Health Organization for Pudendal Education

I am interested if anyone has been referred to the Mayo Clinic for evaluation of their problems. And, if so, was there any knowledge/help available? (I'm thinking it might just be a wasted trip and a lot of money better spent elsewhere...)

There have been people who have gotten diagnosed at Mayo. They actually did a few surgeries there several years ago but have discontinued it. I think most doctors would accept Mayo's findings, but if you wanted to pursue surgery you would definitely have to do it someplace else. I do think Mayo is more open to diagnosing it, whereas Cleveland Clinic (from what I've heard from other Ohioans) really doesn't put much stock in PNE or decompression surgery.

My understanding is that Mayo Clinic is into treating PNE with conservative therapies such as PT -- and that's something you can probably do closer to where you live without having to travel all the way to Mayo.

Living 20 miles from the MAYO clinic in Scottsdale, AZ, I thought about pursuing treatment there, but when I applied to see doctors, and mentioned pudendal neuralgia, they immediately called me back and said they didn't have anyone that could help me. Just an FYI. This was last week.

AZguy,
Thanks for the feedback. It is what I heard multiple times. Mayo is results oriented and they want to keep their successful image. The outcome of PNE surgery being unfortunately hard to predict, they won't touch it.