Need help
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helenlegs 11
- Posts: 1779
- Joined: Fri Sep 17, 2010 9:39 am
- Location: North East England
Re: Need help
Take a look at this topic.http://www.pudendalhope.info/forum/view ... 760#p13760
Manon was particularly interested in finding a good physio, even to the extent of sending someone already trained and interested on a course in France and then to Judy Predegast who was/is coming over here for a seminar I think sometime in July.
Manon was particularly interested in finding a good physio, even to the extent of sending someone already trained and interested on a course in France and then to Judy Predegast who was/is coming over here for a seminar I think sometime in July.
Fall 2008. Misdiagnosed with lumber spine problem. MRN June 2010 indicated pudendal entrapment at Alcocks canal. Diagnosed with complex variant piriformis syndrome with sciatic, pudendal and gluteal entrapment's by Dr Filler 2010.Guided piriformis botox injection 2011 Bristol. 2013, Nerve conduction test positive; new spinal MRI scan negative, so diagnosed for the 4th time with pelvic nerve entrapment, now recognised as Sciatic, pudendal, PFCN and cluneal nerves at piriformis level.
Re: Need help
Hi, whilst searching for diagnostic assessment for myself I found the following list of specialist PF Physiotherapy contacts for the UK.
http://www.pelvicphysiotherapy.com/Manu ... pists.html
There are a few on the list based in London area.
However, I need a female PF specialist based in the South West of England, Somerset or Devon, so that I can work with them on a regular basis. If anyone can recommend a specialist in the South West please let me know.
Many thanks
http://www.pelvicphysiotherapy.com/Manu ... pists.html
There are a few on the list based in London area.
However, I need a female PF specialist based in the South West of England, Somerset or Devon, so that I can work with them on a regular basis. If anyone can recommend a specialist in the South West please let me know.
Many thanks
Re: Need help
Hi Maxine, I think there's only me on here from the West Country. I don't know of any physios at all, sorry.
Personally I am more than a bit wary of physio for PN, there are so many people who have spent an awful lot of money on this and very very few who have had any improvement.
Personally I am more than a bit wary of physio for PN, there are so many people who have spent an awful lot of money on this and very very few who have had any improvement.
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helenlegs 11
- Posts: 1779
- Joined: Fri Sep 17, 2010 9:39 am
- Location: North East England
Re: Need help
So true Calluna, I am an example, but it;s a process that most have to at least attempt.Think I've seen 6 separate ones but none were specifically pelvic physios.
Thanks for the list Maxine there are a few names on there that have been mentioned on this forum before. Such a shame that non are near you (or me either) Ireland do very well
The other thing is that if you do get the op Calluna physiotherapy could be very helpful, it has to be the right kind though, it would be fantastic if we had pudendal aware people to choose from, but that is the standard complaint at the moment. . . . One day.
Thanks for the list Maxine there are a few names on there that have been mentioned on this forum before. Such a shame that non are near you (or me either) Ireland do very well
The other thing is that if you do get the op Calluna physiotherapy could be very helpful, it has to be the right kind though, it would be fantastic if we had pudendal aware people to choose from, but that is the standard complaint at the moment. . . . One day.
Fall 2008. Misdiagnosed with lumber spine problem. MRN June 2010 indicated pudendal entrapment at Alcocks canal. Diagnosed with complex variant piriformis syndrome with sciatic, pudendal and gluteal entrapment's by Dr Filler 2010.Guided piriformis botox injection 2011 Bristol. 2013, Nerve conduction test positive; new spinal MRI scan negative, so diagnosed for the 4th time with pelvic nerve entrapment, now recognised as Sciatic, pudendal, PFCN and cluneal nerves at piriformis level.
Re: Need help
I'll have to wait and see, Helen, but you are right of course - they often do recommend physio after surgery. I am seeing Mr Dixon in 5 weeks time - well, 5 weeks and 2 days! 
