Health Organization for Pudendal Education

HI TO ALL; I HAVE UNFORTUNATELY BEEN AWAY FROM THE FORUM FOR A WHILE. LIKE ALL OF YOU, I AM TRYING EVERYTHING TO GET WELL. THE BIGGEST OBSTACLE THAT I FEEL I FACE THOUGH IS MY FRIEND'S, FAMILY, ECT.YES, THEY TRY TO UNDERSTAND AND HELP, BUT HOW DO YOU HELP SOMETHING THAT YOU CANNOT SEE? I OFTEN THINK AT TIMES MY FAMILY JUST GET'S SICK OF HEARING ABOUT IT DAY IN AND DAY OUT. NOW I'M NOT TRYING TO GET PEOPLE TO SYMPATHIZE AND GO OH POOR YOU. IT'S JUST THAT YOU HEAR OF SO MANY CAUSE'S OUT THERE WHERE YOU SHOULD SUPPORT AND SEND MONEY AND HELP TO CURE. YES I KNOW MANY OF THEM ARE FATAL. I'VE LOST FAMILY TO CANCER.I LOOKED AT MY HUSBAND ONE DAY AND SAID(TERRIBLE THING TO SAY)" DO I HAVE TO HAVE A FATAL ILLNESS FOR THIS WORLD TO PAY ATTENTION? NO ONE DOES MARATHONS OR ANYTHING TO RAISE AWARENESS OF THIS PROBLEM. MAYBE IF THEY DID, MORE DR'S,ECT. WOULD LEARN ABOUT IT, BECAUSE FUNDING AND INTEREST WOULD BE THERE. MY OWN DOC WOULD NOT HAVE KNOWN OF THIS CONDITION IF I HAD NOT SPENT MONTH'S RESEARCHING IT(WITH THANKS TO ORGANIZATIONS SUCH AS YOUR'S)YES HE HELPED ME GET TO THE DR. I NEEDED TO SEE AFTER I SHOWED HIM THE MATERIAL. MORE DR'S AND THE PUBLIC NEED TO BE MORE KNOWLEDGEABLE ON THIS, AT LEAST TO KNOW, BECAUSE WE ARE ALL EXPERIENCE THIS DIFFERENTLY. I JUST WANT ALL OF US TO HAVE A VOICE. THANK YOU FOR READING; JANET