My right leg was longer than my left, sit bones were outta whack, and I have what she called posterior sacral torsion (if my memory serves me well because I had no idea what she was talking about).
Also a thickened and sensitive levator ani, a painful tight piriformis, and yowza some serious restrictions around my alcocks canal area--nearly flew off the table.
OH and vaginismus, but I already new that.
Regards,
Krista
My first PT appt.
My first PT appt.
Pain started suddenly April 2010.
3T MRI w/ Dr. Potter, January 2011 shows bilateral impingement of the dorsal nerve of the clitoris.
Unsure what to do next because my pelvis is a mess.
3T MRI w/ Dr. Potter, January 2011 shows bilateral impingement of the dorsal nerve of the clitoris.
Unsure what to do next because my pelvis is a mess.
Re: My first PT appt.
I've been told I have a painful tight piriformis too, and we're loosening it up with stretches, manual massage, and self-massage with a small hard rubber ball. I've had about five PT sessions now, and I can feel a difference. The pelvis seems to be loosening up, and walking is becoming less painful. I am doing one-hour PT sessions weekly.
Best of luck with your PT, KC!
Lernica
Best of luck with your PT, KC!
Lernica
Athlete until pain started in 2001. Diagnosed with PN in Nov. 2010. Probable cause: 3 difficult labors, 5 pelvic surgeries for endometriosis, and undiagnosed hip injuries. 60% better after 3 rounds of shockwave therapy in Cornwall, Ontario (Dec - Feb/12). 99% better after bilateral hip scopes for FAI and labral tears (April and July/12). Pelvic pain life coach Lorraine Faendrich helped me overcome the mind/body connection to chronic pain: http://www.radiantlifedesign.com
Re: My first PT appt.
That's great to hear Lernica and very encouraging! I'm glad you are having some success with PT and I wish you continued improvement!
Pain started suddenly April 2010.
3T MRI w/ Dr. Potter, January 2011 shows bilateral impingement of the dorsal nerve of the clitoris.
Unsure what to do next because my pelvis is a mess.
3T MRI w/ Dr. Potter, January 2011 shows bilateral impingement of the dorsal nerve of the clitoris.
Unsure what to do next because my pelvis is a mess.
Re: My first PT appt.
Best wishes with the PT, Krista! Did you like your therapist? Sounds like you've got a lot going on. 
.
I'm glad to hear things are feeling less tight for you, Lernica!
Warm regards,
Karyn
.I'm glad to hear things are feeling less tight for you, Lernica!
Warm regards,
Karyn
Ultra Sound in 03/08 showed severely retroverted, detaching uterus with mulitple fibroids and ovarian cysts.
Pressure and pain in lower abdomen and groin area was unspeakable and devastating.
Total lap hysterectomy in 06/08, but damage was already done.
EMG testing in NH in 04/10 - bilateral PN and Ilioinguals
3T MRI at HSS, NY in 09/10
Bilateral TG surgery with Dr. Conway on 03/29/11. Bilat ilioinguinal & iliohypogastric neurectomy 03/12. TCD surgery 04/14.
Pressure and pain in lower abdomen and groin area was unspeakable and devastating.
Total lap hysterectomy in 06/08, but damage was already done.
EMG testing in NH in 04/10 - bilateral PN and Ilioinguals
3T MRI at HSS, NY in 09/10
Bilateral TG surgery with Dr. Conway on 03/29/11. Bilat ilioinguinal & iliohypogastric neurectomy 03/12. TCD surgery 04/14.
Re: My first PT appt.
Did you also have Sacroiliac joint dysfunction? (one hip higher than the other. I'm sure if you have one leg longer than the other you do) These two often go together. Sacral torsion means your sacrum is rotated some and bent to one side. Do you by chance have scoliosis? I supposedly had SIJD and sacral torsion, but I went to a reputable physiatrist who specializes in pelvic pain and she felt like some of these biomechanical issues were really just optical illusions so to speak because of my scoliosis and anteverted hips. I underwent SIJD manipulations and muscle energy balancing but these have only made my symtpoms worse. I also had an SI joint injection, but it didn't help my pain. Be careful if they put you in positions that stretch your pudendal nerve because it can increase your pain if you have PN. The piriformis is tight because your muscles are guarding due to the pain and because it is probably having to work harder due to the biomechanical issues.KC17 wrote:I have what she called posterior sacral torsion
I hope PT helps you!
-11/08 vulvodynia began around conception of first & only pregnancy
-3/10 sacral/sitting pain began after SIJD manipulation
-Progressive widespread pain- central sensitization
-PT, meds, injections, botox, ESWT = debilitated.
-5/12 Potter MRI - scarring of left ST, coccygeous & posterior alcock
-12/12 - left FAI/labral hip tear surgery
2014-2019 managed w/ gabapentin, massage, and lifestyle mod
2020 - big flare up
www.thepurposeofpain.blogspot.com
-3/10 sacral/sitting pain began after SIJD manipulation
-Progressive widespread pain- central sensitization
-PT, meds, injections, botox, ESWT = debilitated.
