Health Organization for Pudendal Education

Welcome to HOPE. It is the desire of the directors and administrators of HOPE and this forum that you will find healing, support, and valuable information on this forum and website. The reason we try to keep this forum running is because at one point, we were where you are -- scared and not knowing where to turn. When we found a community of people who were going through the same thing we were it gave us HOPE to keep going. And that is what we wish to give to you on this forum and website -- HOPE to keep fighting, to keep searching for answers, and not to give up -- ever.

Thanks to all of you admins who continue to provide a space for support, education and hope. It may take a while for people to find you, but as motivated as most PN people are to get help, this site will be discovered. Just want to thank-you all so much.
JUDITH

Thanks Judith for your supportive words. We are doing our best to get our name and links available so that people can find us; tonight i found we had jumped up the rankings in Google so that is good news.
In the meantime we are working on improving our information etc so that we can give out the latest and best that is available to the PN community.

I've been with you guys for a very long time - under the name of "Wheezie" and now missmarple and I'm glad I found you after the move. Almost 22 years and I'm still looking for pain relief. I'll be back with an update shortly. DH is ready for Dinner.

Nice looking site! Great job! Kudos to the builders!!!

Christopher
AKA Christopher (Tipna.org)
AKA Eldaveer (Pudendal.info)

Thanks to everyone who has joined our site so far....we have now reached more than 100members....that is a huge achievement in such a short time...and is surely an indication to the surety and dedication assured in our team of Directors....thank you to every member.
We have tried to make this place an open and universal place for you to join us where your opinions and thoughts are shared in a friendly and familial fashion.
With the current growth patterns we will endeavour to build this site into a fantastic place for PN people Worldwide.

Thank you to all members who have made our membership figures rise rapidly and now we have 301; this is a fantastic achievement in such a short period of time. As Moderators of this Forum we thank you all sincerely for your continued interest and enthusiasm for our Forum.
We are always working in the background to try to make improvements etc so that we can provide you with the best place for Pudendal Nerve Information.
If you have any suggestions to make to the Moderators, please post your suggestions in the suggestions thread provided or contact them directly via PM or email. We value all your thoughts and ideas.

Thanks again

I'm a peds nurse Tweller, so one of the first questions in this age group that I would ask is does she have any trouble with constipation, or urgency frequency in urination? One really good resource would be to just contact Stephanie PRendergast or Liz Rummer at www.pelvicpainrehab.com in San Francisco just because they do have pediatric experience. Does certain clothing seem to irritate her more? Has she fallen on a bar of a bike or any kind of trauma like that at all ? Does she get the opportunity to go to the bathroom when she needs to ? Those are just some of the questions I would have. Does sitting on a toilet make the pain better? How long does it last? Is it just the car seat that bothers her ? I think the MRI will be key to sorting this out.

Cora