Living with PN and teenagers

Here is a place for social chats with special attention to support and non medical discussions. We need a place to chill out, where we can distract from our pain and enjoy lighter moments, share a joke or funny moment with others.
Lernica
Posts: 960
Joined: Fri Jan 14, 2011 10:31 pm

Living with PN and teenagers

Post by Lernica »

Here are some recent exchanges at my house:

Me: Could you please lift the cooking pot out of the sink for me?
Teenager: What, you can't even lift THAT?

Me: Could you please pick up the sticks from the trees that have fallen in the yard over the winter?
Teenager: Why? The yard looks fine to me.

Me: No you may not use the car tonight.
Teenager: You're always mean to me when you're in pain!

Me: You're grounded!
Teenager: You're crazy! That's why you're taking all those antidepressants!

Me: Could you please move the clothes from the washer to the dryer for me?
Teenager: I'm not your slave!

Me: Sorry, but you have to help me whether you want to or not.
Teenager: I'm sure that's against my human rights.
Athlete until pain started in 2001. Diagnosed with PN in Nov. 2010. Probable cause: 3 difficult labors, 5 pelvic surgeries for endometriosis, and undiagnosed hip injuries. 60% better after 3 rounds of shockwave therapy in Cornwall, Ontario (Dec - Feb/12). 99% better after bilateral hip scopes for FAI and labral tears (April and July/12). Pelvic pain life coach Lorraine Faendrich helped me overcome the mind/body connection to chronic pain: http://www.radiantlifedesign.com
TracyB7777
Posts: 196
Joined: Mon Sep 27, 2010 3:42 am
Location: Vail, Arizona

Re: Living with PN and teenagers

Post by TracyB7777 »

Ahhhhh, teenagers. Now we know why some species eat their young. My mom always swore the only reason she let us live was the hope for grandchildren. Hang in there!!!
Have been dealing with burning pain since Jan 2010.
No sitting since April 2010.
Seen the following dr's: DO, GYN, Dermatologist, Accupuncturist,
URO GYN (his RN is the one who suggested the pain could be PN), Neurologist
Had ECG and MRI both inconclusive, only the SSEP said Pudendal reaction was abnormal and they lost that test result.
Saw Dr. Castellanos April 6, 2011. Next steps, MRI and botox. Having PT while waiting.-Botox denied, appealing to Insurance company now. :(
Griff522
Posts: 314
Joined: Sun Oct 10, 2010 7:42 pm
Location: Michigan

Re: Living with PN and teenagers

Post by Griff522 »

Yep, sounds like a teenager. It really depends on their mood, but they can be very compassionate and help, or if I catch them on a bad day, you would think I was asking them to cut off their right arm!

My son will turn 17 on Friday, and STILL hasn't managed to take his driver's test. He knows how much it would help me if he could drive, but all his friends are driving so his social life is not affected so there is no motivation whatsoever for him to drive! We are on spring break next week, and I'm planning on having a very serious conversation with him about my ability to drive after my surgery in May.
Burning vulva pain began 10/09
Treated for SIJD 9/10 and burning stopped and pain localized to rt side
Surgery w/ Dr Dellon 5/11 - didn't help my pain
2012 - PT, massage therapy, and ART therapy from chiropractor
MRI showed labral tear and US of groin found hernias
2/13 - surgery for sports hernia
5/13 - still have obturator internus spasms
5/13 - appt with ortho spine dr
8/16/13 - Arthroscopic surgery to rt hip for FAI and torn labrum
nyt
Posts: 1165
Joined: Sun Oct 31, 2010 3:24 am

Re: Living with PN and teenagers

Post by nyt »

The joys of teenagers. This to shall pass and then in their early twenties, well maybe a little longer for the guys, sorry guys I had 2 boys, they turn into these wonderful human beings that you forgot they were.
2/07 LAVH and TOT 7/07 TOT right side removed 9/07 IL, IH and GN neuropathy 11/07 PN - Dr. Howard
6/08 Obturator neuralgia - Dr. Conway 11/08 Disability, piriformis syndrome - Dr. Howard
4/09 Bilateral obturator decompression surgery, BLL RSD - Dr. Howard
9/10 Removed left side TOT, botox, re-evaluate obturator nerve - Dr. Hibner
2/11 LFCN and saphenous neuralgia - Dr. Dellon 2/11 MRI with Dr. Potter - confirmed entrapment
5/11 Right side TG - Dr. Hibner 2012 Left side TG - Dr. Hibner
pomegranate
Posts: 157
Joined: Sat Sep 18, 2010 3:12 am
Location: Oklahoma

Re: Living with PN and teenagers

Post by pomegranate »

I teach them everyday for 7 hours, but the thought of having my own scares the youknowwhat out if me! Hang in there.

