Health Organization for Pudendal Education

Kone, my family is not terribly understanding either. I am now getting told to stop crying and getting frustrated in front of the kids, and I don't even know if I have a PN case or not yet. I got a lot of the "nothing is wrong with you" nonsense as well, which changed once they found soft tissue injuries, but not much.

No, people really do not understand. And no one is going to share your pursuit of treatment and getting well except you. I don't say this in self-pity, just because it seems to be true. People act like chronic pain is a mental disorder instead of a physical problem.

Antonia,

PN is very difficult to deal with when you have young children. I am trying to hold myself together right now as well, but please know I am sending you support through the forum for strength and healing.

Stephanies

Hello kone, just wondering how you're doing. If it makes you feel any better, I get a sense that even if my wife is aware I have PN or whatever, I feel like she gets uninterested whenever I talk with her about this conditon, my research, experience, etc., or just stops putting me attention alltogether. Fact is, this is our reality wether they like it or not. I can only send you my best prayers, and rest assured, dont feel alone, dont get discouraged, and dont loose hope.