Health Organization for Pudendal Education

Alan1646 wrote:Have you tried any drugs such as Valium or other Benzodiazepines? A lot of people posting here have found they help a lot.

For perhaps obvious reasons, I don't want to publicly announce the medications I have taken. But suffice t to say, I have tried many combinations of medications. Some work, some don't, some make you feel so awful its almost worse than the pain. I have settled into a regime that takes the edge off the pain enough to allow me to work full time. I spend each weekend recovering from the week. Its an awful existence. But right now I have no other options.

tonygret wrote:
Violet,

My quality of life is poor. But the pain is off the charts. Where is Dr. Bautrant and how would I get in touch with him? I think I would at least do an office visit. Thank you!

He's in France, unfortunately, and my insurance didn't pay for the surgery because they said it was experimental. The docs in France are a lot cheaper than the US though -- both Prof. Robert and Bautrant. Prof. Robert is probably the cheapest -- at least he used to be.

Violet

Hello, sorry for your problems!.

One question. I was thinking to go to Filler's. Do you recommend him?

I've read some pretty bad reviews, although I'm aware of that good results often don't do reviews.

I've heard that he usually tries to diagnose piriformis for everything...

I'm scared now. Makes you wonder if the guys in france are better ...

Nicr,

Were you able to decide on a doctor you felt comfortable enough with to see for your PN pain or to have a 3T MRI? I am surprised the pudendal nerve EMG is available in South America, I thought only Dr. Bautrant and his current and former team, and Dr. Conway, who trained initially with Dr. Bautrant, were using it. Most of the doctors do not. It seems like the doctor who performed this test on you would have enough knowledge of pudendal neuralgia to give you some direction about where to go and what to do next. Did he or she have any suggestions? Typically I would think this might be Botox injections into the pelvic floor muscles. Is this available where you live? It seems you were only with us for a few days and it has been a while since your last post. Please keep us updated when you can. I hope you are finding relief.

Stephanies