Health Organization for Pudendal Education

I'm in Missouri and know no one with PN issues and was wondering if any of you are aware of support groups. I honestly wouldn't be doing as well as I am if I didn't have everyone here to lean on and am just wondering if there are others near me who feel the same.

Kathy

I'm not sure if there are any PN support groups around yet aside from the one I have just been able to start in NV. The way I did it, and mind you so far there are just four of us and I have been trying to get this together for 9 months now, was to network with my care providers. One woman I met from direct referral from my pelvic floor PT, one through the office of the pain Doc who did my pudendal blocks, and the last one called me because I had requested, and got permission, to post a support group notice with my phone number in the office of my pelvic floor PT. I turned it in to her, and she posted it in the bathroom accross from the toilet, what better place!!???
So aside from this board, if you want to see if there are enough people in your area to form a support group, for sure speak to your PT and any other pelvic floor PT's in your area, and ask if you can post something and/or provide your number to be given out to anyone they think might be interested.

thanks for the tips. I will let you know how it works out.

Kathy