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Re: Creating Massive Pelvic Pain Awareness Campaign
Posted: Thu Feb 10, 2011 2:34 pm
by Charlie
Scared Girl I think everyone will be able to relate to your post. As Violet said there is hope for you. So keep on going. I know people that have overcome this.
Don't be afraid to share your feelings though and use the forums as means of support as well as information. I have made some great friends through forums like this who have got me through some troubled times.
Re: Creating Massive Pelvic Pain Awareness Campaign
Posted: Thu Feb 10, 2011 3:04 pm
by Karyn
Charlie wrote:Scared Girl I think everyone will be able to relate to your post. As Violet said there is hope for you. So keep on going. I know people that have overcome this.
I agree, too! You CAN do this and you WILL get better!
Hugs,
Karyn
Re: Creating Massive Pelvic Pain Awareness Campaign
Posted: Thu Feb 17, 2011 5:54 am
by Violet M
Here are the final copies of the handout for medical professionals. There's one in color and one in black and white.
Re: Creating Massive Pelvic Pain Awareness Campaign
Posted: Thu Feb 17, 2011 7:27 am
by mom
Thanks for all the hard work
Re: Creating Massive Pelvic Pain Awareness Campaign
Posted: Thu Feb 17, 2011 10:33 pm
by Lernica
Good job! I have sent the document to my ob/gyno with a request that he (1) send it along to his colleagues in the ob-gyn community and (2) consider adding PN to the curriculum of the medical school at which he teaches and/or any medical conferences. I also offered to speak to any class or conference about my experience with the condition. (We have worked together in the past on education initiatives regarding endometriosis.)
Warm regards,
Lernica
Re: Creating Massive Pelvic Pain Awareness Campaign
Posted: Sat Feb 19, 2011 7:47 pm
by Karyn
The letter is PERFECT! Thank you so very much for all the time and effort you put in to create it!
Warm regards,
Karyn
Re: Creating Massive Pelvic Pain Awareness Campaign
Posted: Sat Feb 19, 2011 9:59 pm
by pianogal
Violet, THANK YOU for making my little hope become a reality! Now let's all spread the word!
Thank you so much again Violet!!!
Re: Creating Massive Pelvic Pain Awareness Campaign
Posted: Sat Jul 23, 2011 10:28 pm
by mom
I was just googling symptoms again for the heck of it to see what would come up, and on womenshealth.com there was a post by a woman with constant genital itch just like my daughter. She has been to countless dr's and such dealing with this for over a year....anyway I was thinking if we posted or commented on other places and directed people to "hope" it might help spread the word. Just a thought?
Re: Creating Massive Pelvic Pain Awareness Campaign
Posted: Sun Oct 16, 2011 9:30 pm
by MovinCA
I like the idea of the butterfly ribbon. What color would be used? I found some links with information on colors other organizations have used. It looks like Chronic Pelvic Pain awareness groups use light green. Would it be good to align with them?
http://www.fundraisingforacause.com/ri ... color.html
http://en.wikipedia.org/wiki/List_of_awareness_ribbons
Re: Creating Massive Pelvic Pain Awareness Campaign
Posted: Mon Jul 02, 2012 4:25 pm
by MovinCA
Hi Everyone,
I will be walking to raise money for HOPE in a local community walk in Southern California on July 15. If you know anyone who would like to donate, please have them visit my blog at walking4hopepn.blogspot.com, or they can visit the fundraising site directly at
http://www.razoo.com/story/Walking4hope ... code=share.
For donations of $25 or more, I will be happy to wear the name of someone you'd like to donate on behalf of around my neck during the walk. I'll be sending photos to Violet to share.
I'd like to thank Violet and the board for approving this fundraising effort.
~Movin