Health Organization for Pudendal Education

Hi Patrick
I have the expensive roho cushion and haven't been able to use it ... the fingers seem to push and irritate my painful areas ---currently the anal area and spreading on around the butt cheek etc. Its a spot that gets pressure etc no matter how you sit.

What you described with the elastic bands does sound good.. sorry if I sound dense but what exactly did your PT do to the "fingers".. in the desired spot?

Did they wrap an elastic band around it so that the fingers are deflated and in effect, flattened all the way down.?
Would love to able to use my Roho.
Thanks for any direction..
Kathy

Kathy,
I also have a roho and when they worked with me to determine whick fingers to have at lower heights they did just what you said and then also taped the deflated finger(s) down as well so it was as completely flat as possible. Good luck
Janet

Hi Janet,
Thx for being kind enough to respond. Where is your your pain? Are you able to sit on the cushion now? I hope so!
I will have my husband try to do this.
Thx again! Good luck to you too.
Kathy

Kathy,
My ppain is rectal but not as "touchy" I guess as yours. They only did the deflate and tape to determine which fingers in the center and more in the back center needed to be at 2" then outlined with 3" and all the rest are 4". It worked so well I got two one with a new wheelchair for home and one for my old wheelchair I use at work. I work about 5-6 hours mostly sitting at work and with the new acupuncture treatments and lowering pain I may be able to work more. I do hope this helps you to sit at least for a bit of extra time and enjoy something or at least lower the pain for some kind of useful activity.
Janet

The best cushion I have found is the Twin Cheeks pillow from Cushionyourassets.com. It keeps all the sensitive parts off the seat from the pubis bone past the anus. You can order the firmness depending on your weight etc. Trudy developed this cushion. She had PNE surgery with Dr. Hibner. Pull up her website, under the comments section you can write her with your weight, etc., and she will tell you the best firmness for you. I have recommended this cushion to many people who have loved it. I keep one in my car, which I take into restaurants, movies, etc., and another in my house and move it from room to room.

These are my cushion suggestions. I've been through plenty! http://www.pudendalnerve.com.au/2012/11 ... f-you-can/

I like the wondergel cushion. Just Google wondergel. Cost about 100 bucks but worth every penny for me.

Hi im new but i found the foam kneeling pads cut out to how i want the best for the car.40 kms each way to work but after a 12hr shift im still in pain.The Roho seat in the car only put my shoulders out because of excess rolling.Thinking of glueing two pads together for more height and a bigger opening on top.

Hi Weael
Are you using the kneeling pads as pads put under each butt cheek with opening in middle so that part doesn 't make contact.
Do u sink and make contact with the surface of the seat?

We tried to do the same with various cushions as my anal opening cant make contact or feel pressure on it or pain will kick in.. I always sink down..gravity--- even tho Im built small.

What I need is a cushion thats raises my anal area up a tiny bit so it makes no contact with the surface or gets squeezed by the cushion.
If anyone knows of cushion I could try for this, could you post or PM me?
Being able to drive again would gvie me back my life? (not be mention being able to eat at the dinner tablel rather than stand (which hurts as well)
Thx
Kathy

Kathy, both the twin cheeks or the ICN cushion do this.
You could very easily make one of your own too.