http://www.chronicpainaustralia.org.au/
Chronic Pain Australia have featured my story on their website to coincide with National Pain Week.
National Pain Week Australia
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catherine a
- Posts: 291
- Joined: Sat Sep 18, 2010 4:46 am
- Location: Perth Western Australia
National Pain Week Australia
2004 PNE following vag. hysterectomy and A & P repair. 2007 TIR surgery France. severe entrapment at Alcocks canal & SS ligaments . Have my life back. 90% cured.No longer have medical appts.or physio.Some pain remains but is tolerable. 2012 Flew from Australia to the UK without pain flare. Very manageable. Almost back to normal. Now hold support group meetings at KEMH Subiaco Perth WA. Every 2nd Sat. of the month. Still pace my activities. PN doesn't dominate any more.
Re: National Pain Week Australia
Catherine, so great to see your story featured. I'm sure this will bring awareness of PN to so many people through your generous sharing of your story.
My best,
Cora
My best,
Cora
Onset PN/PFD/centralized pain in Oct 06 after years of athletics,nursing career and dog training. PT for two years with improvement, now go for tune-ups and pain management. Stopped Cymbalta, was on M.S. Contin, then Kadian, and briefly Methadone for pain management, now off those meds and pain is well managed with Buprenorphine. Followed my pain management specialist.
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catherine a
- Posts: 291
- Joined: Sat Sep 18, 2010 4:46 am
- Location: Perth Western Australia
Re: National Pain Week Australia
I agree Cora. I feel I must share my story in order to help others and to raise awareness among the medical community. One day in the future people may not have to suffer the way we have and those before us have. Research will continue into this horrendous condition. With PN at least we have made some developments in recent years thanks to those doctors who are keen to learn more and look outside the box. Pain has never been a subject which has been given much attention in med. schools.
It's good to see the various conferences around the world dedicated to Chronic Pain. I think it's getting bigger each year with more and more specialists becoming involved.
There has to be a brighter future for those suffering PN issues. I see the Pain Pathways magazine is now online. It has some good tips for those of us living with chronic pain. http://www.painpathways.org/about-us/pa ... s-magazine
Catherine
It's good to see the various conferences around the world dedicated to Chronic Pain. I think it's getting bigger each year with more and more specialists becoming involved.
There has to be a brighter future for those suffering PN issues. I see the Pain Pathways magazine is now online. It has some good tips for those of us living with chronic pain. http://www.painpathways.org/about-us/pa ... s-magazine
Catherine
2004 PNE following vag. hysterectomy and A & P repair. 2007 TIR surgery France. severe entrapment at Alcocks canal & SS ligaments . Have my life back. 90% cured.No longer have medical appts.or physio.Some pain remains but is tolerable. 2012 Flew from Australia to the UK without pain flare. Very manageable. Almost back to normal. Now hold support group meetings at KEMH Subiaco Perth WA. Every 2nd Sat. of the month. Still pace my activities. PN doesn't dominate any more.
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helenlegs 11
- Posts: 1779
- Joined: Fri Sep 17, 2010 9:39 am
- Location: North East England
Re: National Pain Week Australia
Excellent 
when so many would walk away and get on with their lives (and I wouldn't cast any aspersions at all for that) Wonderfully selfless, your story has got to help raise awareness Catherine. Thank you.
when so many would walk away and get on with their lives (and I wouldn't cast any aspersions at all for that) Wonderfully selfless, your story has got to help raise awareness Catherine. Thank you.Fall 2008. Misdiagnosed with lumber spine problem. MRN June 2010 indicated pudendal entrapment at Alcocks canal. Diagnosed with complex variant piriformis syndrome with sciatic, pudendal and gluteal entrapment's by Dr Filler 2010.Guided piriformis botox injection 2011 Bristol. 2013, Nerve conduction test positive; new spinal MRI scan negative, so diagnosed for the 4th time with pelvic nerve entrapment, now recognised as Sciatic, pudendal, PFCN and cluneal nerves at piriformis level.