That's different though Ali...in those cases there's a clear reason (necessary but intrusive surgery) for the nerve damage. Generally speaking though, for more 'naturally' occurring cases of entrapment/compression (ie. via normal life activities like cycling, weightlifting, childbirth, etc.), the pudendal nerve is relatively more exposed/at risk.AliPasha1 wrote:That's why most people become impotent after prostate cancer surgery and chemotherapy treatment.
MRI and scarring
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- Posts: 297
- Joined: Fri Sep 17, 2010 3:56 pm
- Location: Toronto
Re: MRI and scarring
Re: MRI and scarring
Agreed.
Diagnosed for PNE by Dr. Jerome Weiss in June 2007.Started PT with Amy Stein in NYC.
PT for almost 3 years now without any results.
Pudendal Nerve blocks in August,2007 by Dr. Quesda left me with sitting pain.
Unilateral TIR approach with Dr. Bautrant on 18 Febuary,2010 with no major improvements and sitting is much worse.
MRI By Dr. Potter reveals nerve entrapment in the ST,AC and DN.
Dorsal Nerve Decompression surgery on April 8,2011
Redo surgery by Dr. Hibner on July 18,2011
PT for almost 3 years now without any results.
Pudendal Nerve blocks in August,2007 by Dr. Quesda left me with sitting pain.
Unilateral TIR approach with Dr. Bautrant on 18 Febuary,2010 with no major improvements and sitting is much worse.
MRI By Dr. Potter reveals nerve entrapment in the ST,AC and DN.
Dorsal Nerve Decompression surgery on April 8,2011
Redo surgery by Dr. Hibner on July 18,2011
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- Posts: 297
- Joined: Fri Sep 17, 2010 3:56 pm
- Location: Toronto
Re: MRI and scarring
On another note, I'm finally re-doing that pudendal angiography (this time with the intracavernous injection) tomorrow morning...will let you know how it goes.
Take care, PS.
Take care, PS.
Re: MRI and scarring
Good luck.
Give my Regards to Dr. Kim.
Regards,
Ali
Give my Regards to Dr. Kim.
Regards,
Ali
Diagnosed for PNE by Dr. Jerome Weiss in June 2007.Started PT with Amy Stein in NYC.
PT for almost 3 years now without any results.
Pudendal Nerve blocks in August,2007 by Dr. Quesda left me with sitting pain.
Unilateral TIR approach with Dr. Bautrant on 18 Febuary,2010 with no major improvements and sitting is much worse.
MRI By Dr. Potter reveals nerve entrapment in the ST,AC and DN.
Dorsal Nerve Decompression surgery on April 8,2011
Redo surgery by Dr. Hibner on July 18,2011
PT for almost 3 years now without any results.
Pudendal Nerve blocks in August,2007 by Dr. Quesda left me with sitting pain.
Unilateral TIR approach with Dr. Bautrant on 18 Febuary,2010 with no major improvements and sitting is much worse.
MRI By Dr. Potter reveals nerve entrapment in the ST,AC and DN.
Dorsal Nerve Decompression surgery on April 8,2011
Redo surgery by Dr. Hibner on July 18,2011
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- Posts: 297
- Joined: Fri Sep 17, 2010 3:56 pm
- Location: Toronto
Re: MRI and scarring
Thanks.
Not having it done in Boston though...going to an interventional radiologist here in Toronto.
Not having it done in Boston though...going to an interventional radiologist here in Toronto.
Re: MRI and scarring
I'd also be curious to find out about any chemical agent that can break up scar tissue - if an injectible (ie., something similar to Wydase) could be injected into the areas that are found to have scar tissue around the nerve, wouldn't that be preferable to surgery, since surgery can cause additional scar tissue? Wonder what type of doctor you would consult to have this done?
Re: MRI and scarring
I'm interested, too, in that chemical agent. Let me know if you find out anything.
PS: Good look with your repeat angiogram.
AM
PS: Good look with your repeat angiogram.
AM
Daughter grew completely on left side of pelvis
Multiple uterine surgeries to fix uterine adhesions, septum, and endo
Had all the conservative workups done, 3Tesla (Potter), recovering from L sided TG (Hibner) 11/10, Botox 6/11 failed, bilateral anterior PNE decompression (distal Alcock's/perineal branch), Aszmann, Vienna, 10/11; dx'd with CRPS Type 2, 12/11, Ketamine @ CCF 2/12, doing 75% better PRAISE JESUS!
http://fighting-pne.blogspot.com
http://www.thepelvicmessenger.org
Multiple uterine surgeries to fix uterine adhesions, septum, and endo
Had all the conservative workups done, 3Tesla (Potter), recovering from L sided TG (Hibner) 11/10, Botox 6/11 failed, bilateral anterior PNE decompression (distal Alcock's/perineal branch), Aszmann, Vienna, 10/11; dx'd with CRPS Type 2, 12/11, Ketamine @ CCF 2/12, doing 75% better PRAISE JESUS!
http://fighting-pne.blogspot.com
http://www.thepelvicmessenger.org
Re: MRI and scarring
Best wishes with your angiogram, PS!
