Health Organization for Pudendal Education

Hello,

I’m one year post-op hysterectomy

I have a lot of PN symptoms but it happens when I stand up. Sitting is not so bad, laying down relieves it.
Is this familiar to anyone else?? It’s keeping me in denial.

Help?

Hi Carnation,

That is familiar to me. Sitting does not increase my pain (in fact, sitting is sometimes better than standing), and lying down helps it a bit. I think lying down helps because I'm relaxing the ligaments. Hibner said that some people with a small pelvis might get relief when they sit because it opens up the ligaments a bit. I had decompression surgery six years ago, and my pain gradually declined after that. But I still have flares and this pattern---with sitting not being a problem--still holds.

Have you seen a doctor about this? What treatments have you tried?

April

Thanks for you help April,

I’m on doctor #6 right now who thinks it’s PN
I don’t do well on meds so
I’ll be starting PT this month
Not being able to stand up for longer than a few minutes is extremely disabling
I almost feel normal when I’m laying down What a life!

So happy to see that you were helped
It gives me hope
Thanks

Yeah, most of us have cycled through a lot of doctors, but 6 in a year is a lot even in these circles. Are they urogynecologists? Yes, it is hard to be on meds. I was very glad when I got off of them. Have you tried ice and/or heat to deal with the pain? did pt (only external) for years and it did relax my muscles, and I learned a lot from my pt, but it didn't create any long-term benefit I think because my nerve was entrapped. But some people do benefit from it. Let us now how your pt appointments go.

April