Insurance denial for botox

Discuss here about Medical Disability claims and Insurance possibilities for PN treatment options
mikewilso
Posts: 1
Joined: Sat Mar 24, 2012 11:21 am

Re: Insurance denial for botox

Post by mikewilso »

Actually Botox has many side effects that's why such insurance issue.
Mike
lexie
Posts: 74
Joined: Wed Apr 11, 2012 9:04 am

Re: Insurance denial for botox

Post by lexie »

Hello Tracy B

I know your post was last year but I called Dr. Hibners ofice adn they want to do an MRIo fmy pelvis and possible botox too.Same set up.
PLEASE let me know how u got on and did anything show up on the MRI or was it an MRN (even bettr for nerve stuff). did the MRI show up anything and did thebotox help u. I have to make a decision asap but want to know how you got on as I am to see Dr. K too.

How did you get on did you find anyting out and is your pain better. i hope it went well for you Tracy.

I t will cost me $5,000 for 2 botox injections into the obturator and possible ischiocavernosos. The told me they do not take medicare but medicare have them listed . also botox is not listed under medicare as botox so maybe pain injections.

I have medicare does anyone have medicare and got botox approved I have no secondary insurance so i will have to pay %20% of remaining total. Will take the rest of my life to pay that off---bloody hell!!!

let me know girl!! how this all went as I am in same boat as you it seems.--thanks---lexie
Faith
Posts: 697
Joined: Fri Oct 15, 2010 5:15 pm

Re: Insurance denial for botox

Post by Faith »

Hi lexie,

I haven't seen TracyB on the forum for quite some time so I am not sure how she is doing. I had the MRI and botox with Hibner several months ago. The MRI did not show anything for me. It is a 1.5Tesla MRI done with contrast and supposedly Dr. Kalinkin (the radiologist) was trained by Dr. Potter (who does the 3Tesla scan in New York City and seems to be the best right now at imaging for PNE). However, it seems Dr. Kalinkin often does not find anything on MRI while Dr. Potter often does. We have to remember that MRI/MRN is still not 100% accurate or diagnostic for PNE.

My botox experience was not good. I got much much worse from the injections (he usually does about 200cc in about 20 small injections and this is done under general anesthesia). I am finally (8 months later) starting to get back to where I was pre-botox, but the injections did not help me at all. I think I was made worse from the injectons due to my sacroiliac joint dysfunction and the botox caused other muscles to compensate since it basically "knocked out" my levator ani and obturator internus. I do not know your symptoms or how your PN occured, but in my opinion people with sacroiliac joint dysfunction or hip injuries like labral hip tears should not receive botox because it will only make the symptoms worse since it is not fixing the root problem. Some people have been helped by botox, but it is not a cure. Usually people have to have it repeated every 3-4 months if it helps at all. I of course cannot advise you what to do, but wanted to share my experience as you make your decision. I was lucky that my insurance paid the botox/hospital bill, but it denied the anesthesia (which was $900). So even with insurance I think I ended up paying around $1500 for the botox. It was a complete waste. But of course you never know until you try.
-11/08 vulvodynia began around conception of first & only pregnancy
-3/10 sacral/sitting pain began after SIJD manipulation
-Progressive widespread pain- central sensitization
-PT, meds, injections, botox, ESWT = debilitated.
-5/12 Potter MRI - scarring of left ST, coccygeous & posterior alcock
-12/12 - left FAI/labral hip tear surgery
2014-2019 managed w/ gabapentin, massage, and lifestyle mod
2020 - big flare up
www.thepurposeofpain.blogspot.com
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Violet M
Posts: 6820
Joined: Mon Sep 06, 2010 6:04 am
Location: United States
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Re: Insurance denial for botox

Post by Violet M »

Lexie, read Shawn's post about MRI's. http://www.pudendalhope.info/forum/view ... =69&t=2490
You may want to see if you can get one done locally using Dr. Potter's protocol.

Best,

Violet
PNE since 2002. Started from weightlifting. PNE surgery from Dr. Bautrant, Oct 2004. Pain now is usually a 0 and I can sit for hours on certain chairs. No longer take medication for PNE. Can work full time and do "The Firm" exercise program. 99% cured from PGAD. PNE surgery was right for me but it might not be for you. Do your research.
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