Warm regards,
Karyn
Warm regards,
Karyn
Ultra Sound in 03/08 showed severely retroverted, detaching uterus with mulitple fibroids and ovarian cysts.
Pressure and pain in lower abdomen and groin area was unspeakable and devastating.
Total lap hysterectomy in 06/08, but damage was already done.
EMG testing in NH in 04/10 - bilateral PN and Ilioinguals
3T MRI at HSS, NY in 09/10
Bilateral TG surgery with Dr. Conway on 03/29/11. Bilat ilioinguinal & iliohypogastric neurectomy 03/12. TCD surgery 04/14.
Pressure and pain in lower abdomen and groin area was unspeakable and devastating.
Total lap hysterectomy in 06/08, but damage was already done.
EMG testing in NH in 04/10 - bilateral PN and Ilioinguals
3T MRI at HSS, NY in 09/10
Bilateral TG surgery with Dr. Conway on 03/29/11. Bilat ilioinguinal & iliohypogastric neurectomy 03/12. TCD surgery 04/14.
Re: MRI and scarring
OL folks...my2 cents.
Having a brief conversation with Dr Potter may be worth much to separate the wheat (key findings) from the chaf (inconsequential scarring). She told me that my R STL was very deformed and contrasted greatly from my L STL.
RR
Potter MRI findings in Oct
-Right STL deformed and scarred and a dilated vein in posterior Alcock’s…”both compress the R Pudendal nerve”
-Mild scarring in the pelvic floor
Surgical Findings in Nov
-Area of most severe compression of Pudendal nerve at scarred Sacrotuberous ligament;
-Some narrowing at entrance of Alcock’s canal; Noted dilated vein in superior part of nerve…not ligated
Having a brief conversation with Dr Potter may be worth much to separate the wheat (key findings) from the chaf (inconsequential scarring). She told me that my R STL was very deformed and contrasted greatly from my L STL.
RR
Potter MRI findings in Oct
-Right STL deformed and scarred and a dilated vein in posterior Alcock’s…”both compress the R Pudendal nerve”
-Mild scarring in the pelvic floor
Surgical Findings in Nov
-Area of most severe compression of Pudendal nerve at scarred Sacrotuberous ligament;
-Some narrowing at entrance of Alcock’s canal; Noted dilated vein in superior part of nerve…not ligated
Cyclist till perineal pain onset R side (Apr'08). Dx with PN (Aug'09). Lyrica gave 30% pain reduction. Potter MRI (Oct'10) validated at surgery with Dr Hibner (Nov'10) - found nerve attached to scarred STL. Now sitting 10 hrs/day vs 1 hr/day pre-op. Surgery video = http://www.youtube.com/watch?v=6FDwana6SQU
Deep neuropathic burning pain flares have been gone since surgery...Grateful to Dr Hibner.
Deep neuropathic burning pain flares have been gone since surgery...Grateful to Dr Hibner.
Re: MRI and scarring
RJR,
I would say that her findings are 100% accurate.It's a matter of Medical wording which Radiologists use vs Surgeons Post Surgical Report.But this is the best accurate imaging reporting I have seen so far of the pudendal Nerve.Also,her analysis maybe be a little off ,but her accuracy of where the problems is quite accurate.
Regards,
Ali
I would say that her findings are 100% accurate.It's a matter of Medical wording which Radiologists use vs Surgeons Post Surgical Report.But this is the best accurate imaging reporting I have seen so far of the pudendal Nerve.Also,her analysis maybe be a little off ,but her accuracy of where the problems is quite accurate.
Regards,
Ali
Diagnosed for PNE by Dr. Jerome Weiss in June 2007.Started PT with Amy Stein in NYC.
PT for almost 3 years now without any results.
Pudendal Nerve blocks in August,2007 by Dr. Quesda left me with sitting pain.
Unilateral TIR approach with Dr. Bautrant on 18 Febuary,2010 with no major improvements and sitting is much worse.
MRI By Dr. Potter reveals nerve entrapment in the ST,AC and DN.
Dorsal Nerve Decompression surgery on April 8,2011
Redo surgery by Dr. Hibner on July 18,2011
PT for almost 3 years now without any results.
Pudendal Nerve blocks in August,2007 by Dr. Quesda left me with sitting pain.
Unilateral TIR approach with Dr. Bautrant on 18 Febuary,2010 with no major improvements and sitting is much worse.
MRI By Dr. Potter reveals nerve entrapment in the ST,AC and DN.
Dorsal Nerve Decompression surgery on April 8,2011
Redo surgery by Dr. Hibner on July 18,2011