I've been reading up at psas.nl lately, and there was one specific quote that jumped out at me about PGAD that really alarmed me.
According to the "What Doctors Should Know" portion on this site (found here:
http://www.psas.nl/en/doktoren.asp), PGAD is "...in most cases and to some extent, progressive. In the beginning (approx. the first 6 months) symptom free periods, lasting from a few days to a few weeks, are reported.
In the phase following, there generally are no symptom free periods any more. An exception on this so far is a group of women who had similar symptoms during pregnancy or during a brief period after delivery. After which the symptoms have completely disappeared, to reappear in a later period (often around menopause). Pain symptoms generally develop later. Not every woman develops pain. In most cases the clinical picture stabilizes within one year after onset."
How true is all of this? I'm assuming this site consistently updates their information, but it's not like there are new PGAD studies coming out all the time anyway. Not to mention the fact that the patients most likely to be studied long term are the ones with recurrent symptoms. Perhaps there are people that never report their PGAD-symptoms because they come and go away within a short time frame?
I had hope that my PGAD symptoms (clitoral arousal, overall burning that seems to come from deep within the pubic bone, feeling like I have to pee all the time when I don't actually need to go) might go away eventually (and permanently), because they went away for 5 days, after I had experienced symptoms in my initial onset stage for about 12 days or so.
But I guess that's not possible. Everyone around me keeps trying to reassure me that I will get better, but it kills me inside to know that they are probably wrong.
I've gathered that my symptoms were brought on by either Zoloft (I had been taking it for ~two weeks when the symptoms emerged), or by a UTI (I tested positive when I first got checked, a few days after the PGAD started). Millions of people take Zoloft, millions of people get UTIs. I guess I'm just ridiculously unlucky. With all that I've read, it seems delusional for me to believe that it will even get better. It seems like I've read nearly every PGAD / pudendal neuralgia related resource on the internet, and all the signs point to a debilitating illness that will rob me of a life that I never got to live. I suffered from relatively severe major depression for most of my teens, and all I wanted was to be able to have fun and enjoy my life. Now I don't even know if I'm going to attend college this fall. I mean I'm planning on it, but I know I'm just living a lie to get me through each day.
) gabapentin & amitriptaline with no luck.. although I thought it was bad until I recently have had a mega flare up and I cannot bare it at the moment Its the same Or if not, worse than when it first began..I just want to go to sleep for a few months! Lol. So interested to hear from those who have been "cured" as such. Also trying to make an appointment with Dr D Goldmeier in london again! 
it's so tough. Also when it's bad it's almost on your