-5/12 Potter MRI - scarring of left ST, coccygeous & posterior alcock
-12/12 - left FAI/labral hip tear surgery
2014-2019 managed w/ gabapentin, massage, and lifestyle mod
2020 - big flare up
www.thepurposeofpain.blogspot.com
Re: My first PT appt.
Karyn I loved her! She seemed knowledgeable and very encouraging. She also seemed determined to help which is more than I can say for my last PT! Good luck with your upcoming surgery by the way. I hope it is the answer you have been looking for and I will be thinking of youKaryn wrote:Did you like your therapist?
I honestly have no idea if I have SIJD, I mean maybe. I do not have scoliosis though. I'm hoping she can address the issue more at my next appointment.Faith wrote:Did you also have Sacroiliac joint dysfunction? (one hip higher than the other. I'm sure if you have one leg longer than the other you do) These two often go together. Sacral torsion means your sacrum is rotated some and bent to one side. Do you by chance have scoliosis?
Warm Regards,
Krista
Pain started suddenly April 2010.
3T MRI w/ Dr. Potter, January 2011 shows bilateral impingement of the dorsal nerve of the clitoris.
Unsure what to do next because my pelvis is a mess.
3T MRI w/ Dr. Potter, January 2011 shows bilateral impingement of the dorsal nerve of the clitoris.
Unsure what to do next because my pelvis is a mess.
Re: My first PT appt.
Serious pushing on the labia majora today in an attempt to loosen up the tissue surrounding the dorsal nerves today.
I can't believe how hard she pushed and pulled on my nerves. I'm guessing I'm going to be in some serious clitoral pain later....
Are we sure that PT is recommend?
Pain tonight is 9/10. Now includes my right side as well. I feel permanently damaged and I don't want to live like this
I can't believe how hard she pushed and pulled on my nerves. I'm guessing I'm going to be in some serious clitoral pain later....
Are we sure that PT is recommend?
Pain tonight is 9/10. Now includes my right side as well. I feel permanently damaged and I don't want to live like this
Pain started suddenly April 2010.
3T MRI w/ Dr. Potter, January 2011 shows bilateral impingement of the dorsal nerve of the clitoris.
Unsure what to do next because my pelvis is a mess.
3T MRI w/ Dr. Potter, January 2011 shows bilateral impingement of the dorsal nerve of the clitoris.
Unsure what to do next because my pelvis is a mess.
Re: My first PT appt.
Krista, did you ever recover from your PT session? Sounds a little extreme to me. I was chicken when it came to PT making you worse before you get better but maybe that's because I always felt like my PNE symptoms were a result of irritation to the nerve from exercise and I couldn't see how irritating the nerve more could help.
PNE since 2002. Started from weightlifting. PNE surgery from Dr. Bautrant, Oct 2004. Pain now is usually a 0 and I can sit for hours on certain chairs. No longer take medication for PNE. Can work full time and do "The Firm" exercise program. 99% cured from PGAD. PNE surgery was right for me but it might not be for you. Do your research.
Re: My first PT appt.
Violet,
I think it's been about 2 weeks since I reported that terrible flare and while things have died down a bit, the pain levels still are higher than they were prior to that appointment and I've still got some right sided pain lingering. I've also had another PT session since then where I spoke to her about the pain and she took it much easier on me (for which I'm so thankful!).
Right now I'm sort of playing it by ear, because I'm hoping that my pain has a huge muscular component that I can address without surgery (but of course don't we all!). I'm giving her 5 more sessions, if I see no improvement I'm done.
Krista
I think it's been about 2 weeks since I reported that terrible flare and while things have died down a bit, the pain levels still are higher than they were prior to that appointment and I've still got some right sided pain lingering. I've also had another PT session since then where I spoke to her about the pain and she took it much easier on me (for which I'm so thankful!).
Right now I'm sort of playing it by ear, because I'm hoping that my pain has a huge muscular component that I can address without surgery (but of course don't we all!). I'm giving her 5 more sessions, if I see no improvement I'm done.
Krista
Pain started suddenly April 2010.
3T MRI w/ Dr. Potter, January 2011 shows bilateral impingement of the dorsal nerve of the clitoris.
Unsure what to do next because my pelvis is a mess.
3T MRI w/ Dr. Potter, January 2011 shows bilateral impingement of the dorsal nerve of the clitoris.
Unsure what to do next because my pelvis is a mess.
Re: My first PT appt.
Sounds like a reasonable plan, Krista. Good luck. 
PNE since 2002. Started from weightlifting. PNE surgery from Dr. Bautrant, Oct 2004. Pain now is usually a 0 and I can sit for hours on certain chairs. No longer take medication for PNE. Can work full time and do "The Firm" exercise program. 99% cured from PGAD. PNE surgery was right for me but it might not be for you. Do your research.