Health Organization for Pudendal Education

Saw my nuerologist this week and he doesn't want to go any further, and won't support my botox appeal, until I try one more drug. So this weekend I'm starting Oxcarbazepine 150mg twice a day, then in 2 weeks up it to three times a day, two more weeks four times a day. Has anyone used this? I've been off all meds since the beginning of April and really am enjoying actually having a clear mind. Howeve maybe this one won't be as bad since I'm no longer taking a handful of other pills along with it. Sigh...hopeful but...we'll you understand.

Good luck with the new drug, Tracy, and keep us posted.

Hi Tracy,

I hope that you do well with this new drug. I took a look at it and it looks like it is in category to treat epilepsy, kind of like neurontin and Lyrica. Have you tried any of these anti-eptileptic drugs before with any success?

Take care,
Wendy

Hi Wendy

I did try Lyrica but it actually caused suicidal thoughts. Now that may be because of the other meds on was on at the time didn't mix well with it. I really don't know. But once I stopped the Lyrica I quit thinking about driving under a semi. Definitely not trying that again. I haven't found a medication or mixture of meds that have worked...yet. Ice is still my best friend.

Hello Traci,

That is a really bad side effect. That really sucks! Glad you found out that it was the Lyrica causing the problem, before you acted on something. Medications can cause some serious side effects. But, knowing that you had that reaction to the Lyrica, it might be good to watch out for that same side effect with the Oxcarbazepine. But, I do hope that it works just as well for you as the Lyrica did.

Take care,
Wendy

Best of luck with this medication change but as Wendy has already said you should be aware of previous experiences with medications so that you can be aware this time.
This type of meds are great for some people and terrible for others.....I personally couldnt take any of them.

Thank you both!! I've made my family aware (17yo son lives with me and my mom I talk to on the phone daily) that I've started a new med and to let me know if they see/hear anything unusual. It's hard to see it in ourselves.

Trileptal is the other name for this drug. Did you ever try Neurontin Tracy or just Lyrica? If not maybe you could try Neurontin first?