Health Organization for Pudendal Education

Forget what I said about muscle clenching an stress...Lyme disease was the cause for my Pn and the later onset of my other symptoms!! Get checked and get checked again!!!!

Huh? what? Please elaborate.

So you were treated for Lyme disease and improved with your symptoms? What were you treated with? Maybe it could help all of our pain and inflammation too?

Lyme disease is treated with antibiotics.

Thanks for letting me know, Stephanie.

I am currently going through this as well.

have had crazy symptoms besides PNE, and not the classic PNE pain symptoms, i am just now after 4-5 years getting pain that's bad enough to warrant medicine. Never even took an aspirin before. had a semi positive lyme test. Had 2 LYME SPECIFIC antibodies in me. Which means they only form for LYME. But because the CDC has their special protocol which says you need 5 antibodies for a diagnosis i never got treatment, and continued to get worse.

There are websites and forums dedicated to LYME just like this one where people suffer for years because doctors just don't fully understand the disease yet(like this one).

I will say if you have PNE symptoms and have no real reason why, and have fibromyalgia/Lyme symptoms, get checked over and over if you have to. Especially if your test comes back as funky as mine did, and you live on the east coast. I live in MA/NH tick central.

Lyme deteriorates your body and will cause nerve problems from the infection itself as well as from the effect it does to the tissue around the nerves thus causing compression.

i am NOT saying Lyme is the cause of all this for me, or for anyone. Just find it very peculiar and am going down this avenue to completely rule it out, as i find it very peculiar.