of first & only pregnancy
-3/10 sacral/sitting pain began after SIJD manipulation
-Progressive widespread pain- central sensitization
-PT, meds, injections, botox, ESWT = debilitated.
-5/12 Potter MRI - scarring of left ST, coccygeous & posterior alcock
-12/12 - left FAI/labral hip tear surgery
2014-2019 managed w/ gabapentin, massage, and lifestyle mod
2020 - big flare up
www.thepurposeofpain.blogspot.com
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Violet M
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Location: United States
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Re: SI joint laxity

Post by Violet M »

Faith,think of it as though the nerve is squished between two of your fingers. If you remove one of your fingers is the nerve still squished? If an entrapment is due to a nerve being compressed between 2 ligaments, when one or both of the ligaments are cut releasing the nerve, what's the nerve going to get compressed or re-entrapped by? Of course it's always possible for the nerve to get re-entrapped in scar tissue but that would be a different type of entrapment not due to ligament laxity.

How does SIJD cause pudendal nerve compression? This is my theory but I could be wrong. If you have SIJD your pelvis is most likely misaligned so your pelvis is probably sagging on one side causing the nerve to be compressed between the ST and SS ligaments. If you cut at least one of the ligaments, the compression is released even though your pelvis is still misaligned.

I'm probably still out of alignment - haven't really had it evaluated lately. Over time maybe the ligaments may have healed a bit since I'm not doing extreme exercise anymore. I never really did much to get back into alignment other than that one prolotherapy injection post-op because my pain levels are very low now. There's one core strengthening exercise I do for the transverse abdominus but I'm sure it's only providing minimal benefit.

Dr. Bautrant said my ligaments were hardened and sclerosed which also contributed to irritation of the nerve -- probably because the nerve was rubbing on them. That's my guess.

Doesn't Hibner sever the sacrospinous ligament still? If you have a compression between those two ligaments, it seems like one of them would have to be cut to relieve the compression.
PNE since 2002. Started from weightlifting. PNE surgery from Dr. Bautrant, Oct 2004. Pain now is usually a 0 and I can sit for hours on certain chairs. No longer take medication for PNE. Can work full time and do "The Firm" exercise program. 99% cured from PGAD. PNE surgery was right for me but it might not be for you. Do your research.
Faith
Posts: 697
Joined: Fri Oct 15, 2010 5:15 pm

Re: SI joint laxity

Post by Faith »

Thanks Violet! Great explanation. Yes, I think Hibner still severs the SS ligament, which I am ok with. I just have a problem with the ST being severed especially since it looks possible from some anatomy books that the SI ligament runs into the ST ligament :)

So did you not have pain though right in the SI joint itself? Did you ever have an SI block? I have had an SI block, but it didn't take away my pain, whereas the PN block did for a few hours.
-11/08 vulvodynia began around conception of first & only pregnancy
-3/10 sacral/sitting pain began after SIJD manipulation
-Progressive widespread pain- central sensitization
-PT, meds, injections, botox, ESWT = debilitated.
-5/12 Potter MRI - scarring of left ST, coccygeous & posterior alcock
-12/12 - left FAI/labral hip tear surgery
2014-2019 managed w/ gabapentin, massage, and lifestyle mod
2020 - big flare up
www.thepurposeofpain.blogspot.com
nyt
Posts: 1165
Joined: Sun Oct 31, 2010 3:24 am

Re: SI joint laxity

Post by nyt »

Yes, Dr. Hibner severs the SS ligament, transposing the nerves and does NOT repair the SS ligament.
2/07 LAVH and TOT 7/07 TOT right side removed 9/07 IL, IH and GN neuropathy 11/07 PN - Dr. Howard
6/08 Obturator neuralgia - Dr. Conway 11/08 Disability, piriformis syndrome - Dr. Howard
4/09 Bilateral obturator decompression surgery, BLL RSD - Dr. Howard
9/10 Removed left side TOT, botox, re-evaluate obturator nerve - Dr. Hibner
2/11 LFCN and saphenous neuralgia - Dr. Dellon 2/11 MRI with Dr. Potter - confirmed entrapment
5/11 Right side TG - Dr. Hibner 2012 Left side TG - Dr. Hibner
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Violet M
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Re: SI joint laxity

Post by Violet M »

Faith, I never had a block into the SI joint itself or an SI block. My SI pain was a piece of cake compared to the pudendal pain so I didn't want to stir things up any worse than they already were in the SI area.
PNE since 2002. Started from weightlifting. PNE surgery from Dr. Bautrant, Oct 2004. Pain now is usually a 0 and I can sit for hours on certain chairs. No longer take medication for PNE. Can work full time and do "The Firm" exercise program. 99% cured from PGAD. PNE surgery was right for me but it might not be for you. Do your research.
HerMajesty
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Location: North Las Vegas, Nevada

Re: SI joint laxity

Post by HerMajesty »

Hi Faith,

I saw you mention in another thread that you were looking at either decompression surgery or SI fusion surgery. While SI fusion surgery might help some people with SI pain, I have never heard of one single person with pudendal neuropathy, who had the pudendal neuropathy fixed through SI fusion. In fact I have heard of some individuals who exacerbated or initiated a case of pudendal neuropathy through fusion. Of course I don't know everybody out there. Have YOU heard of anybody whose PN pain was cured by SI fusion? Or is there anyone reading this whose pudendal nerve was helped through SI fusion?
Just something to think about, because I feel strongly that if you have made the decision to have a surgery, and you are considering which to have, decompression is the way to go.
pelvic pain started 1985 age 14 interstitial cystitis. Refused medical care from age 17, did GREAT with self care for years.
2004 PN started gradually, disabled by 2009. Underlying cause SIJD & Tarlov cysts
improved with PT & meds: neurontin, valium, nortriptyline, propanolol. (off nortriptyline & propanolol now, yay!)
Tarlov cyst surgery with Dr. Frank Feigenbaum March 20, 2012.
Results have been excellent so far; but I won't know my final functional level for a couple of years.
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helenlegs 11
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Joined: Fri Sep 17, 2010 9:39 am
Location: North East England

Re: SI joint laxity

Post by helenlegs 11 »

Got To agree with HM Faith, the idea of any fusion just sounds SO big an op and almost 'undo-able' if things don't work out ? I know that decompression surgery has made some worse, I think the figure is 1%, most improve or stay the same. Of course things have improved so much, even recently, so I'm sure those figures will be increasing for the better all the time.
I can understand you needing to get it all figured out as far as is possible to make an educated decission, but that's my tuppence worth.
Fall 2008. Misdiagnosed with lumber spine problem. MRN June 2010 indicated pudendal entrapment at Alcocks canal. Diagnosed with complex variant piriformis syndrome with sciatic, pudendal and gluteal entrapment's by Dr Filler 2010.Guided piriformis botox injection 2011 Bristol. 2013, Nerve conduction test positive; new spinal MRI scan negative, so diagnosed for the 4th time with pelvic nerve entrapment, now recognised as Sciatic, pudendal, PFCN and cluneal nerves at piriformis level.
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