Getting a diagnosis

[AliPasha1]

PS,
Most probably when the ligaments get damaged by an impact they lead to the calcification or seclorisis o which in turn restricts the movement of the PN nerve.

Graceunderfire hasn't posted her MRI results,but I have personally talked to her and you can pm her to ask her MRI results from Dr. Potter.

Dr. Azmann hasn't compressed the PN in the Alcock's Canal as well as the ligament grip to my knowledge.Has Dr. Dellon done it and if so how many patients has he operated upon and what is his success rate.

Regards,
Ali

[Pelvis Stressly]

Most probably when the ligaments get damaged by an impact they lead to the calcification or seclorisis o which in turn restricts the movement of the PN nerve.

Yeah, in those cases I would agree Ali...Potter seems fairly adept at turning that sort of thing up. I was referring to the type of entrapment Violet mentions here..."Does Dr. Potter's 3T MRI show if there is a compression at the ST/SS ligaments? I'm not talking about scar tissue but rather a tight space where the nerve passes through that is causing the nerve to be compressed."

Ah...you meant potentially repairing the ligmanents if they were to attempt the more traditional surgeries? Not sure re. Dellon. I know my PT said (again, based on his Chicago talk) that he was prepared/equipped to handle compression along the entire course of the nerve (not just the dorsal branch), but I'm not sure which techniques he uses, how many procedures he's done, or what his success rates are. I've asked him all of that, but never got an answer (he has replied to other questions, just not those).

[Charlie]

Hi PS,
Aren't Dellon and Aszmann experts on "Cadavers" since they are both "plastic surgeons".

I believe that Dellon is a plastic surgeon and a neurosurgeon.

[AliPasha1]

You are right Charlie about Dr. Dellon.Dr. Aszmann used to practice medicine in the Baltimore area before he retired to his native Austria.

Regards,
Ali

[scaredgal]

Hi PS,

I must admit I'm a little concerned that Dellon has not responded to you in regards to his success rates.... I had a brief e-mail correspondence with him too, but he also did not answer my questions about success rates (as well as a few other questions I asked). Does he just want us to come see him? He doesn't get paid through e-mails - not bashing him at all, just merely curious and inquiring minds want to know.....

[Maddiebean]

Hi

I only found this site today following an appointment with my colorectal consultant yesterday.
I was diagnosed in October with a major rectal prolapse, I had a Laporoscopic Ventral Rectopexy operation on 5th Jan (a sling pulling my "innerds" back inside my tummy which was stapled to the spinal wall & back of my uterus)!

Problem is that extreme rectal pain which sent me there in the first place is still there! It appears that although I desperately needed the surgery for the prolapse, the underlying cause of pain is still apparent! I became aware of the pain after a particularly gruelling off road Duathlon in May last year! The main symptom is feeling as though someone has booted me very hard up the backside! Sitting is not easy, driving is awful! My active life of running, mountain biking, horse riding is currently on hold!

My consultant (private) is quite currently researching this condition, and explained that it is extremely difficult to diagnose. But he did say that he treated a lady at the end of last year who did have surgery, I think she had it done in London! (I am based near Oxford)

As exasperating as it feels to still be recovering from major surgery, only to find that I have yet a long road ahead of me, it is nice to read the posts on here and know I am not on my own!!

[Maddiebean]

Wow!
When I did my first post I had only read the first page of this blog, hadn't realised there were 4 following pages. So it probably comes across disjointed from the conversation. My apologies!

All your information is extremely informative, albeit a little alarming!

I (probably being naive) have been told my consultant, that firstly I need to allow everything to settle down following my surgery for the prolapse. I am due to see him again in 4 weeks, at which point he will decide whether or not to do a nerve block injection. I had in my mind that everything would be fine once the nerve block has been done! How wrong am I??!!!

So am I right in thinking that a fair percentage of you think that this could make the condition worse?

Sorry I know I need to do lots more research on this, I didn't even know I had a pudendal nerve until yesterday afternoon!

My head is spinning now!

[calluna]

I think that quite a few people on the other side of the Atlantic seem to have had bad flares following nerve blocks - we have yet to hear of anything like that over here. On the contrary, Dr Greenslade in Bristol (who I am waiting to see) is quoted as saying that 70% get long term relief with nerve blocks.

So I wouldn't be too worried about the prospect of nerve blocks. I am hoping that they will be offered to me.

I completely agree that you have a way to go before you know how things are settling after your prolapse surgery, and I don't think that you have been naive about this at all. It takes a good bit longer than a couple of months to get over surgery like that, I didn't get signed off by my gynae consultant until 6 months after my surgery - at which point he passed me over to the pain clinic. ( I too have slings holding various bits of my innards in place, plus assorted other bits of mesh and probably scaffolding and polyfilla as well... )

It is good that your consultant is continuing to look into diagnosis and treatment options, that didn't happen for me. And it is interesting that he has already treated someone with this condition - I wonder what the outcome was for her?

[Pelvis Stressly]

I must admit I'm a little concerned that Dellon has not responded to you in regards to his success rates

By that, I meant specifically his success rates re. surgeries at the other, more traditional entrapment sites (which I'm still not even sure he addresses), not the dorsal branch procedure. For the latter, believe he told Ali his success rate is at about 60% (for both relieving pain and restoring sensation). He also told me he's seen improvement in 2 out of 5 men re. ED specifically.

[scaredgal]

Thanks, PS - do you know if he has operated on any women?