Health Organization for Pudendal Education

If you are not worse for the wear it could be good at this early stage. Cannot count any chickens good or bad yet but keep going with the exercises and hope it will sort out in time. Although no one wants to lose any functionality being able to keep away from the extreme pain and surgery would be nice. I had a flare last night and then my foot kicked up today but managed to make it to work for most of the day. Looking towards a better 2014 for everyone.
Janet

Hi Roger!

I am a new possible sufferer from London.

I am suspecting that I have PN symtoms after some spraining injuries, and struggle quite a lot finding Pelvic Floor / PN-awared Physiotherapist around me. From what I read about you visiting UCL, so i guess you're currently in London? Would you mind shedding me some light, and recommend me places where I might be able to get some help? (PT / Chiro / Osteo). Would be really great if you can drop me a private message.

Thank you very much, and wish you all the best.


Jeff

@ Jeff in london you can go to McTimoney chiros

Well my muscle spasm is easing and the burning PN appears to be easing a fraction some of the time! So fingers crossed.

I'm also exploring a link between the use of PPIs and this PN/muscle spasm.

Good to hear a bit of progress. It all is slow with PN but anythhing positive can lift you to continue and hope! I am starting some vacation planning hubby deserves a getaway and work is picking up so I will be ready, too. The wind chilling cold is a killer these days.
Janet

Hi everyone!

Thank you so much for your help, Roger and Mary Jane. Sorry for the very late response. I have checked out the list for manual therapist, but it seems that I can't find one that I can get access to, unfortunately. I have been seeing a pelvic floor PT in London, did internal release for twice, yet fail to see any improvement yet. I do not think she has gone through and checked my pelvis thoroughly, I might ask again next time.

I hope I am not hi-jacking the post too much, please allow me to add a little history about myself here. I have twisted my back / pelvis in a sudden stretch that I did sub-consciously during work. (9 DEC,2013) I have sciatica two days after that, did MRI after 2 weeks ( thanks to insurance ), report was clean.I have symptoms of numbness / heaviness near perineum and slight penile pain appeared after around two weeks after I got injured (slight tingling when I did MRI).

By early Jan, the lower back pain due to sprain or whatever reason is almost gone. Right leg is still tingling and weak. Then I realise I have sore piriformis muscles. SI joints are painful right from the very beginning, uptil recently. (decreased due to the second PT that i am seeing)

Though paranoid, the clean MRI kind of suggest that it's not a disc / spinal problem. So the question is, whether I got PS or SI joint injury when i twisted my pelvis and back, or whether I accidentally got PNE when I twisted myself. This seems to be a question of egg / chicken. The second PT that I am seeing says that it's my chronic stiff lower back muscles that are jamming everything together, and cause stress and compression / irritation to my Sciatic and Pudendal nerve. She mainly does manual therapy on my thighs and lower back and accupuncture on my piriformis. My SIJ pain is getting better (it seems), yet the piriformis pain and other symptoms are still here. Perhaps that take longer time to improve, and at least, it doesnt seem that it's getting worse.

I am 25 and haven't experienced any major health problems before. I have always been very tense and paranoid about health and this is bringing my anxiety to a new level. I do not know what to do next. The GP i am seeing basically said that she would refer me to a back pain / pelvic specialist, but I havent heard from them yet. I think I might give PT a little more time, and have some faith in it.



much love,

Jeff

Hi Jeff,
I would stick with the PT for awhile since you are seeing progress and SIJ issues can take time to fix so you are seeing progress quicker than some of us. Not sure if having your gp give you something for anxiety would help, stress is definitely a negative for these pain issues. Good luck and I am sure others with give advice.
Janet

I've been dealing with SIJ issues and impact periformis syndrome for years now. It takes a real lifestyle change and a strong commitment to persist with all the stretching etc. if like me you get better and forget about it all for a while I guarantee it will come back to haunt you. So my advice is persist with your therapist and stay away from the surgeon, scalpel and needle.
The PN joining in last year was a new dimension for me, but I believe there is a connection to the muscle spasm and you have to resolve that so that the nerves can heal. It takes a very long time for nerve damage to heal which means the muscle spasm must be dealt with everyday.

Roger, I agree it takes a commitment to do your PT exercises regularly. Some people have to avoid stretching due to chronic ligament strain with pelvic laxity -- at least I did. You just have to find what works for you.

Violet