To All:
It took me almost a year to join this forum after believing I had and was somewhat diagnosed with PN. Well, now I definitely know I have pudendal nerve entrapment as well as a huge cyst lying my obturator nerve. I am scheduled for surgery with Dr. Conway on July 12th. I just wanted to write to let everyone know that I am so glad I joined this forum. I have received so many caring and helpful emails from the people I contacted. Each and everyone of them took the time to help answer my questions and share their empathy about my condition. I want others to know how thankful I am for your guidance during these difficult times and if there is anything I can do in return, I will!!!!
Sincerely,
Annmarie
Thank you to all!!!
Thank you to all!!!
Marathoner
peroneal pain-1994
1999 ischial tuberosity pains/obturator spasm. Stopped running,did elliptical & wts.
6/2010 right pelvis rotated, got massage,after got rectal burning & pain down legs.Soon Vaginal pain
Tried many PT's, Cold laser therapy, accupunture, ect. from 1994-2011
Trigger points w/Dr.Bailey 8/2010-6/2011
Nerve Blocks w/Dr.Quesada12/2010-9/2011
Bi. Pudendal Decompression surgery via TG Dr.Conway 7/2011
Sciatic,PFCN,Superior Gluteal,Piriformis surgery 1/2012
peroneal pain-1994
1999 ischial tuberosity pains/obturator spasm. Stopped running,did elliptical & wts.
6/2010 right pelvis rotated, got massage,after got rectal burning & pain down legs.Soon Vaginal pain
Tried many PT's, Cold laser therapy, accupunture, ect. from 1994-2011
Trigger points w/Dr.Bailey 8/2010-6/2011
Nerve Blocks w/Dr.Quesada12/2010-9/2011
Bi. Pudendal Decompression surgery via TG Dr.Conway 7/2011
Sciatic,PFCN,Superior Gluteal,Piriformis surgery 1/2012
Re: Thank you to all!!!
Annmarie, I'm wishing you a successful surgery. Please take it easy afterwards and remember it takes a lot of time to heal. 
Take care,
Violet
Take care,
Violet
PNE since 2002. Started from weightlifting. PNE surgery from Dr. Bautrant, Oct 2004. Pain now is usually a 0 and I can sit for hours on certain chairs. No longer take medication for PNE. Can work full time and do "The Firm" exercise program. 99% cured from PGAD. PNE surgery was right for me but it might not be for you. Do your research.
Re: Thank you to all!!!
AnneMarie, How were you diagnosed?
Athlete until pain started in 2001. Diagnosed with PN in Nov. 2010. Probable cause: 3 difficult labors, 5 pelvic surgeries for endometriosis, and undiagnosed hip injuries. 60% better after 3 rounds of shockwave therapy in Cornwall, Ontario (Dec - Feb/12). 99% better after bilateral hip scopes for FAI and labral tears (April and July/12). Pelvic pain life coach Lorraine Faendrich helped me overcome the mind/body connection to chronic pain: http://www.radiantlifedesign.com
Re: Thank you to all!!!
Good luck with your up and coming surgery.
2/07 LAVH and TOT 7/07 TOT right side removed 9/07 IL, IH and GN neuropathy 11/07 PN - Dr. Howard
6/08 Obturator neuralgia - Dr. Conway 11/08 Disability, piriformis syndrome - Dr. Howard
4/09 Bilateral obturator decompression surgery, BLL RSD - Dr. Howard
9/10 Removed left side TOT, botox, re-evaluate obturator nerve - Dr. Hibner
2/11 LFCN and saphenous neuralgia - Dr. Dellon 2/11 MRI with Dr. Potter - confirmed entrapment
5/11 Right side TG - Dr. Hibner 2012 Left side TG - Dr. Hibner
6/08 Obturator neuralgia - Dr. Conway 11/08 Disability, piriformis syndrome - Dr. Howard
4/09 Bilateral obturator decompression surgery, BLL RSD - Dr. Howard
9/10 Removed left side TOT, botox, re-evaluate obturator nerve - Dr. Hibner
2/11 LFCN and saphenous neuralgia - Dr. Dellon 2/11 MRI with Dr. Potter - confirmed entrapment
5/11 Right side TG - Dr. Hibner 2012 Left side TG - Dr. Hibner
Re: Thank you to all!!!
annmarie, best wishes. also, I hope he removes the cyst! I will pray for your procedure to go well!
-straddle fall age 4-7 w/bleeding labia, tampons hurt in teens, papsmere started annoying pelvic 'tingling' & pne in 02
-obturator surgery w/ Filler in 05 (useless, created sciatic & plantar fascitis pain)
-TIR surgery w/ Bautrant in 08 and vestibulectomy in 08 in France (vest. removed pain w/intercourse, pain w/sitting increased post surgery)
-chronic fatigue & food allergies/migraines (gluten, milk) from pain meds in 08
-want a life back. I'm 34 w/8+ years of pain
-obturator surgery w/ Filler in 05 (useless, created sciatic & plantar fascitis pain)
-TIR surgery w/ Bautrant in 08 and vestibulectomy in 08 in France (vest. removed pain w/intercourse, pain w/sitting increased post surgery)
-chronic fatigue & food allergies/migraines (gluten, milk) from pain meds in 08
-want a life back. I'm 34 w/8+ years of pain
Re: Thank you to all!!!
Best wishes, Annmarie! I'm so happy you finally found some definitive answers! 
Love and hugs,
Karyn
Love and hugs,
Karyn
Ultra Sound in 03/08 showed severely retroverted, detaching uterus with mulitple fibroids and ovarian cysts.
Pressure and pain in lower abdomen and groin area was unspeakable and devastating.
Total lap hysterectomy in 06/08, but damage was already done.
EMG testing in NH in 04/10 - bilateral PN and Ilioinguals
3T MRI at HSS, NY in 09/10
Bilateral TG surgery with Dr. Conway on 03/29/11. Bilat ilioinguinal & iliohypogastric neurectomy 03/12. TCD surgery 04/14.
Pressure and pain in lower abdomen and groin area was unspeakable and devastating.
Total lap hysterectomy in 06/08, but damage was already done.
EMG testing in NH in 04/10 - bilateral PN and Ilioinguals
3T MRI at HSS, NY in 09/10
Bilateral TG surgery with Dr. Conway on 03/29/11. Bilat ilioinguinal & iliohypogastric neurectomy 03/12. TCD surgery 04/14.