Insurance denial for botox

Discuss here about Medical Disability claims and Insurance possibilities for PN treatment options
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HerMajesty
Posts: 1134
Joined: Sat Sep 18, 2010 12:41 am
Location: North Las Vegas, Nevada

Re: Insurance denial for botox

Post by HerMajesty »

Tracy, what botox procedure were you denied for? Some of the articles I located deal with the efficacy of botox as a pelvic pain treatment in general, but much of it deals with the piriformis in particular (both that it can be a source of pudendal nerve entrapment and that there is strong evidence that botox to the piriformis is beneficial for piriformis syndrome). If you were also denied for piriformis botox, girl i have got you covered 100% with the articles I already have. If you are waiting for other pelvic floor botox procedures, I have some pertinent articles but not as many.
pelvic pain started 1985 age 14 interstitial cystitis. Refused medical care from age 17, did GREAT with self care for years.
2004 PN started gradually, disabled by 2009. Underlying cause SIJD & Tarlov cysts
improved with PT & meds: neurontin, valium, nortriptyline, propanolol. (off nortriptyline & propanolol now, yay!)
Tarlov cyst surgery with Dr. Frank Feigenbaum March 20, 2012.
Results have been excellent so far; but I won't know my final functional level for a couple of years.
HerMajesty
Posts: 1134
Joined: Sat Sep 18, 2010 12:41 am
Location: North Las Vegas, Nevada

Re: Insurance denial for botox

Post by HerMajesty »

OK I found a simple way to link to all the abstract summaries I found, without having to scan them all. I will just make a big list of links to all below, and you will have to glance over each summary to see if it applies to your situation.
I am going to stick to handing in abstract summaries for my appeal, but if there is an article you really want here's the deal: 1st see if you can find it free on the web, one resource recommended to me that I have not even looked at yet is www.freemedicaljournals.com . If you can't find it, the wonderful Librarian at the Sunrise Hospital library here in Vegas actually said she was cool with me posting her email, but I am kind of uncomfortable doing that so PM me if you want it. She can aquire and email you an article if she is given the PMID number of the article. To find that on the pubmed site I am linking to for the abstracts: look in the upper left just above the Journal name and title. In blue, it says "Display Settings". Click on that and a drop-down menu will appear. "Abstract" will be the current selction; change your selection to "PMID LIst". A page will appear with nothing on it except a number series in the upper right corner. That is the PMID number. If you email a request to the Librarian with that number, she will email you back the full article.

Here's the abstracts I have located so far:

http://www.ncbi.nlm.nih.gov/pubmed?term=15249744
http://www.ncbi.nlm.nih.gov/pubmed?term=15089868
http://www.ncbi.nlm.nih.gov/pubmed?term=17275980
http://www.ncbi.nlm.nih.gov/pubmed?term=17012454
http://www.ncbi.nlm.nih.gov/pubmed?term=19694687
http://www.ncbi.nlm.nih.gov/pubmed?term=19167273
http://www.ncbi.nlm.nih.gov/pubmed?term=19043424
http://www.ncbi.nlm.nih.gov/pubmed?term=18503628
http://www.ncbi.nlm.nih.gov/pubmed?term=19072519
http://www.ncbi.nlm.nih.gov/pubmed?term=21056391
http://www.ncbi.nlm.nih.gov/pubmed?term=20967040
http://www.ncbi.nlm.nih.gov/pubmed?term=20446070
http://www.ncbi.nlm.nih.gov/pubmed?term=19264089
http://www.ncbi.nlm.nih.gov/pubmed?term=20633183
http://www.ncbi.nlm.nih.gov/pubmed?term=19466717
http://www.ncbi.nlm.nih.gov/pubmed?term=17461700
http://www.ncbi.nlm.nih.gov/pubmed?term=15043354
http://www.ncbi.nlm.nih.gov/pubmed?term=12928139
http://www.ncbi.nlm.nih.gov/pubmed?term=12362115
http://www.ncbi.nlm.nih.gov/pubmed?term=11734957
http://www.ncbi.nlm.nih.gov/pubmed?term=10692608
http://www.ncbi.nlm.nih.gov/pubmed?term=21056391
http://www.ncbi.nlm.nih.gov/pubmed?term=15890635
http://www.ncbi.nlm.nih.gov/pubmed?term=15739520
http://www.ncbi.nlm.nih.gov/pubmed?term=18354713
http://www.ncbi.nlm.nih.gov/pubmed?term=18792964
http://www.ncbi.nlm.nih.gov/pubmed?term=19323602
http://www.ncbi.nlm.nih.gov/pubmed?term=21056374
http://www.ncbi.nlm.nih.gov/pubmed?term=19268490
http://www.ncbi.nlm.nih.gov/pubmed?term=15663593

