Health Organization for Pudendal Education

I know it sounds like a dumb idea, but snowboarding is one of my favorite hobbies and i truly miss it.. my friends are going to NZ next month and im debating on if i should go because they will be snowboarding for part of the trip.. I know its risky but there are "but" pads that i can buy that will decrease the impact if if fall.. has anyone continued snowboarding or skiing since PN?

NO NO NO NO NO NO NO!!!!

Worst idea EVER! It's much too risky, my dear. Your nerve is already compromised and it would not take much of a fall for it to go into full "pudendal shutdown" (as one member has put it). Be grateful for what you can do now: travel, go to school, socialize, walk, go shopping, go to the mall. Many of us cannot do these simple things because of our condition. Play it safe, Jamie!

NO NO NO NO NO!!!!!

AGAIN NO!!!

sorry but your life is worth more than ONE day on the mountains. you can't go backwards easily with PN pain. Once you hit a pain level, you're there and it's nearly impossible to get back down.

DO NOT EVER do anything to make you worse, because the nerve, running through a tunnel in your body, doesn't know what to do with all that inflammation or how to get it out of the tunnel, and the inflammation just builds.

Do not do not do not do not do not do this... Sorry to burst your bubble, but DO NOT do this!!

no trip.

Frankly, you'd be mad to risk a heavy fall on a compromised nerve. I speak from experience. I had PN symptoms for many years on and off, sometimes severe, and a fall finally pushed the nerve over the top. I was symptom free at the time I fell and eight years later am still in pain. Think this through carefully!

It's very easy to convince ourselves that we just want to live a regular life...even just for a day. However Please, Please, Please think through it very carefully. A fall could send you into a flare that could last a really long time. We all over do it when we are feeling good and pay for it later. It really is NOT worth the chance.

Hi Stephanie,
Sorry to learn that your TG surgery didn't help. Would it be possible for you to have a 3T MRI with Dr. Potter in NYC? It seems to be very helpful.
Best regards, M

thankss for being honest, it hurts to hear but sometimes you have to hear it from someone to make me realize bodys so fragile and its just not worth it..

A collective "you're welcome" from all your "mothers" out here in cyberspace! By all means go on the trip to NZ for the beautiful sightseeing but just don't hit the slopes!

Love from Mother Lernica

I'm sorry, Jamie. If you ever want to chat about lost experiences/youth, I'm here. I never thought that I'd be writing off so many experiences at the ripe old age of 24 (I'm 25 now). It's definitely an adjustment, and don't feel guilty about grieving losses.

But there is still so much I can do, and I'm soooo grateful. Emotionally, I'm a million times better than I was a year ago. Hang in there!!

Lauren

Hi Mulan,
Many thanks for your concern. Yes, a visit to Hollis Potter would be a great idea. The only thing is, I live in New Zealand and am not up to a long flight right now: I went into a state of extreme fatigue after an injection of botox in Sydney in 2007 (a rare event), and although my energy has improved some (I was housebound for 2+ years), I'm still far from my former travelling self!