Hi Sonya,
This illness can be very isolating. I hope some ladies (or men) from the UK will be able to give you some more information than I can about where to go for help in the UK. There are people here who understand, so you are not completely alone. I know it's hard while you are waiting for treatments though.
Sending hugs your way,
Violet
PGAD - persistent genital arousal disorder
Re: PGAD - persistent genital arousal disorder
PNE since 2002. Started from weightlifting. PNE surgery from Dr. Bautrant, Oct 2004. Pain now is usually a 0 and I can sit for hours on certain chairs. No longer take medication for PNE. Can work full time and do "The Firm" exercise program. 99% cured from PGAD. PNE surgery was right for me but it might not be for you. Do your research.