Health Organization for Pudendal Education

Has anyone heard about or tried the neurostimulator by Medtronics called Restore? It is implanted and stops the brain from receiving nerve pain. It is usually used after failed back surgeries.

Since it looks like I am in for a long haul with pain after surgery, I want to find something that will get me through this time.

Kate

Hi Kate

There are many topics in the neurostimulation section which will give you more details of this type of therapy.
I have a Medtronics Restore Stimulator and have had it for four years now; it is a help but not a cure for this type of pain.
If you want any further details please feel free to ask me.

Amanda,
Does it bother you or can you feel it. I asked my pain management doctor and he said that I would be getting zaps from it.
Kate

Kate

Here is the long thread link about stimulators: http://www.pudendalhope.info/forum/view ... ?f=33&t=73

Yes of course I feel the stimulation, but its a gentle tingling in the background, I do get zaps everynow and then especially when I change positions; my stimulator has three programmes so I have to change this when I go from standing to sitting or to lying down if I dont change the programme the stimulation is too intense and in the wrong places.
Physically you cant forget you have a stimulator, as it is a hard protruding box so it does rub against clothing etc, you cant lie on that side nor on your tum apart from all the other restrictions that ive mentioned in the main thread. It is a life long therapy with life changing restrictions as well.

Thank you Amanda for the information.

Kate

Hi Kate,

I too have a stimulator but it is a Boston scientific n is a sacral nerve stim. I have had it v march this yr and still getting used to it and lots of programming.

Ezzl

Where are your leads placed? Where is your stimulator placed?
im curious as I know some people in the UK who have a BS Stimulator they seem to have problems with follow up etc.
Do you have any problems in this regard?

Hi Amanda,
The leads are placed in the butt crack n the battery is just above my hip but in saying that the battery has moved since placement n needs to be replaced will tell you where on e it's done. Never had a problem with follow up my programmer is avail to take calls whenever which is great

Im glad that you have no major problems, movement of the leads and battery is common, I had mine resited 3 months after original implantation as i had lost a lot of weight so the battery was floating about the place.......mind you now Ive put on that weight but its ok as it is now implanted into the muscle wall.

Hey Amanda,

Since I wrote I have been back in hospital getting the battery repositioned as I lost weight n like u it moved. Since the surgery two weeks ago I got an infection v surgery n a massive abcess that now needs draining cause I feel awful n can't eat etc why don't they tell us these things can happen