Health Organization for Pudendal Education

Well I had steroid injections initially, sweet and wonderful Karyn . They did absolutely no good whatsoever! It would be interesting to hear if anyone else has had botox into their piriformis, did it have any effect?

Hello karyn,Hellenlegs
Thank you so much for all your help

Kayran all my urinary and bowel function are normal. I did only initially have what I now no as nerve pain at the tip of my penis.That was the only pronlem I had for the first two months. That was it ,no perinium pain nothing else. That though has subsidedand never came back. Then the throbing in my piriformis started and the perinium pressure started. I do however have urethra pain not while urinating only after i sit for extended time. Ita feels as though a worm is comming through my penis. I only get a lose of sensation in my genitals when aggravating the area. And that is Minimal, I would even call it a loss of sensation. UP DATE!!!Karyn and Hellen I started to write this tread as I was in the waiting room to see DR Zhoe. We spent an hour going over my spasifics. He feels at this time to give me the pudendel block. He is highly regarded in pian managment. He a very caring doctor.shcooled in china and is a practicing Doc in the states for 22 years his specialty is trigger point injections.He has never don't a pudendel nerve block and wants to do it unguided thru the perineum as they do for child birth. I have seen and he just showed me a diagram of how its done.. PLEASE let me know your opinion whether or not YOU would be comfortable with doing the block this way.
I will be waiting to here from both of you or any on else who has an opionoin, or has had a pudendel nerve block this way.
Thank you
Redz

Hi Redz,
It's your call, but I highly advise AGAINST an unguided nerve block - especially with someone who is inexperienced. Trigger point injections are much different than nerve blocks. Please view the home page of this site - you really want to see someone who is knowledgeable and has experience in this area.
Redz - I would go for the piriformis injection first. It's very possible your PN symptoms are coming from the piriformis, which can cause perineal pain. A guided or unguided PN block isn't going to be very helpful if your issue is stemming from the piriformis.

I would also say guided is preferred. Although I did not have any problems with the unguided they were more painful and the left side was not exact so I had the guided which showed clearly that the left side was the problem. Better yet if you are only having piriformis hopefully it is easier to fix and it would be good to check it out first. No one wants PNE. Good luck.
Janet

Hello Karyn,

Thank for the info. I choose not to have the unguided block. I will be having the Piriformis injection on Monday both sides.
However I did not ask him of he was using Botox. I think the botox would be better. Would You agree.

Hi Redz,
Thanks very much for letting us know about your decision. How are you feeling about all this? I understand how overwhelming things can get sometimes, trying to figure out what to do and who to see for treatment.
Personally, I'm not a fan of the botox. I've never had it but am aware of the mix reviews from others who have. Trying to get insurance approval for the stuff is often very difficult and time consuming. I spoke with a friend who had a series of injections to the piriformis and she states botox wasn't used. She wasn't sure what drug was injected.
I wish you the very best with your injections. Please let me know how you're doing afterwards.

Red, there is a scholarly article that you may be interested in reading that mentions how the piriformis muscle could impinge on the pudendal nerve. http://www.pudendalhope.info/sites/defa ... icPain.pdf
Use your control F function to find all of the mentions of the piriformis in the article. There is a specific case mentioned on page 12 -- unfortunately we don't have the figures included in the article but still you may find it interesting.

If there is a facility that has a 3T MRI near you -- check out this thread by Shawn. You may be able to get an MRI similar to the Hollis Potter MRI sooner.

http://www.pudendalhope.info/forum/view ... =69&t=2490

Not sure if you heard of Jason Cohen, interventional radiologist in NJ. http://pudendalhope.org/node/58#NJ

Best,

Violet M

Hello violet and Karyn,

As always thank you for every thing. Violet you must be reading my mind, I will be making an appointment with Dr Cohen on Monday. He is 22 miles from my house. I Thank both of you for your help I will keep you updated. I see there is a donation section on the web site. I would like to put up for auction on eBay one of our products with all processes going to pudendal hope.org I will market its as a charity auction. Please let me know if there is any other marketing you would like me to add to bring awareness to the site. It will be a high end piece of cookware that will generate a lot of views and awareness to this affiction and money for the site. Please let me know. I will send you all the info about the auction. It will be an exciting thing to watch.
P.S excuses some of the errors in my grammer....my iPad likes to guess what am trying to say and changes some of my wording. Isnt technology great!
Thank you
Redz

Good luck with your injections tomorrow Red. And let me know how it goes if you decide to see Dr. Cohen.

I don't know much about ebay auctions, etc. but it sounds interesting -- definitely something I need to learn more about!

Regards,

Violet

Hello violet,
I will be getting the Piriformis injection today. I will be also making an appointment with DR Cohen as well.
Thanks
Redz