thank you
Re: Symptoms from injury?
T
Last edited by hoping on Mon Mar 26, 2012 4:25 pm, edited 1 time in total.
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helenlegs 11
- Posts: 1779
- Joined: Fri Sep 17, 2010 9:39 am
- Location: North East England
Re: Symptoms from injury?
Thank goodness your managing the pain levels better hoping, Sorry I can't help you with the Dr recommendations but I'm sure others will step in. Have you taken a look at the list of doctors on the home pages.
Have you had an actual diagnosis of which nerve/nerves may be responsible or if other muscles etc could be damaged? What did Dr Weiss say?
take care,
Helen
Have you had an actual diagnosis of which nerve/nerves may be responsible or if other muscles etc could be damaged? What did Dr Weiss say?
take care,
Helen
Fall 2008. Misdiagnosed with lumber spine problem. MRN June 2010 indicated pudendal entrapment at Alcocks canal. Diagnosed with complex variant piriformis syndrome with sciatic, pudendal and gluteal entrapment's by Dr Filler 2010.Guided piriformis botox injection 2011 Bristol. 2013, Nerve conduction test positive; new spinal MRI scan negative, so diagnosed for the 4th time with pelvic nerve entrapment, now recognised as Sciatic, pudendal, PFCN and cluneal nerves at piriformis level.
Re: Symptoms from injury?
T
Last edited by hoping on Mon Mar 26, 2012 4:25 pm, edited 1 time in total.
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helenlegs 11
- Posts: 1779
- Joined: Fri Sep 17, 2010 9:39 am
- Location: North East England
Re: Symptoms from injury?
You have three issues really and I would not give up on any of them giving the circumstances you find yourself in.
There must be some recompense from this persons actions, surely. It isn't right. I don't know how it works in your country unfortunately so can't help you with anything in a legal sense, all I would say is keep all medical records, take photographs that might demonstrate the injuries you have suffered (might be too late for this) and if you can do something in the future (are there any limiting time scales, here it is 3 years) at least you have something to work from.
However the immediate problem is your treatment now and where to go from here. Did Dr Weiss or Christie say where the nerve may be damaged as in lower than Alcocks canal or higher up. Did either of them or your new PT think that you had any sacroiliac problem because of the injury? Just wondering which Dr. would be best for you.
Can you get just an ordinary x ray as any fracture can still show up where the bone is now healed, although of course nothing can be done now unless any fracture has healed slightly wrongly. I remember that a neurosurgeon did tell me that I would have had to have broken my pelvis for the problems I was describing to continue, as any soft tissue injury would get better in around 1 year. Of course this hasn't happened but I would say that many clinicians don't realise the enduring problems 'simple' muscle damage and the knock on nerve problems can be like. They expect that a fractured pelvis can be the only answer and if there is no fracture then the problem can't be as bad as described. I would still think about an x ray it could help if a fracture does show, all I'm saying is don't be disappointed if nothing does show up.
Has anyone mentioned a laberal hip tear at all?
It's great that you are able to see people (nearby?) who do know what they are talking about. I hope things start to look up for you soon.
Take care
Helen
There must be some recompense from this persons actions, surely. It isn't right. I don't know how it works in your country unfortunately so can't help you with anything in a legal sense, all I would say is keep all medical records, take photographs that might demonstrate the injuries you have suffered (might be too late for this) and if you can do something in the future (are there any limiting time scales, here it is 3 years) at least you have something to work from.
However the immediate problem is your treatment now and where to go from here. Did Dr Weiss or Christie say where the nerve may be damaged as in lower than Alcocks canal or higher up. Did either of them or your new PT think that you had any sacroiliac problem because of the injury? Just wondering which Dr. would be best for you.
Can you get just an ordinary x ray as any fracture can still show up where the bone is now healed, although of course nothing can be done now unless any fracture has healed slightly wrongly. I remember that a neurosurgeon did tell me that I would have had to have broken my pelvis for the problems I was describing to continue, as any soft tissue injury would get better in around 1 year. Of course this hasn't happened but I would say that many clinicians don't realise the enduring problems 'simple' muscle damage and the knock on nerve problems can be like. They expect that a fractured pelvis can be the only answer and if there is no fracture then the problem can't be as bad as described. I would still think about an x ray it could help if a fracture does show, all I'm saying is don't be disappointed if nothing does show up.
Has anyone mentioned a laberal hip tear at all?
It's great that you are able to see people (nearby?) who do know what they are talking about. I hope things start to look up for you soon.