Have fun with 'em! :mrgreen:
pelvic pain started 1985 age 14 interstitial cystitis. Refused medical care from age 17, did GREAT with self care for years.
2004 PN started gradually, disabled by 2009. Underlying cause SIJD & Tarlov cysts
improved with PT & meds: neurontin, valium, nortriptyline, propanolol. (off nortriptyline & propanolol now, yay!)
Tarlov cyst surgery with Dr. Frank Feigenbaum March 20, 2012.
Results have been excellent so far; but I won't know my final functional level for a couple of years.
donstore
Posts: 463
Joined: Mon Nov 08, 2010 6:13 am
Location: San Francisco

Re: Insurance denial for botox

Post by donstore »

HM and Tracy,
Following this thread with great interest. HM - Great legwork on the Botox research.You are one hard charger ! Have a feeling your info will some in handy when I get my own inevitable denial down the road. Tracy - Who is your insurance provider ? Let us know what you come up with when you get your appeal together.

Best Wishes.

Don
Mild to moderate PN for 5 plus years, pain controlled by lyrica and opiates.
Nerve block (unguided) 9/10 Dr. Jerome Weiss - sciatica for 5 months but got numb in painful perineal/scrotal area - he diagnosed entrapment - but no more cortisone for me
Potter MRI 5/11 - rt STL entrapment of PN at Alcocks
Consult with Dr. Hibner Feb. 2012
Bilateral inguinal hernias diagnosed by dynamic ultrasound - surgery on 6/20/13
Feeling a little better, a few more months will tell
Lernica
Posts: 960
Joined: Fri Jan 14, 2011 10:31 pm

Re: Insurance denial for botox

Post by Lernica »

Wow! I said it before and I'll say it again, HerMajesty: You're Awesome!!
Athlete until pain started in 2001. Diagnosed with PN in Nov. 2010. Probable cause: 3 difficult labors, 5 pelvic surgeries for endometriosis, and undiagnosed hip injuries. 60% better after 3 rounds of shockwave therapy in Cornwall, Ontario (Dec - Feb/12). 99% better after bilateral hip scopes for FAI and labral tears (April and July/12). Pelvic pain life coach Lorraine Faendrich helped me overcome the mind/body connection to chronic pain: http://www.radiantlifedesign.com
TracyB7777
Posts: 196
Joined: Mon Sep 27, 2010 3:42 am
Location: Vail, Arizona

Re: Insurance denial for botox

Post by TracyB7777 »

Wowzer!! HerMajesty you are incredible!! My denial says: Botulinum Toxin type a per unit (J0585) denied "No evidence based date for efficacy; considered experimental therapy". I'll need to talk to Dr. HIbner's staff to find out exactly what they wrote in the pre-cert. Hopefully I can get a copy of that letter.

donstore, I work for a school district that is self-insuraed and is managed by AmeriBen. Verbally over the phone when I originally explained all this they said it would be covered no problem; however they have proven differently now.

I'll be writing my letter and attaching all sorts of documents to fight this. Something has to give soon!!

Thank you again HerMajesty!! You are awesome!!!
Have been dealing with burning pain since Jan 2010.
No sitting since April 2010.
Seen the following dr's: DO, GYN, Dermatologist, Accupuncturist,
URO GYN (his RN is the one who suggested the pain could be PN), Neurologist
Had ECG and MRI both inconclusive, only the SSEP said Pudendal reaction was abnormal and they lost that test result.
Saw Dr. Castellanos April 6, 2011. Next steps, MRI and botox. Having PT while waiting.-Botox denied, appealing to Insurance company now. :(
merrie
Posts: 114
Joined: Wed Oct 27, 2010 10:32 pm

Re: Insurance denial for botox

Post by merrie »

FYI - For my insurance company - I put together a letter that says the use of botox for chronic pelvic pain is proven and not experimental as evidenced by the following studies and then I provide a list of the published studies including the date, title and author without attaching the actual publications and that seems to have worked. The list HerMajesty provided is excellent source from which to put such a letter together. Also for diagnosis - my dr has put muscle spasm as the primary code and then the PN and other diagnoses as secondary codes.

My understanding is that there are more and more studies being done on botox and chronic pain so hopefully in time this will no longer be an issue.

Good luck!!

