Health Organization for Pudendal Education

I am in that ebook and I did not give my authorization. I am not particularly prude so I don't care.

Thank you for sharing this positive news with us, Ali!
Since Andrea doesn't post on this site, will you please keep us updated on his case?
I'm very happy for him that he's feeling so much better, so quickly. However, I'd like to know how he's feeling six months from now.
Warmest of regards,
Karyn

Oh, Ezer ....
Yes, I did notice your response to Ray about being in the e-book as a success. I didn't realize it was complete with unauthorized photos.
No, I don't blame you in the least for being upset about him lying about your surgical results. I agree with you that it's very misleading for potential patients. While I admire your openess, I do think it's important for prospective patients to be aware that their personal information and photos are fair game to promote himself, without consent authorization.
I don't understand how he gets away with this?!?!?!

AliPasha1 wrote:Hello freinds,

One of my Italian friends "Andrea"had a successful bilateral surgery with Dr. Dellon about two months ago.The price tag was almost US $ 50,000 because I think he charged an extra US $15,000 for the redo or an extra nerve.I believe the patient's journey started in 2006 and had failed surgeries with both Dr. Beco in Belgium and Dr. Bautrant in Aix En Provence,France in 2007 and 2009 respectively.

He has no rectal burning and he can sit for more than two hours without a cushion.His sitting is improving every day and he is quite thrilled to leave the PN world.He is back to work .

This is the only case that I can confirm of Dr. Dellon's PN success.He was entrapped in the ST ligament on both sides including some pathology in the perineal branch.

Dr. Dellon also mis-diagnosed me for dorsal nerve entrapment in 2011 which eventually took me to Vienna,Austria.In reality, my PN was or is still entrapped.
Take care,
Ali

Hi Ali,
I am thinking all that can really be said about your friend, unfortunately, is that we would appreciate further updates because SO MANY of Dr. Dellon's patients mentioned on this thread were doing well at 2 months and deteriorated again later.
I don't know the cause of this but I do know that when I had my tarlov cyst surgery, I came out with a totally numb pelvis...I had been dreading having to lie flat for 24 hours because of the indwelling urinary catheter, expecting pain because I have interstitial cystitis, but I didn't feel a thing. After that, while the pelvic numbness gave me some bladder and bowel dysfunction, as far as pelvic neuropathy goes I was walking around with an "I'm cured!" feeling due to numbness alone. My surgeon and his nurse, being ethical, assured me that I was just numb and that full recovery from nerve root compression takes 2-3 years. And indeed, after I got sensation back in my pelvis, I had neuropathy which has been gradually diminishing ever since (I am at 9 months). This is called realism. I get the distinct impression that Dr. Dellon is using this same phenomenon or a similar one to claim "success stories" in patients who only get temporary relief. I would really like to hear from or about even one patient who is a year or more out from surgery and still significantly improved.
I hope your leg is improving Ali, always interested in updates about you too

Hi Hermajesty,Karyn and Ezer

You can read my update in the surgical column that I just posted. We can all pray that Andrea's recovery lasts and it is not temporary.I know also two patients on Dr. Dellon's ebook who weren't cured.

Kind Regards,
Ali

HerMajesty wrote:I am thinking all that can really be said about your friend, unfortunately, is that we would appreciate further updates because SO MANY of Dr. Dellon's patients mentioned on this thread were doing well at 2 months and deteriorated again later.
I don't know the cause of this but I do know that when I had my tarlov cyst surgery, I came out with a totally numb pelvis...I had been dreading having to lie flat for 24 hours because of the indwelling urinary catheter, expecting pain because I have interstitial cystitis, but I didn't feel a thing. After that, while the pelvic numbness gave me some bladder and bowel dysfunction, as far as pelvic neuropathy goes I was walking around with an "I'm cured!" feeling due to numbness alone. My surgeon and his nurse, being ethical, assured me that I was just numb and that full recovery from nerve root compression takes 2-3 years. And indeed, after I got sensation back in my pelvis, I had neuropathy which has been gradually diminishing ever since (I am at 9 months). This is called realism. I get the distinct impression that Dr. Dellon is using this same phenomenon or a similar one to claim "success stories" in patients who only get temporary relief. I would really like to hear from or about even one patient who is a year or more out from surgery and still significantly improved.
I hope your leg is improving Ali, always interested in updates about you too

VERY well said, HM!
xx

Regarding Dr. Dellon and Dr. Aszmann's dorsal nerve procedure:

I have just been to Dr. Azmann for a consultation. I had 3T MRI, US and sensory testing all done the same day. The MRI and US showed varices in the same area as the sensory testing indicated a problem. I asked Dr. Aszmann why some patients get gradually more pain during the months after their surgery. He told me that this is because of scar formation in the area and that this is usually a temporary problem that gradually starts to resolve about a year after the surgery. He also told me that he sometimes injects cortisone into the scar tissue to alleviate the problem.

After my consultation I also emailed him and asked him how his former patients were doing in terms of better, the same, or worse. Here is his response:
"Overall about 70%. I have reviewed my patients of the last 5 yrs. As Outcome parameters we tested improved sensibility, pain questionaires, current pain medication and some quality of life questions. Among male patients with rather clear symptoms it moved up to 85%. Females are another entity altogether, due to different causes. And then there are some outliers without a clear-cut phenomenology- but even in that group about 50% improved, with the other 50% being unchanged or not significantly improved. So far I have not made anybody worse.

I had one postop bleeding (US patient with transatlantic flight that stopped after about a week and one infection that had to be hospitalized and given iv antibiotics and also healed without further problems)

OCA"

It would be interesting to know how people are doing about a year and onward after surgery. Most of the people I have seen posting here had their surgery less then a year ago. Maybe good outcomes need more time because of the healing of the scar tissue. However, after reading all the negative posts here I will have to think long and hard about whether to have surgery or not.

Gorenje, I am not aware of anybody that has improved a year after dorsal nerve surgery. I have posted my experience with that surgery and several people that are registered but are not posting PMed me to share privately their own negative experiences.

Ezer, that's very interesting. So, you know of severeal patients who had dorsal nerve decompression done more than a year ago and none of them have gotten better?

The big question is why what the patients report on this board and to you personally doesn't correlate with the statistics of the doctors...
Could it be that the ones that do not improve are more inclined to still be active on news/supportgroups or are the doctors statistics somehow wrong? Just wondering...

Correct, I know a few patients that had that surgery anywhere between 3 months and close to 2 years. I can see how people that are not doing better would simply ignore the doctor's requests to provide feedback. Also I must say that for many doctors, even the slightest improvement is declared a success.