Take care
Helen
Fall 2008. Misdiagnosed with lumber spine problem. MRN June 2010 indicated pudendal entrapment at Alcocks canal. Diagnosed with complex variant piriformis syndrome with sciatic, pudendal and gluteal entrapment's by Dr Filler 2010.Guided piriformis botox injection 2011 Bristol. 2013, Nerve conduction test positive; new spinal MRI scan negative, so diagnosed for the 4th time with pelvic nerve entrapment, now recognised as Sciatic, pudendal, PFCN and cluneal nerves at piriformis level.
Re: Symptoms from injury?
I
Last edited by hoping on Mon Mar 26, 2012 4:26 pm, edited 1 time in total.
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helenlegs 11
- Posts: 1779
- Joined: Fri Sep 17, 2010 9:39 am
- Location: North East England
Re: Symptoms from injury?
My problems began with a fall, directly on to R side ischeal tuberosity (and I was skinnier then) so can relate. Although my piriformis muscle seems to be the site of my worst pain. I did have a haematoma in my p muscle for a few months after the fall, it's disappeared now but THAT spot is my injury site rather than ischeal tuberosities (although still painful) so I don't always think that the actual area that sustained the contact damage is always the place of entrapment. Sorry I realise that info doesn't help one jot!
Take a look at the home pages ANATOMY and scroll down to 'Comparison of Pudendal Nerve Drawings' you will see where Alcocks canal is situated. Not far from ischeal tuberosities. Dr Hibner has said that ischeal tuberosity pain is related to Alcocks canal ( an really rubbish/basic 1T scan I had in England did show pudendal signal problems in Alcocks and I have ischeal t pain) although I think in Chapter 12 (also on home pages) by Dr Dellon he seems to be saying the opposite?? I'm going with Dr H
Good point about delay in meds hoping. . .I hope others who are not keen on taking pills (used to be me) do read that, as a pain 'wind up' can be a consequence of not getting extra pharmaceutical help. This paper explains why anti-depressants and epileptic type drugs can help neuro pain.
https://docs.google.com/viewer?a=v&q=ca ... mcvr4SO4Jg if anyone is interested.
Like your ref 'hazy pleasure centre' I try to tell my self that I would feel the pain more if it was in my head, brain or face and do succeed to some extent. Some one was recently describing leg pain that they suffered like they had some kind of creatures living in parts of their lower limbs which kept jumping, fluttering, nipping and trying to escape which was really scaring them. . . . I have that too but have had it for so long that until they drew my attention to it again I must say, I'd managed not to process these strange happenings all of the time. What I am saying is quite a good bit of pain control can be mind over matter, until it hit's the heights that no one can deal with admittedly. I do think tho' that CAB can def help.
Do you use ice btw?
Have prattled on enough. . . .the guy with the wheelchair design will be pricey I would expect?
'
Take a look at the home pages ANATOMY and scroll down to 'Comparison of Pudendal Nerve Drawings' you will see where Alcocks canal is situated. Not far from ischeal tuberosities. Dr Hibner has said that ischeal tuberosity pain is related to Alcocks canal ( an really rubbish/basic 1T scan I had in England did show pudendal signal problems in Alcocks and I have ischeal t pain) although I think in Chapter 12 (also on home pages) by Dr Dellon he seems to be saying the opposite?? I'm going with Dr H
Good point about delay in meds hoping. . .I hope others who are not keen on taking pills (used to be me) do read that, as a pain 'wind up' can be a consequence of not getting extra pharmaceutical help. This paper explains why anti-depressants and epileptic type drugs can help neuro pain.
https://docs.google.com/viewer?a=v&q=ca ... mcvr4SO4Jg if anyone is interested.
Like your ref 'hazy pleasure centre' I try to tell my self that I would feel the pain more if it was in my head, brain or face and do succeed to some extent. Some one was recently describing leg pain that they suffered like they had some kind of creatures living in parts of their lower limbs which kept jumping, fluttering, nipping and trying to escape which was really scaring them. . . . I have that too but have had it for so long that until they drew my attention to it again I must say, I'd managed not to process these strange happenings all of the time. What I am saying is quite a good bit of pain control can be mind over matter, until it hit's the heights that no one can deal with admittedly. I do think tho' that CAB can def help.
Do you use ice btw?
Have prattled on enough. . . .the guy with the wheelchair design will be pricey I would expect?
'
Fall 2008. Misdiagnosed with lumber spine problem. MRN June 2010 indicated pudendal entrapment at Alcocks canal. Diagnosed with complex variant piriformis syndrome with sciatic, pudendal and gluteal entrapment's by Dr Filler 2010.Guided piriformis botox injection 2011 Bristol. 2013, Nerve conduction test positive; new spinal MRI scan negative, so diagnosed for the 4th time with pelvic nerve entrapment, now recognised as Sciatic, pudendal, PFCN and cluneal nerves at piriformis level.