Surgery Success Rate

[DaveM]

I am English. I live just outside Bristol. I travelled to the USA for my surgeries.

[Positivepoppy]

Gosh that was a brave decision to travel to the USA, did bristol offer the decompression surgery then or did you just feel that the USA could offer more?
I researched going to Nante but didn't want to be away from my son for the week and Mr Greenslade told me I needed immediate bilateral surgery so I panicked and booked myself in to have decompression surgery with Mr Wong.
I'm really delighted to hear you have this condition under control. I try and use the pool several times a week and do get relief from the water but sadly when I get out the pain returns
Take care and thanks for sharing

[DaveM]

Positive Poppy , at the time when I saw Greenslade the NHS was offering the surgery. However the whole process was taking a very long time. I was in severe pain and emailed Dellon. Dellon argued that there was no need to cut both ligaments and that he would only cut both if both ligaments were compressing the nerve. At the time I was concerned about both ligaments being cut so decided to go with Dellon. Bristol would have cut both ligaments. Dellon only cut my sacrotuberous ligament.

There is no difference between the Nantes surgery and the Bristol surgery. As you know the Bristol team learnt from Nantes. Dr Wong told me it was a relatively simple surgery to perform and could be done in 20 minutes.

It’s great that you can get some relief when in the swimming pool. Dellon recommends walking in the pool after surgery. I think it’s important that you get your body moving. However I don’t think walking or swimming in a pool is going to be enough to get you better. Restorative Exercise is a very specific movement programme and you need to load your body correctly. You need to stretch and strengthen particular muscles and then learn how to move differently. For instance you need to completely change how you walk.

[Positivepoppy]

Thanks for your response and advice, I will 're read your posts and try restorative movement, open to all suggestions.
I was aware the surgery I had in bristol was the same as nante, unfortunately I did not allow myself to research the procedure in detail. So relieved was I to finally be taken seriously as I'd seen countless consultants and no joy. I was (still am) in such chronic pelvic pain that after ct guided nerve blocks and a ultra sound test Mr greenslade conclusively diagnosed bilateral PNE and I was told I needed immediate surgery as it was the only chance I had of attempting to be pain free. I was scared and paid £6,000 and signed on the dotted line and had decompression surgery. The rest is history as the surgery to date has not helped and I now have the added joy of pelvic instability and acute back pain.
I refuse to dwell on the past what is done is done and I can't turn back time. I am open and willing to try anything that may help and so grateful to people for sharing their experiences. I approach every day with a smile on my face and live in the belief that some day I will be pain free and have my life back.
I'm delighted that yours is a success story, embrace every moment of your pain free life!!

[Positivepoppy]

I feel so sad that yet again I'm offered the chance to recover but it still costs so much. When I said I would try things I didn't expect you to be directly involved and cost so much money. The forum is meant to be a free exchange of ideas a d when you PM me with a glossy looking website and exhoratant prices it makes me so cynical and so sad. I've already paid £16,000 to be in this mess why would I pay more?

[Bertie]

I learnt very early on that this PN problem is about the $$$$$$$ or in our case the ££££££££s which I guess is why the NHS is right regards PN and why there is no real treatment on the NHS for it because it is not approved by NICE as a good bet. The cost of physio for a good sports physio £40.00 an hour a women's health physio £120.00. Ummmmmm.

[DaveM]

I too have spent many thousands on pudendal nerve surgery.

In all my years of suffering pelvic pain I have paid more per hour to specialists and physical therapists than the rate I am charging. The payment is also not just for the hour but it includes as much support as you require between appointments. In addition I always offer the first session free so that people can learn more about Restorative Exercise and make their own minds up whether they want to proceed or not.

During the years I had chronic pelvic pain I spent the least on Restorative Exercise and it actually got me better.

[Alan1646]

DaveM, you'll have to forgive people here for being somewhat skeptical about new treatments that cost a substantial amount of money and which are supported only by one person's anecdotal evidence. Many of us have spent a small fortune on diverse treatments that have sometimes made matters worse rather than better, and I personally have yet to encounter a therapist who accepts payment by results and who does not encourage more treatments even though there is scanty or no evidence of improvement.

[Positivepoppy]

I would gladly remortgage my house if I thought I could be pain free! Sadly despite spending a small fortune I am still in chronic pain in fact the pain is nowmore acute since surgery. I am by nature a positive person but the frustration of being offered the chance to recover only to learn that yet again it costs so much and is very difficult geographically to attend on a regular basis makes me upset. Maybe only the elite and rich can afford a chance of recovery, that's how I'm beginning to feel sorry. I'm sure you are genuine and I pray you have recovered but I don't have £50 a session plus DVD s and extra money for telephone advice when I'm not sure this is going to succeed where everything else has failed.
Yes how I long for a results based paying for the treatment, how reassuring !!!!

[mod3]

Dave, your account on the pudendalhope.org forum has been deactivated. We do not allow personal advertising on the forum.

Mod3