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Re: Surgery dilemma
Posted: Sat Oct 07, 2023 8:13 am
by koshu
zazzaleon wrote: ↑Wed Oct 04, 2023 2:09 pm
Dear Koshu ,
I am sad to hear that you are not getting better .
You had the surgery done from Dr. Bollens ? you do not have any improvement at all ?
It was with Dr Bollens, yes. Initially there were improvements with bladder emptying/post urine dribble, and night-time and morning erections. Any improvements have now gone. I'm going to get intensive myofascial release treatment in November (using the John F Barnes method) and we will see if this can improve the fascial restrictions in my body that are probably causing all this. There will be sessions targeting the pelvic floor specifically (which is where I am now convinced that the pudendal nerve is entrapped) along with addressing the total body dysfunction. I wish I had discovered this before deciding to get myself cut open, but it is a sign of my desperation.
'
Re: Surgery dilemma
Posted: Wed Nov 08, 2023 4:02 pm
by Westbluu
koshu wrote: ↑Sat Oct 07, 2023 8:13 am
zazzaleon wrote: ↑Wed Oct 04, 2023 2:09 pm
Dear Koshu ,
I am sad to hear that you are not getting better .
You had the surgery done from Dr. Bollens ? you do not have any improvement at all ?
It was with Dr Bollens, yes. Initially there were improvements with bladder emptying/post urine dribble, and night-time and morning erections. Any improvements have now gone. I'm going to get intensive myofascial release treatment in November (using the John F Barnes method) and we will see if this can improve the fascial restrictions in my body that are probably causing all this. There will be sessions targeting the pelvic floor specifically (which is where I am now convinced that the pudendal nerve is entrapped) along with addressing the total body dysfunction. I wish I had discovered this before deciding to get myself cut open, but it is a sign of my desperation.
'
How is your current situation? How is your pain?
Re: Surgery dilemma
Posted: Thu Nov 09, 2023 7:24 pm
by koshu
Westbluu wrote: ↑Wed Nov 08, 2023 4:02 pm
koshu wrote: ↑Sat Oct 07, 2023 8:13 am
zazzaleon wrote: ↑Wed Oct 04, 2023 2:09 pm
Dear Koshu ,
I am sad to hear that you are not getting better .
You had the surgery done from Dr. Bollens ? you do not have any improvement at all ?
It was with Dr Bollens, yes. Initially there were improvements with bladder emptying/post urine dribble, and night-time and morning erections. Any improvements have now gone. I'm going to get intensive myofascial release treatment in November (using the John F Barnes method) and we will see if this can improve the fascial restrictions in my body that are probably causing all this. There will be sessions targeting the pelvic floor specifically (which is where I am now convinced that the pudendal nerve is entrapped) along with addressing the total body dysfunction. I wish I had discovered this before deciding to get myself cut open, but it is a sign of my desperation.
'
How is your current situation? How is your pain?
Still exactly the same as before. there is no pain, Bollens says pain is the first sign of recovery. I spoke to him on Tuesday for our 3 month update, he says recovery is from 6 months to 2 years. I am still completely numb and can’t see that changing anytime soon. I suppose it was worth a try but I wish I could go back in time and not get this done.
Re: Surgery dilemma
Posted: Thu Nov 09, 2023 7:44 pm
by Westbluu
koshu wrote: ↑Thu Nov 09, 2023 7:24 pm
Westbluu wrote: ↑Wed Nov 08, 2023 4:02 pm
koshu wrote: ↑Sat Oct 07, 2023 8:13 am
It was with Dr Bollens, yes. Initially there were improvements with bladder emptying/post urine dribble, and night-time and morning erections. Any improvements have now gone. I'm going to get intensive myofascial release treatment in November (using the John F Barnes method) and we will see if this can improve the fascial restrictions in my body that are probably causing all this. There will be sessions targeting the pelvic floor specifically (which is where I am now convinced that the pudendal nerve is entrapped) along with addressing the total body dysfunction. I wish I had discovered this before deciding to get myself cut open, but it is a sign of my desperation.
'
How is your current situation? How is your pain?
Still exactly the same as before. there is no pain, Bollens says pain is the first sign of recovery. I spoke to him on Tuesday for our 3 month update, he says recovery is from 6 months to 2 years. I am still completely numb and can’t see that changing anytime soon. I suppose it was worth a try but I wish I could go back in time and not get this done.
If there is no pain, it means it is good, you are getting better. I also have loss of numbness. in the anus, perineum and penis.
Did you have pain in the anus perineum and penis before your surgery? For example, I cannot sit for an hour.
Re: Surgery dilemma
Posted: Mon Nov 13, 2023 6:17 pm
by koshu
No, I had no pain prior to surgery, only functional symptoms and loss of penile sensation. So the lack of pain doesn’t really represent an improvement and I’d actually quite like some pain so show that something is happening.
Re: Surgery dilemma
Posted: Tue Nov 14, 2023 5:55 am
by Violet M
Koshu, did you start the Barnes method yet?
Violet