Health Organization for Pudendal Education

So, there's only one person in all of the United States who will do surgery on men, and accepts insurance? I pretty much just need my piriformis muscles removed...I'm not particularly so sure as to why there's very few doctors to do it. There's more who are willing to do brain surgery. Either Piriformis Syndrome led to nerve entrapment, or vice versa, as these muscles have spasmed for a little under a decade. As of about 6 months ago they became extremely painful. Along with that came burning in the genitals, thighs and down the legs. Previous to this I had none of those pains. From the studies I read piriformis entrapment leads to spasm and pain in the piriformis, and also leads to the sciatic nerve (amongst the many others near the piriformis) to be irritated. I don't understand why they prolong surgery. A trapped nerve doesn't get better by therapy or medication..it gets better by decompression..and the sooner the better. I think conservative measures are a waste of time and just worsen things.

I'm also getting no help with pain control. They want physical therapy and nerve blocks..which I've not had access to since the beginning of covid (they're closed)...but I'm not so sure the nerve blocks will stop the piriformis spasm anyways, and the pain in the legs that comes with it. Despite me complaining of pain I've received nothing in terms of oral medication. My primary doctor doesn't believe me at all...and even the PN doctor just wants therapy and nerve blocks. This yoga/meditation/pelvic floor exercise is getting old rather quick. People on here get opiates etc and I can't even get lyrica, which is really all I want. Instead I'm told to read "A headache in the pelvis" like it's all just in my mind.

I think decompression surgery has mixed results because on average they wait until the patient has had the pain for almost 4 years, and by then the nerve is ruined. This is just too much..I can't sit, and no one seems to take me seriously. No one even seems to take interest in men's issues with pelvic pain. I'm just ready to throw in the towel.

I had a botox injection into my piriformis which allowed me to sit for 2 hrs. The botox wears off so now I am scheduled to have my piriformis removed by the surgeon who did my hip replacement. My surgery is next week, june 3. I found a second doctor here in Charlotte NC who has done about 100 piriformis removals, Dr Milumn, who is with Orthocarolina. I can also recommend the mri guided botox injections at John Hopkins. The stick it three or four times to get the whole muscle flooded with the medicine. Hurts bad to get it though.

frigator wrote:I had a botox injection into my piriformis which allowed me to sit for 2 hrs. The botox wears off so now I am scheduled to have my piriformis removed by the surgeon who did my hip replacement. My surgery is next week, june 3. I found a second doctor here in Charlotte NC who has done about 100 piriformis removals, Dr Milumn, who is with Orthocarolina. I can also recommend the mri guided botox injections at John Hopkins. The stick it three or four times to get the whole muscle flooded with the medicine. Hurts bad to get it though.

Finally my state has lifted their restrictions. All this began like a week before our first covid case. So I've been blocked from any treatment. Looking at the site of the hospital/anhestesiologist I'm going to, they provide nerve blocks as well as Botox injections..so I'll have to speak more to them about these muscles. Maybe see if they atrophy a little and give me some relief. If so, I'll find a way to get them removed. This hospital also treats piriformis syndrome. But I want more than treatment if they are the issue..I want complete and total removal. I met with a urologist who diagnosed PN. But I want an orthopedic specialists opinion as well. Both piriformis muscles have spasmed for so long. Only now has there been genital pain, and a worsening of spasm and pain in the muscles themselves.