Hi everyone,
I have read some testimonials from PNEers post surgery who have had success with this system.I doubt these people are still on the forum.
I would be very very very nervous to try one of these, but if anyone has anymore info I would be very interested in hearing about it.
http://www.spongywonder.com/buyandenjoy.htm
Jude
Has anyone returned to cycling ?
Has anyone returned to cycling ?
PNE from cycling. Surgery with Prof Vancaillie, Sydney Australia 2008.
Very much improved
Very much improved
Re: Has anyone returned to cycling ?
The bike seats look very comfy but are not enough to tempt me back onto a bike just yet. They look like good prophylactic devices but not for those of us who already have PN.
Athlete until pain started in 2001. Diagnosed with PN in Nov. 2010. Probable cause: 3 difficult labors, 5 pelvic surgeries for endometriosis, and undiagnosed hip injuries. 60% better after 3 rounds of shockwave therapy in Cornwall, Ontario (Dec - Feb/12). 99% better after bilateral hip scopes for FAI and labral tears (April and July/12). Pelvic pain life coach Lorraine Faendrich helped me overcome the mind/body connection to chronic pain: http://www.radiantlifedesign.com
Re: Has anyone returned to cycling ?
Jude
I know one of the people who have offered a testimonial for this kind of bike seat...however the benefits are not always as stated.....my personal opinion is that any form of cycling with a traditional seat is not a good idea with aperson who has a history of PN. The only person i know who can cycle with no adverse results uses a recumbant bike taking all pressure off the PN regions.
I know one of the people who have offered a testimonial for this kind of bike seat...however the benefits are not always as stated.....my personal opinion is that any form of cycling with a traditional seat is not a good idea with aperson who has a history of PN. The only person i know who can cycle with no adverse results uses a recumbant bike taking all pressure off the PN regions.
PNE started 2003 following Vaginal Hysterectomy, pelvic floor repair and right oophorectomy; eventually after many tests had BilateralTG surgery Nantes 2004; following this tried many other treatments including 7 day epidural, ketamin infusions to no avail; Trialed and was implanted with a Neurostimulator in 2007- Dr Van Buyten Belgium, this has enabled me to manage my pain much better.
Re: Has anyone returned to cycling ?
The link you have shared I can't have to open ,
And the question remaining the come back to cycling is really a good one experience...
Cycling is much helpful in all regards to health and fitness.....
I like to have cycling and enjoy the session out there.......
And the question remaining the come back to cycling is really a good one experience...
Cycling is much helpful in all regards to health and fitness.....
I like to have cycling and enjoy the session out there.......
Re: Has anyone returned to cycling ?
If some miracle happened and I got 100 percent better, I think I should have my head evaluated if I ever got on a bicycle again, even though that was my passion for many years
Re: Has anyone returned to cycling ?
I could not open the link but in any case I agree with Ray P, there is no way on earth I am going back on a bicycle. There are so many other activities you can do that do not involve irritating the pudendal nerve again.
2002 PN pain started following a fall on a wet marble floor
2004 Headache in the pelvis clinic. Diagnosed with PNE by Drs. Jerome Weiss, Stephen Mann, and Rodney Anderson
2004-2007 PT, Botox, diagnosed with PNE by Dr. Sheldon Jordan
2010 MRN and 3T MRI showing PNE. Diagnosed with PNE by Dr. Aaron Filler. 2 failed PNE surgeries.
2011-2012 Horrific PN pain.
2013 Experimented with various Mind-body modalities
3/2014 Significantly better
11/2014 Cured. No pain whatsoever since
2004 Headache in the pelvis clinic. Diagnosed with PNE by Drs. Jerome Weiss, Stephen Mann, and Rodney Anderson
2004-2007 PT, Botox, diagnosed with PNE by Dr. Sheldon Jordan
2010 MRN and 3T MRI showing PNE. Diagnosed with PNE by Dr. Aaron Filler. 2 failed PNE surgeries.
2011-2012 Horrific PN pain.
2013 Experimented with various Mind-body modalities
3/2014 Significantly better
11/2014 Cured. No pain whatsoever since
Re: Has anyone returned to cycling ?
My PT has me doing swimming. I never could swim right. I did not like swimming in community pools for obvious reasons. I am not swimming that many laps, but it is great exercise. Feels good to get some exercise. Have not done much exercise in years. I will do swimming even if PT says I don't have to. It is not bicycle riding, but you have to go with the flow.
- shawnmellis
- Posts: 227
- Joined: Sat Dec 04, 2010 8:42 pm
- Location: Concord, NC USA
- Contact:
Re: Has anyone returned to cycling ?
Hi Ray, I also dream of one day riding a bike again because I also love to go bike riding. I also dream of one day being able to drive more than I can now. As for now, though, it would make my PNE worse. Above all though, there are still so many things that we can do that do not aggravate our PNE or PN and so many things that I am thankful to have such as relatively good health and my family, which helps me to not dwell on those other things I can't do. I think about the things I can do, and what I do have now and I feel lucky. Its such a nice day today and the weather is beautiful here in North Carolina. Thankful for that also. I'm going to start trying to help others more. I noticed that when you help others, that your own problems seem to not be as important. Good to talk to another man who has this problem, because I know that we are in the minority of PNE sufferers. God Bless and take care.
Bringing Help Awareness Education to Patients & Doctors about PNE through Videos at http://www.YouTube.com/PudendalNerve & PudendalHope.com Please tell Dr. Oz to cover topic of PNE by going to http://www.doctoroz.com/contact Started 1/2010. Initial urinary tract infection in 1/2010. Medication: Diazepam, Tramadol. 4 nerve blocks. physical reinjury 8/2010. 7/2011 Potter MRI Varices dorsal branch 8/23/11 Diagnosis Entrapment of Dorsal Branch Dr. Lee Dellon There's Always Hope!
Re: Has anyone returned to cycling ?
Has anyone tried the specially designed bike seats? I plan to order one but would like to hear about any experiences people may had had.
Ian
Ian
Re: Has anyone returned to cycling ?
I have heard the Body Geometry by Specialized is very good because they measure the width between your ischial tuberosities and there are different sizes depending on your width. There is a cut out in the middle.
http://www.specialized.com/specs/spec.j ... trysaddles
I know someone who just biked across the US using one of these saddles and had no problems at all but they were not a PN patient so I can't really say how well it works for PNE'ers.
http://www.specialized.com/specs/spec.j ... trysaddles
I know someone who just biked across the US using one of these saddles and had no problems at all but they were not a PN patient so I can't really say how well it works for PNE'ers.
PNE since 2002. Started from weightlifting. PNE surgery from Dr. Bautrant, Oct 2004. Pain now is usually a 0 and I can sit for hours on certain chairs. No longer take medication for PNE. Can work full time and do "The Firm" exercise program. 99% cured from PGAD. PNE surgery was right for me but it might not be for you. Do your research.