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helenlegs 11
- Posts: 1779
- Joined: Fri Sep 17, 2010 9:39 am
- Location: North East England
Re: Need help
Not counting down the days then
Fall 2008. Misdiagnosed with lumber spine problem. MRN June 2010 indicated pudendal entrapment at Alcocks canal. Diagnosed with complex variant piriformis syndrome with sciatic, pudendal and gluteal entrapment's by Dr Filler 2010.Guided piriformis botox injection 2011 Bristol. 2013, Nerve conduction test positive; new spinal MRI scan negative, so diagnosed for the 4th time with pelvic nerve entrapment, now recognised as Sciatic, pudendal, PFCN and cluneal nerves at piriformis level.
Re: Need help
Many thanks Girls (Calluna & Helen) for your responses to my message. You are very right. As in any profession they vary in calibre.
Sometimes even strictly consulting only those who advertise themselves as being experts in a particular area is not a failsafe plan. The only way to sort the wheat from the chaff is to try them out; it can be costly in many respects.
Btw, my spinal rehab physio recognised PN when I mentioned it to him yesterday; he associated it with people who get Piriformis issues. Although he does not see a lot of PN, Piriformis certainly falls into his category due to him working in the lumbar/pelvic/SIJ problem area.
I need a collaboration of spinal rehab combined with with a specialist womens health (PFD) physio to make up my physio team! I only have my foot on the first rung of the ladder with regards to assessment for PN.
Calluna, I am going to see Grace Dorey on Friday to ask if she can help me with the womens health (PF) side. I am seeing her at Barnstable. Otherwise she consults at Taunton. I'll update if I find out anything useful.
All best wishes
Max
Sorry Question seem to have hijacked your post
Sometimes even strictly consulting only those who advertise themselves as being experts in a particular area is not a failsafe plan. The only way to sort the wheat from the chaff is to try them out; it can be costly in many respects.
Btw, my spinal rehab physio recognised PN when I mentioned it to him yesterday; he associated it with people who get Piriformis issues. Although he does not see a lot of PN, Piriformis certainly falls into his category due to him working in the lumbar/pelvic/SIJ problem area.
I need a collaboration of spinal rehab combined with with a specialist womens health (PFD) physio to make up my physio team! I only have my foot on the first rung of the ladder with regards to assessment for PN.
Calluna, I am going to see Grace Dorey on Friday to ask if she can help me with the womens health (PF) side. I am seeing her at Barnstable. Otherwise she consults at Taunton. I'll update if I find out anything useful.
All best wishes
Max
Sorry Question seem to have hijacked your post
Re: Need help
Many thanks Girls (Calluna & Helen) for your responses to my message. You are very right. As in any profession they vary in calibre.
Sometimes even strictly consulting only those who advertise themselves as being experts in a particular area is not a failsafe plan. The only way to sort the wheat from the chaff is to try them out; it can be costly in many respects.
Btw, my spinal rehab physio recognised PN when I mentioned it to him yesterday; he associated it with people who get Piriformis issues. Although he does not see a lot of PN, Piriformis certainly falls into his category due to him working in the lumbar/pelvic/SIJ problem area.
I need a collaboration of spinal rehab combined with with a specialist womens health (PFD) physio to make up my physio team! I only have my foot on the first rung of the ladder with regards to assessment for PN.
Calluna, I am going to see Grace Dorey on Friday to ask if she can help me with the womens health (PF) side. I am seeing her at Barnstable. Otherwise she consults at Taunton. I'll update if I find out anything useful.
All best wishes
Max
Sorry Question seem to have hijacked your post
Sometimes even strictly consulting only those who advertise themselves as being experts in a particular area is not a failsafe plan. The only way to sort the wheat from the chaff is to try them out; it can be costly in many respects.
Btw, my spinal rehab physio recognised PN when I mentioned it to him yesterday; he associated it with people who get Piriformis issues. Although he does not see a lot of PN, Piriformis certainly falls into his category due to him working in the lumbar/pelvic/SIJ problem area.
I need a collaboration of spinal rehab combined with with a specialist womens health (PFD) physio to make up my physio team! I only have my foot on the first rung of the ladder with regards to assessment for PN.
Calluna, I am going to see Grace Dorey on Friday to ask if she can help me with the womens health (PF) side. I am seeing her at Barnstable. Otherwise she consults at Taunton. I'll update if I find out anything useful.
All best wishes
Max
Sorry Question seem to have hijacked your post