Health Organization for Pudendal Education

Gregg wrote: I am also experiencing severe pain in my piriformis muscle and as a result, sciatic nerve pain. Those piriformis spasms may also be impeding the healing of the pudendal nerve.

Gregg, I highly recommend using a TENS unit for the piriformis muscle post-op. If the electrodes are placed correctly and you use it at LEAST two hours a day it might help. I used to just wear it around for hours and it finally broke the piriformis muscle spasm cycle of pain.

Violet M wrote:Michaela, I started having pain 2 months after beginning a weight-lifting program. You can read my story here: http://pudendalhope.org/node/65
Symptoms went to a minor ache in the right vaginal wall, then persistent genital arousal syndrome and full-blown PNE pain with burning internally and externally including inner thighs. I think it was about 18 months between initial pain until surgery. Nothing helped before surgery except ice and meds.

I had a good experience with Dr. Antolak. He was very kind and caring but the reason I did not have surgery from him was because I had pelvic instability and I did not want the ST ligament cut. Dr. Bautrant was one of the only surgeons back then who did not cut that ligament.

So, what type of exercise were you doing at the gym? Have you been evaluated by a physical therapist for possible ligament strain?

Violet

Violet,
I Was doing spuats when i got hurt. It all started with a horrible urgency that never went away. Later i got pain. My pain is all over the place. Genitals, anus, buttock, pelvis... I can go a while with no pain at all but my urgency never goes away. Its really frustrating. I cant accept that i cant do things i used to. Im gaining weight and getting all loose. But i still can sit and move around and work. Im considering a surgery because i need to get rid of the terrible urgency and do things i us to do. But i dont know if its not gonna make me worse. I can sit now (oo a donut). Am i gonna be able to sit after the surgery? Am i gonna be able to excercise again one day if i have the surgery? Can u ever be normal again at some point of your life if u have it? I dont think i have the worst case of pn for now but i know i cant live like this for the rest of my lif. But could surgery make me worse?
How are u feeling now? Are u still getting better? Did u say u had the less invasive approach? What if u are entrapped where they cant see it? Hows your life now?

MichaelaZ wrote: Am i gonna be able to sit after the surgery? Am i gonna be able to excercise again one day if i have the surgery? Can u ever be normal again at some point of your life if u have it? I dont think i have the worst case of pn for now but i know i cant live like this for the rest of my lif. But could surgery make me worse?
How are u feeling now? Are u still getting better? Did u say u had the less invasive approach? What if u are entrapped where they cant see it? Hows your life now?

Michaela, I'm back to work sitting many hours a day without a cushion -- one reason I'm so late in replying to your question. I can't promise your success will be as good but I live a very normal life without any medications for PN. The one thing I don't do is intense exercise because that's what got me in trouble in the first place and I know my ligaments are bad. I walk briskly 2 miles a day and do some core strengthening exercises but that's all.

I guess you could call the TIR approach that I had less invasive in that not as many muscles or ligaments are cut as in the traditional TG approach. Unfortunately, there aren't any guarantees with PNE surgery. Once in awhile people get worse from it but usually there are at least some improvements.