Health Organization for Pudendal Education

Hi, 37 year old male here. I’ve been having what I believe to be pudendal neuralgia. I started having pain that I couldn’t explain and doctors had no idea what was happening.

I thought perhaps it was prostate trouble, but examinations and antibiotics seemed to show no problems and my symptoms didn’t really match prostatitis or other prostate disorders.Then I discovered pudendal neuralgia in a thread discussing prostate pain and those symptoms matched my experience. The pain is absent first thing in the morning and gets worse over the day; it’s a burning sometimes arousing pain seemingly focused on my perineum but deeper inside me rather than surface level; if I can even get myself interested in trying, masturbation is next to impossible and hurts more and more the closer I get to orgasm which makes staying erect and orgasming impossible; the pain hurts much more sitting down unless I’m on the toilet where I find the most relief.

The thing is that this pain only occurs at my home. If I leave and go elsewhere, the raw burning pain slowly subsides until it’s gone. And then, as soon as I get home, the sensation starts immediately and slowly builds and builds until becoming a constant pain in my perineum. At its most intense, the pain radiates to my penis and scrotum and feels like electricity is shooting around the tip of my penis, and on occasion the skin on my lower abdomen feels like it’s overheating.

So I’m wondering if anyone has heard of location-based pudendal neuralgia caused by something irritating the nerves? I live next to a bank and I can’t help but wonder if it’s emitting some sort of radio waves for its banking systems, or maybe if a new cell tower went up, and radio waves from that could be causing these symptoms in me?

I had an MRI done on my pelvis and my pelvic nerve and pelvic floor structures are all normal, but I noticed a sensation similar to my pain during the procedure, and MRIs use radio waves and magnets I believe. I just don’t know, I’m at my wit’s end and my doctors have no clue, and I’ve accepted that I need to move out and live elsewhere, but I hope someone in these forums has some advice or has had/knows of a similar experience to share with me so I can determine the source causing this pain and know exactly what it is that I need to avoid.

Thank you

I suggest reading Ezer’s old posts on the forum regarding this topic and TMS. If I recall correctly, there are similarities in your pain presentation, such as possible emotional or stress related triggers. I am not an expert, but regarding your home itself, consider how you feel at home, i.e. your emotional state or stress level.

Stephanies

Hi there. Obvious question, but are you doing anything different at home? Sitting more?

Or do you have more time to think and focus on it at home?

stephanies wrote:I suggest reading Ezer’s old posts on the forum regarding this topic and TMS. If I recall correctly, there are similarities in your pain presentation, such as possible emotional or stress related triggers. I am not an expert, but regarding your home itself, consider how you feel at home, i.e. your emotional state or stress level.

Stephanies

Thanks Stephanies, I’ll look for those.

tummydepressed wrote:Hi there. Obvious question, but are you doing anything different at home? Sitting more?

Or do you have more time to think and focus on it at home?

Well, with covid I’ve had to stay around the house more, so definitely more time to focus at home But the pain starts up literally when I walk/drive into my property, and begins subsiding once I start to walk/drive away from it. I’m at a loss, but it’s possible that the stress of being home where I’ve noticed the pain is causing me to notice it more and once that happens it’s harder and harder to distract myself away like a vicious cycle. I’m not sure.

I’m going to look for those old posts right now. Thank you both for your input.