Perineal Pain Misdiagnosed
Insola A, Granata G, Padua L. Alcock canal syndrome due to obturator internus muscle fibrosis. Muscle Nerve. 2010 Sep;42(3):431-2.
Pain in the perineum can come from pudendal nerve problems, as they did in this patient. In this case, the pain was not caused by the nerve being trapped in Alcock’s canal, the area where the nerve crosses the “sit bone.” Instead, it was caused by development of fibrous tissue in the obturator internus muscle after an injury. That muscle connects the top of the thigh bone to the pelvis. The diagnosis was missed for two years and was made only after neurophysiologic testing and magnetic resonance imaging (MRI). These authors said that this case underlines the need for doctors to perform these kinds of tests and studies in patients with neuropathic perineal pain, which can occurs in patients with IC and chronic prostatitis/chronic pelvic pain syndrome.
ANYONE HEAR OF THESE DOCS????
I was encouraged that this is making headlines on the ICA... as I was misdiagnosed with IC and have confirmed PNE.
A's Mommy
Found this on the ICA --- new abstract on PNE
Found this on the ICA --- new abstract on PNE
Daughter grew completely on left side of pelvis
Multiple uterine surgeries to fix uterine adhesions, septum, and endo
Had all the conservative workups done, 3Tesla (Potter), recovering from L sided TG (Hibner) 11/10, Botox 6/11 failed, bilateral anterior PNE decompression (distal Alcock's/perineal branch), Aszmann, Vienna, 10/11; dx'd with CRPS Type 2, 12/11, Ketamine @ CCF 2/12, doing 75% better PRAISE JESUS!
http://fighting-pne.blogspot.com
http://www.thepelvicmessenger.org
Multiple uterine surgeries to fix uterine adhesions, septum, and endo
Had all the conservative workups done, 3Tesla (Potter), recovering from L sided TG (Hibner) 11/10, Botox 6/11 failed, bilateral anterior PNE decompression (distal Alcock's/perineal branch), Aszmann, Vienna, 10/11; dx'd with CRPS Type 2, 12/11, Ketamine @ CCF 2/12, doing 75% better PRAISE JESUS!
http://fighting-pne.blogspot.com
http://www.thepelvicmessenger.org
Re: Found this on the ICA --- new abstract on PNE
Yes I have, they're researchers, not clinicians. I found some other thing from them a long time ago, saying PNE needs more study.
PNE as a result of childbirth, 2002. Treatment by the Houston team, with neurosurgery by Dr. Ansell in 2004. My left side ST and SS ligaments were found to be grown together, encasing the pudendal nerve.
I am cured. I hope you will be, too.
There are no medical answers on the forum. Your only hope is to go to a doctor. I was very happy with the Houston team, which has treated the most PNE patients (well over 400), more than any other US provider.
http://www.tipna.org
I am cured. I hope you will be, too.
There are no medical answers on the forum. Your only hope is to go to a doctor. I was very happy with the Houston team, which has treated the most PNE patients (well over 400), more than any other US provider.
http://www.tipna.org
Re: Found this on the ICA --- new abstract on PNE
I read the article. It is a single case analysis. There is nothing new that I learned to be honest.
2002 PN pain started following a fall on a wet marble floor
2004 Headache in the pelvis clinic. Diagnosed with PNE by Drs. Jerome Weiss, Stephen Mann, and Rodney Anderson
2004-2007 PT, Botox, diagnosed with PNE by Dr. Sheldon Jordan
2010 MRN and 3T MRI showing PNE. Diagnosed with PNE by Dr. Aaron Filler. 2 failed PNE surgeries.
2011-2012 Horrific PN pain.
2013 Experimented with various Mind-body modalities
3/2014 Significantly better
11/2014 Cured. No pain whatsoever since
2004 Headache in the pelvis clinic. Diagnosed with PNE by Drs. Jerome Weiss, Stephen Mann, and Rodney Anderson
2004-2007 PT, Botox, diagnosed with PNE by Dr. Sheldon Jordan
2010 MRN and 3T MRI showing PNE. Diagnosed with PNE by Dr. Aaron Filler. 2 failed PNE surgeries.
2011-2012 Horrific PN pain.
2013 Experimented with various Mind-body modalities
3/2014 Significantly better
11/2014 Cured. No pain whatsoever since