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Pudendal nerve help in Perth

Posted: Mon Mar 28, 2022 7:08 am
by PDNervePAINND
Hye, I am male aged 40. Towards the end of 2018 I started to notice an itching, burn, crawling, spikey sensation around my groin/crotch.

This led me on a 2 year journey of Drs and dermatologist, all of who said there was no skin issue. This has led to a complete change in my life, I can’t sit, ride a bike, run, drive a car etc etc without experiencing this what I’ve now been told is neuropathic pain.

After finally being referred to a spinal surgeon, he diagnosed me with slight spondylolisthesis. He gave me pills and said do physio and with in 2 months it will be fine. That was 9 months ago and I have had only minor reduction in symptoms.

I’ve had MRIs. CT scans, too many blood test to count, I even had an endoscopy.

So 3.5 years on I finally get referred to a pain specialist and after waiting 5 months, 2 weeks ago she gave me a L4/L5 injection and MBB. This did nothing. I have been researching pudendal nerve issues for years now but this all falls on deaf ears when I bring it up with my speiclasita.

I cant seem to find anyone who will listen to me or help treat me. My depression is getting worse and I am getting very very desperate. Can anyone provide any contacts for someone in Perth , WA that can help me and will actually listen to me. Ive even had one doctor suggest that its all in my head.

Thanks in advance.

Re: Pudendal nerve help in Perth

Posted: Fri Apr 01, 2022 2:34 am
by PDNervePAINND
Crazy that a website forum title www.pudendalhope.org has so many questions posed with no responses. Not even a hang in there. My suggestion would be to rename it www.pudendalnohope.org.