New Person with Pudendal Nerve Disorder

[konedog4]

As I visit this board, I see so many posts that are full of fear, despair, and discouragement. I know this board's acronym is HOPE, so I am going to post a positive entry.

On New Years Eve, 2011, I could not sit or stand without pain. I had to devise a special sitting pad/cushion that allowed me to sit for perhaps 15-20 minutes max. My life was miserable and my attitude was one of despair. I was researching surgical options, and was certain I was destined for surgery and the long post-operative recovery period. Each day was a day that had to be survived, not lived.

Fast forward to today, about 6 months later, and I am typing this note from my desk, sitting on a cushion, but not having any pain anymore. I can stand, swim, run, lift light barbells, and climb stairs again. I feel like I am getting better every day. My medication is being tapered and I am almost medication free.

I post this to give people hope that their situation can get better too.

May God bless one and all,

Jim K.

[helenlegs 11]

Love your post Jim, long may it continue.
Take care,
Helen

[janetm2]

Jim,
Great to hear your success and thanks for posting to the group. There can never be too much of good news here!
Janet

[Violet M]

Thanks for the positive post, Jim. You have probably stated this elsewhere but could you remind us here how you managed to improve? What do you think helped you the most?

Thanks,

Violet

[konedog4]

I got better through avoidance of anything that would make the condition worse. I gave up sitting (as much as possible) and strenuous exercise. I started physical therapy and learned how to massage out trigger points internally and externally. I began walking and swimming. And just as importantly, many people prayed for my recovery.

I am not 100%. I still get sore when I sit too long, and I cannot overdue it on exercise. But I am moving in the right direction. Next, I plan to visit Canada for a shockwave treatment.

Jim

[Violet M]

Thanks Jim. You are very blessed and I hope your shockwave treatment goes well.

Violet

[deBBieW]

Jim,
I'm very happy for you improvement. You are an inspiration to the rest of us. I think it's important to post when you feel good too, and why you are feeling better.
Be sure to let us know how Dr. Andrew's treatment goes for you.
I'm back from Hibner for a consult, and will be posting soon.

Best of luck,
Debbie

[helenlegs 11]

Good luck with the ESWT Jim, as Debbie said let us know what happens. . . more good news I hope.
Good news that you are getting somewhere too Debbie. Hopefully Dr Hibner will be able to help you
take care,
Helen

[konedog4]

Well, how quickly things can change! A week ago I posted a very positive note about my recovery. Today, after experiencing a setback, I am back to more symptoms and less comfort. Quite simply, I tried to do too much too soon. I began lifting barbells again, and I think this is what started my symptoms up again. So, it is back to the proverbial "drawing board" and taking it easy again.

I have made an appointment with Dr. Kirk Andrews in Cornwall, Canada for a week of Shockwave Therapy. Late August-early September. I hopefully can report back an improvement then.

kone

[Violet M]

Ouch, Kone. You've got to stay away from those weights, man. But don't feel too guilty -- you are not the first PN patient to do too much too soon. I think we've all been in your shoes. Please take it easy.

Violet