PT Frustration

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TracyB7777
Posts: 196
Joined: Mon Sep 27, 2010 3:42 am
Location: Vail, Arizona

PT Frustration

Post by TracyB7777 »

I had my first PT session last week. We had a long conversation about building trust in her so that I would let her put my tailbone back into place. So imagine my shock when I went in today for my second session, and was actually excited and hopeful to get some more relief, only to find she had rescheduled me with someone else. There was just no way that was going to happen. As if it's not bad enough that we have to lose all modesty with this; when it comes to internal PT I think I have the right to get the person I scheduled the appointment with. I've been assured the remainder of my appointments are with her but I'm not sure I want to bother. I mean good grief, if that's building trust then I'm not interested.
Have been dealing with burning pain since Jan 2010.
No sitting since April 2010.
Seen the following dr's: DO, GYN, Dermatologist, Accupuncturist,
URO GYN (his RN is the one who suggested the pain could be PN), Neurologist
Had ECG and MRI both inconclusive, only the SSEP said Pudendal reaction was abnormal and they lost that test result.
Saw Dr. Castellanos April 6, 2011. Next steps, MRI and botox. Having PT while waiting.-Botox denied, appealing to Insurance company now. :(
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Karyn
Posts: 1655
Joined: Fri Sep 17, 2010 12:59 pm
Location: Lowell, MA

Re: PT Frustration

Post by Karyn »

Hi Tracy,
I'm so sorry that happened to you! I remember your other post and how you talked about trust with this PT. How upsetting! I understand and completely agree with you that, because of the nature of our PT treatments, you want someone that's DEDICATED to you. That's how trust is built. Not by passing you around to other therapists! I also understand that "stuff happens", but it would've been nice if they called to give you a heads up that this particular therapist would be unavailable, giving you the option of either rescheduling or seeing someone else.
Based on their assurance that this won't happen again, maybe you could give them one more chance. Very nicely, but CLEARLY explain how you felt about this to the therapist you signed up to see. It could be they didn't think you'd mind who provided your treatments. :shock:
Please let us know how it goes, if you decide to go back.
Hugs,
Karyn
Ultra Sound in 03/08 showed severely retroverted, detaching uterus with mulitple fibroids and ovarian cysts.
Pressure and pain in lower abdomen and groin area was unspeakable and devastating.
Total lap hysterectomy in 06/08, but damage was already done.
EMG testing in NH in 04/10 - bilateral PN and Ilioinguals
3T MRI at HSS, NY in 09/10
Bilateral TG surgery with Dr. Conway on 03/29/11. Bilat ilioinguinal & iliohypogastric neurectomy 03/12. TCD surgery 04/14.
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Violet M
Posts: 6770
Joined: Mon Sep 06, 2010 6:04 am
Location: United States
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Re: PT Frustration

Post by Violet M »

Really Tracy, I think you should have been notified unless it was a true emergency and you couldn't be notified in time. I would not have been happy either. :evil:
PNE since 2002. Started from weightlifting. PNE surgery from Dr. Bautrant, Oct 2004. Pain now is usually a 0 and I can sit for hours on certain chairs. No longer take medication for PNE. Can work full time and do "The Firm" exercise program. 99% cured from PGAD. PNE surgery was right for me but it might not be for you. Do your research.
Faith
Posts: 697
Joined: Fri Oct 15, 2010 5:15 pm

Re: PT Frustration

Post by Faith »

That's crazy they didn't tell you before hand. They should have called you and asked if you wanted to reschedule or go with a different PT. I agree with you pelvic PT requires some trust and it shouldn't be taken lightly. If you decide to go back I would explain how this upset you and tell them you'd appreciate to be called ahead of time if your PT can't make it. But I'd understand if you chose not to go back too.
-11/08 vulvodynia began around conception of first & only pregnancy
-3/10 sacral/sitting pain began after SIJD manipulation
-Progressive widespread pain- central sensitization
-PT, meds, injections, botox, ESWT = debilitated.
-5/12 Potter MRI - scarring of left ST, coccygeous & posterior alcock
-12/12 - left FAI/labral hip tear surgery
2014-2019 managed w/ gabapentin, massage, and lifestyle mod
2020 - big flare up
www.thepurposeofpain.blogspot.com
TracyB7777
Posts: 196
Joined: Mon Sep 27, 2010 3:42 am
Location: Vail, Arizona

Re: PT Frustration

Post by TracyB7777 »

I do appreciate the support. I plan on chatting with the therapist before my next scheduled appt. I really think the first session helped, heck, I sat for 10 minutes today before I decided the burning was not worth pushing my luck with. Just a week in a half and then I see Loretta then Dr. C in Hibner's office. I think I'll hold future PT sessions and after that.
Have been dealing with burning pain since Jan 2010.
No sitting since April 2010.
Seen the following dr's: DO, GYN, Dermatologist, Accupuncturist,
URO GYN (his RN is the one who suggested the pain could be PN), Neurologist
Had ECG and MRI both inconclusive, only the SSEP said Pudendal reaction was abnormal and they lost that test result.
Saw Dr. Castellanos April 6, 2011. Next steps, MRI and botox. Having PT while waiting.-Botox denied, appealing to Insurance company now. :(
Faith
Posts: 697
Joined: Fri Oct 15, 2010 5:15 pm

Re: PT Frustration

Post by Faith »

Just a week and a half?! That's so great! I'm excited to hear how it goes for you Tracy.
-11/08 vulvodynia began around conception of first & only pregnancy
-3/10 sacral/sitting pain began after SIJD manipulation
-Progressive widespread pain- central sensitization
-PT, meds, injections, botox, ESWT = debilitated.
-5/12 Potter MRI - scarring of left ST, coccygeous & posterior alcock
-12/12 - left FAI/labral hip tear surgery
2014-2019 managed w/ gabapentin, massage, and lifestyle mod
2020 - big flare up
www.thepurposeofpain.blogspot.com
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