Lauren
2008: mild pelvic pain and PFD began
2009: true PN/PFD pain, two PN blocks, normal PNMLT
2010: PT and conservative management with moderate improvement in PN/PFD symptoms
2011: surgery for extensive endometriosis; arthroscopic hip surgery to repair labral tear and FAI (right hip)
2012: C-section delivery of first child
2014: arthroscopic hip surgery to repair labral tear and FAI (left hip); C-section delivery of second child
Ongoing physical therapy since 2010 for both pelvic floor and hips.
HerMajesty
Posts: 1134
Joined: Sat Sep 18, 2010 12:41 am
Location: North Las Vegas, Nevada

Re: Living with PN and teenagers

Post by HerMajesty »

I explained to my son right at the outset of puberty: God created adolescence for a reason. Right now you would never want to live without your mommy and I would never want to live without my little boy; but by the time the teen years are over we will be dying to get rid of each other. That is how children manage to move out and become independent young men and women without everyone's heart breaking. Look at it that way and you can approach each day with the good cheer that things are going just as they should ;)
pelvic pain started 1985 age 14 interstitial cystitis. Refused medical care from age 17, did GREAT with self care for years.
2004 PN started gradually, disabled by 2009. Underlying cause SIJD & Tarlov cysts
improved with PT & meds: neurontin, valium, nortriptyline, propanolol. (off nortriptyline & propanolol now, yay!)
Tarlov cyst surgery with Dr. Frank Feigenbaum March 20, 2012.
Results have been excellent so far; but I won't know my final functional level for a couple of years.
Lernica
Posts: 960
Joined: Fri Jan 14, 2011 10:31 pm

Re: Living with PN and teenagers

Post by Lernica »

OK, this one's a doozy (from today):

Me: Have you cleaned your room yet?
Teenager: Stop bugging me! When are you gonna get a JOB?
Athlete until pain started in 2001. Diagnosed with PN in Nov. 2010. Probable cause: 3 difficult labors, 5 pelvic surgeries for endometriosis, and undiagnosed hip injuries. 60% better after 3 rounds of shockwave therapy in Cornwall, Ontario (Dec - Feb/12). 99% better after bilateral hip scopes for FAI and labral tears (April and July/12). Pelvic pain life coach Lorraine Faendrich helped me overcome the mind/body connection to chronic pain: http://www.radiantlifedesign.com
TracyB7777
Posts: 196
Joined: Mon Sep 27, 2010 3:42 am
Location: Vail, Arizona

Re: Living with PN and teenagers

Post by TracyB7777 »

Two words: DUCT TAPE!! :lol:
Have been dealing with burning pain since Jan 2010.
No sitting since April 2010.
Seen the following dr's: DO, GYN, Dermatologist, Accupuncturist,
URO GYN (his RN is the one who suggested the pain could be PN), Neurologist
Had ECG and MRI both inconclusive, only the SSEP said Pudendal reaction was abnormal and they lost that test result.
Saw Dr. Castellanos April 6, 2011. Next steps, MRI and botox. Having PT while waiting.-Botox denied, appealing to Insurance company now. :(
Griff522
Posts: 314
Joined: Sun Oct 10, 2010 7:42 pm
Location: Michigan

Re: Living with PN and teenagers

Post by Griff522 »

OMG Lernica.

I had a rather stressful day with my soon to be 17 yr old non-driving son.

Classes were cancelled today at my kids' high school this morning. Apparently yesterday, a teacher of military history, who had recently been fired, had been threatening other staff members and was sent home. Police were notified but they were unable to locate the man. So this morning the administrators decided to cancel school for the safety of students and staff. The teacher then showed up at the school at 6:30 am with a gun in his car and police took him into custody without altercation.

So since we are leaving for spring break vacation, I wanted my kids to get some reading material for the trip. My pain level is up today because I'm starting my period, and I explained to my son the situation. That I needed him to listen to my instructions and do what I tell him to do. Well, we hadn't been in the car 10 mins and I was screaming at him to slow down, and stop at a yellow light. He ran it and proceeded to tell me he knew what he was doing and he didn't need to stop. HE JUST DOES NOT GET IT! I told him that this is precisely the reason I talked to him before we left. After, several other instances of just not being aware of other vehicles and intersections, and him telling me he didn't care, I told him to park it and let me drive. Needless to say, he will not be getting his license any time soon.
Burning vulva pain began 10/09
Treated for SIJD 9/10 and burning stopped and pain localized to rt side
Surgery w/ Dr Dellon 5/11 - didn't help my pain
2012 - PT, massage therapy, and ART therapy from chiropractor
MRI showed labral tear and US of groin found hernias
2/13 - surgery for sports hernia
5/13 - still have obturator internus spasms
5/13 - appt with ortho spine dr
8/16/13 - Arthroscopic surgery to rt hip for FAI and torn labrum
HerMajesty
Posts: 1134
Joined: Sat Sep 18, 2010 12:41 am
Location: North Las Vegas, Nevada

Re: Living with PN and teenagers

Post by HerMajesty »

LOL Griff I lived through teaching 4 teen foster kids to drive...1st one was a speed demon and I used to scream at him, "You are giving me another white hair!" I could really feel each new white hair coming in while driving with that kid! But I don't know if the issue is my own kid being the worst, or me just getting old and delicate: I let my 13 year old drive me around the block for the 1st time the other day and seriously came home with some whiplash. This one is going to be put into the hands of his father or a driving instructor because I can tell my body can NOT take the stress.
pelvic pain started 1985 age 14 interstitial cystitis. Refused medical care from age 17, did GREAT with self care for years.
2004 PN started gradually, disabled by 2009. Underlying cause SIJD & Tarlov cysts
improved with PT & meds: neurontin, valium, nortriptyline, propanolol. (off nortriptyline & propanolol now, yay!)
Tarlov cyst surgery with Dr. Frank Feigenbaum March 20, 2012.
Results have been excellent so far; but I won't know my final functional level for a couple of years.
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