Re: OMG! I think I have found other like me!
Posted: Sun Oct 02, 2011 2:20 pm
Thanks for the reply.
The piriformis pain and cramping was very severe for a while and was the source of the highest pain level for months. Incredibly painful. Much like hot nails driven into the center of each cheek!
I started doing A LOT of stretching and it did help a fair amount. But the doctors haven't done anything for the piriformis cramping. (Only recently found on this site that people with PN/PNE shouldn't be doing piriformis stretching). I brought this up with a few doctors in the past and always got the response that "piriformis syndrome is too rare". No kidding.
A few months back, the pain doctors did a disc study, This is where the doctor actually inflates or expands several of the discs adjacent to the pain source and then see where the pain radiates too. This was extremely painful but useful. It showed that disc wasn't the source of all of my issues and that they in fact be several separate issues. Only after these tests did I get through to the doctors the scope of my pain problems.
Currently the piriformis issues are pretty low level, at least compared to where it was. I can only go to the doctor so much so we have been basically going after whatever is producing the highest level of pain. That's my tailbone currently. Currently I'm managing the piriformis problems with the meds and lot of stretching.
Isn't it strange how all of these things can get you all at once? Doctors tell you that these conditions are rare. So rare in fact that they dismiss the possibility without any investigation. Based on the "diagnose using the odds" method I simply cannot have any one of these conditions let alone more than one at a time.
Thank you all again,
The piriformis pain and cramping was very severe for a while and was the source of the highest pain level for months. Incredibly painful. Much like hot nails driven into the center of each cheek!
I started doing A LOT of stretching and it did help a fair amount. But the doctors haven't done anything for the piriformis cramping. (Only recently found on this site that people with PN/PNE shouldn't be doing piriformis stretching). I brought this up with a few doctors in the past and always got the response that "piriformis syndrome is too rare". No kidding.
A few months back, the pain doctors did a disc study, This is where the doctor actually inflates or expands several of the discs adjacent to the pain source and then see where the pain radiates too. This was extremely painful but useful. It showed that disc wasn't the source of all of my issues and that they in fact be several separate issues. Only after these tests did I get through to the doctors the scope of my pain problems.
Currently the piriformis issues are pretty low level, at least compared to where it was. I can only go to the doctor so much so we have been basically going after whatever is producing the highest level of pain. That's my tailbone currently. Currently I'm managing the piriformis problems with the meds and lot of stretching.
Isn't it strange how all of these things can get you all at once? Doctors tell you that these conditions are rare. So rare in fact that they dismiss the possibility without any investigation. Based on the "diagnose using the odds" method I simply cannot have any one of these conditions let alone more than one at a time.
Thank you all again,