Re: I am new here!
Posted: Sun Mar 02, 2014 3:59 am
I thank those of you who care!!! But please don't act like I have done no investigative work to find solutions to this problem. You don't know where I have been or what I have done.
I have been to at least 12 Doctors trying to convince me I don't even have PN, because of their lack of knowledge. I have been sent down so many wrong roads! I have had all the injections, all the test, and tried every med I could possibly tolerate, before it finally made me sick. I subjected myself to so many different kinds of surgery by people who did not even know what PN was.
Everyone telling me I had rectal-colon problems!!! Sending mE to GYN and experimenting with me there! I did noT know much more about PN so anything they told me I believed. Every time a surgery was done I was told that was the solution to my problems----but it was not! I have been to pain/management and am due to go again on the 19th but its a waste of time! I cannot repeat it enough times----I cannot travel long distance to go to anybody or anywhere. On top of PN you know I have spinal cord injuries! I am VERY LIMITED to where I can travel. Do yoU think I am happy about that???????? I was hospitalized just two weeks ago for my excruciating pain---they shot me up with Dilaudid and sent me bAck to MY HELL!!! Half of them think I AM CRAZY!!!!!
I call 911 at 2-3 AM for pain, and again tell me there is no problem, and shoot me up with more Dilaudud! Right now I have tried tramadol, Neurontin, lyrica, Elavil, Percocet, vicodin, and soma.
Does this sound like I am not trying to help myself????????? My primary at least has the honesty to say he will help where he can but this is not his area of expertise! I would get a stimulator in a minuit, but not after hearing people say they have one and still CANNOT SIT DOWN!!!!! and still have to take numerous meds for uncontrolled pain and a new set of limitations! I have been fighting for three years with spinal problems and learning to walk all over again, only to come down with blood clots in both lungs and legs. I fell because of loss of balance from a simple walk with walker two weeks ago and broke my ankle. I can fall over the most simple incident, let alone try to travel to these places that you people are able to get to. I appreciate your help but please don't shove it down my throat that I should not give up, that I should have more hope! I have given it my best shot!!! Wish you all well. If you want to help, just PRAY FOR ME!!!!
Pat
I have been to at least 12 Doctors trying to convince me I don't even have PN, because of their lack of knowledge. I have been sent down so many wrong roads! I have had all the injections, all the test, and tried every med I could possibly tolerate, before it finally made me sick. I subjected myself to so many different kinds of surgery by people who did not even know what PN was.
Everyone telling me I had rectal-colon problems!!! Sending mE to GYN and experimenting with me there! I did noT know much more about PN so anything they told me I believed. Every time a surgery was done I was told that was the solution to my problems----but it was not! I have been to pain/management and am due to go again on the 19th but its a waste of time! I cannot repeat it enough times----I cannot travel long distance to go to anybody or anywhere. On top of PN you know I have spinal cord injuries! I am VERY LIMITED to where I can travel. Do yoU think I am happy about that???????? I was hospitalized just two weeks ago for my excruciating pain---they shot me up with Dilaudid and sent me bAck to MY HELL!!! Half of them think I AM CRAZY!!!!!
I call 911 at 2-3 AM for pain, and again tell me there is no problem, and shoot me up with more Dilaudud! Right now I have tried tramadol, Neurontin, lyrica, Elavil, Percocet, vicodin, and soma.
Does this sound like I am not trying to help myself????????? My primary at least has the honesty to say he will help where he can but this is not his area of expertise! I would get a stimulator in a minuit, but not after hearing people say they have one and still CANNOT SIT DOWN!!!!! and still have to take numerous meds for uncontrolled pain and a new set of limitations! I have been fighting for three years with spinal problems and learning to walk all over again, only to come down with blood clots in both lungs and legs. I fell because of loss of balance from a simple walk with walker two weeks ago and broke my ankle. I can fall over the most simple incident, let alone try to travel to these places that you people are able to get to. I appreciate your help but please don't shove it down my throat that I should not give up, that I should have more hope! I have given it my best shot!!! Wish you all well. If you want to help, just PRAY FOR ME!!!!
Pat