Merrie
PNE onset 9/2008
Weekly pelvic floor PT since 9/2008
Numerous nerve blocks 2008 - current (pn, s2-s4 epidurals, pelvic/lumbar/splanchnic sympathetic)
PRF s2,3,4 May 2009
Numerous hip injections and trigger point injections
Numerous rounds of botox (first 12/08 - most recent 5/13)
Hibner consult / Kalinkin MRI 11/10
PT with PHRC in May 2013
HerMajesty
Posts: 1134
Joined: Sat Sep 18, 2010 12:41 am
Location: North Las Vegas, Nevada

Re: Insurance denial for botox

Post by HerMajesty »

aaaawwwww you guys are so nice. :D
I want to send the abstracts just so that they get a big pile of papers. Doreen told me when they approved her it was finally like, "OK, OK, just don't fax us any more papers!" I think it helps to just overwhelm them.
What ticks me off is, betcha anything the same Anthem BC / BS Doc who denied my botox might reverse the decision on appeal when I send in all this documentation, but then he will turn around and send the next pelvic pain patient the same refusal stating there is no evidence that botox is a legitimate treatment for pelvic pain. Just to see if that person will jump through the hoops or give up :evil:
The squeaky wheel gets the grease for sure, I learned that young and it is a lesson that has served me well. But I hate all this game - playing. So busy at work, I don't even know how i will find the time to write this appeal. And sad to say, as much as Anthem BC / BS ticks me off they are the BEST insurance I have ever had. Doesn't say a lot for the industry :(
pelvic pain started 1985 age 14 interstitial cystitis. Refused medical care from age 17, did GREAT with self care for years.
2004 PN started gradually, disabled by 2009. Underlying cause SIJD & Tarlov cysts
improved with PT & meds: neurontin, valium, nortriptyline, propanolol. (off nortriptyline & propanolol now, yay!)
Tarlov cyst surgery with Dr. Frank Feigenbaum March 20, 2012.
Results have been excellent so far; but I won't know my final functional level for a couple of years.
HerMajesty
Posts: 1134
Joined: Sat Sep 18, 2010 12:41 am
Location: North Las Vegas, Nevada

Re: Insurance denial for botox

Post by HerMajesty »

For anyone with an Anthem , BC/BS related insurance, this is the policy under which they deny botox:

http://www.anthem.com/medicalpolicies/p ... 049843.htm

I noticed they do allow it for neurogenic bladder which I do have, but that was not the "code" it was submitted under. As far as Merrie's suggestion of using a muscle spasticity code, I don't think that would have worked with Anthem, but obviously Merrie's insurance has this on their "OK" list while Anthem does not. Lesson learned the hard way: If you want an unusual procedure, get the written policy for that procedure from you insurance company BEFORE the Doc submits the codes, and have them submit the codes that will get you approved.
pelvic pain started 1985 age 14 interstitial cystitis. Refused medical care from age 17, did GREAT with self care for years.
2004 PN started gradually, disabled by 2009. Underlying cause SIJD & Tarlov cysts
improved with PT & meds: neurontin, valium, nortriptyline, propanolol. (off nortriptyline & propanolol now, yay!)
Tarlov cyst surgery with Dr. Frank Feigenbaum March 20, 2012.
Results have been excellent so far; but I won't know my final functional level for a couple of years.
donstore
Posts: 463
Joined: Mon Nov 08, 2010 6:13 am
Location: San Francisco

Re: Insurance denial for botox

Post by donstore »

This is great advice. Approval from insurance for anything is all about the ICD-9 diagnosis codes. You can look them up on the internet.

Don
Mild to moderate PN for 5 plus years, pain controlled by lyrica and opiates.
Nerve block (unguided) 9/10 Dr. Jerome Weiss - sciatica for 5 months but got numb in painful perineal/scrotal area - he diagnosed entrapment - but no more cortisone for me
Potter MRI 5/11 - rt STL entrapment of PN at Alcocks
Consult with Dr. Hibner Feb. 2012
Bilateral inguinal hernias diagnosed by dynamic ultrasound - surgery on 6/20/13
Feeling a little better, a few more months will tell
HerMajesty
Posts: 1134
Joined: Sat Sep 18, 2010 12:41 am
Location: North Las Vegas, Nevada

Re: Insurance denial for botox

Post by HerMajesty »

Don (or anyone),
Do you know whether only a Physician is authorized to request approval under a particular code? I plan to bring up my neurogenic bladder (with urodynamics report) in the appeal; and am wondering if I can explicitly request that they approve my botox procedure under the neurogenic bladder code, or if I can only request that they advise me whether or not resubmission by the Physician under that code would be approved.
pelvic pain started 1985 age 14 interstitial cystitis. Refused medical care from age 17, did GREAT with self care for years.
2004 PN started gradually, disabled by 2009. Underlying cause SIJD & Tarlov cysts
improved with PT & meds: neurontin, valium, nortriptyline, propanolol. (off nortriptyline & propanolol now, yay!)
Tarlov cyst surgery with Dr. Frank Feigenbaum March 20, 2012.
Results have been excellent so far; but I won't know my final functional level for a couple of years.
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