Health Organization for Pudendal Education

My doctor wants me to stop Percocet so at first I was prescribed MS Contin (Morphine Sulfate) that had no effect whatsoever on the pain. Now I am prescribed Opana (Oxymorphone) and to be honest, that works quite well even at a fairly low dosage. No side effects also which is great.
As we all know we react differently to pain medication but it is certainly worth a try IMO.
I also tried Methadone in the past and that was a disaster as I had trouble breathing on it.

http://www.drugs.com/opana.html

That is great news, Ezer!!!

You've got me all inspired to check it out now as percocet did nada for the nerve pain.

What exactly does it take away... All sx of neuralgia?

I also take opana er - 10mg 2x a day and then a 5mg opana ir for break thru pain if needed. Been taking about 14 months with my other meds and it really helps my pain and it's very good for burning pain. I can also function pretty well on it - not too sleepy or groggy and am fairly clearheaded.

merrie

A's Mommy wrote:That is great news, Ezer!!!

You've got me all inspired to check it out now as percocet did nada for the nerve pain.

What exactly does it take away... All sx of neuralgia?

A's mommy,
Yes, it really does reduce the gnawing/burning pain significantly. It is in extended release form and the pain goes away for about 2 and 1/2 hours with a 10mg dose. No dizziness also which is nice,

I have been taking Opana for 4 months along with oxycodone and gabapentin and I can't tell any difference from taking oxycontin or methadone. None are giving me any real relief. PNE surgery Dec. 1, 2010. Complete relief Dec. 1st-Jan. 21st. Pain came back full force on Jan. 21st and I have not been able to get any relief. I either stand, sit half on chair for a few minutes or lay. I keep going but it is really tough. I found where someone mentioned relief from an IC pillow. I cannot find that post again. Has anyone tried one or know what they are?

Hi Betty,
Welcome to HOPE! Wow - those are some pretty serious meds you're on! I'm sorry you're not getting sufficient pain relief from them. Could you please tell us a little bit about yourself?
I noticed you had PNE surgery - who was your surgeon and what type of surgery did you have (Unilateral vs Bilateral - TG or TIR)?
You can find seating cushions at : http://www.icnsales.comor you could try the "cush tush" from http://www.amazon.com.
Recovery is a roller coaster ride and we're here to offer whatever comfort we can!
Warm regards,
Karyn

Betty wrote:I have been taking Opana for 4 months along with oxycodone and gabapentin and I can't tell any difference from taking oxycontin or methadone. None are giving me any real relief. PNE surgery Dec. 1, 2010. Complete relief Dec. 1st-Jan. 21st. Pain came back full force on Jan. 21st and I have not been able to get any relief. I either stand, sit half on chair for a few minutes or lay. I keep going but it is really tough. I found where someone mentioned relief from an IC pillow. I cannot find that post again. Has anyone tried one or know what they are?

Hi Betty,

I'm so sorry that your pain came back. I know that this has happened to people post op, but please don't lose hope of getting relief.

Here's the link for the cushion you were talking about.
http://www.icnsales.com/chair-cushions/

Betty,
I am sorry that your pain came back. Where did you have surgery and what was found? I already sense that Opana is less effective after a few months on it. There are just no good solutions for neuropathic pain.

Thank you to those that sent different kinds of pillow suggestions. I have tried so many and tried lots of different ones at a Relax A Back Store in Tampa. We think the damage was done when I was spinning at our Wellness Center. The pain gradually began to build in July, 2007. By Dec. a neurologist gave me 12 botox injections down my back and from that moment on I was in excruciating pain in my pelvis and left leg. Not only could the many doctors that I went to here in The Villages, but Mayo in Jacksonville could not find out what was wrong. In all I have seen 21 doctors. I finally found my symptoms on line by Dr Renney. After talking with him we flew to Tx., had tests confirming PNE and Dr Ansell performed the surgery. I did so good after surgery for 5 weeks and then the pain returned with all it's burning fury. It's good to connect with other PNE sufferers and to learn new ways to cope.

Dr. Renney's pain went away immediately after surgery, and then came back while he was on the plane ride home from France. It took a while, but his pain did go away. So, please do whatever it takes to hang on and give your body time for healing. I know this is an incredible setback, and I'm so sorry.