Health Organization for Pudendal Education

Hi Jackie! I have the buzzing constant all of the time. Sometimes I can feel it in my feet as well. It gets so incredibly irritating. However, this time 2 years ago I was in exteme burning pain. Now I have no pain but am left with this buzzing. I have been buzzing for 2 years now! I am very thankful that I do not have the pain any longer and scared to death that it will come back. I have no clue as to why the pain went away. I have been to many doctors including a PNE Specialist who told me that I do not have PN. So I do not really know what I am dealing with. The tingling/buzzing has improved over time but it still remains. I read on here that it can take years for the nerve to heal. I pray that one day I will wake up and not have to think about this ever again. I have tried PT before but that didnt seem to help. I told myself i will give it one more year, if I am not better by then....then I will need to investigate further.

HI, as well as as yet diagnosed pn / piriformis issues I also have developed something called Benign Fasiculation Syndrome,.....an anxiety/nervous system bought on poss due to Cauda Equina scare and being admitted to A&E. Periodically bits of me vibrate, sometimes it is either hip, sometimes it is perineum, or a foot. I also go numb from head to toe and have reduced sensitivity,...........which is often great as the opposite is extreme hypersensitivity.

My twitches as worse when resting, but I am able to visualise and make them calm down. When I was in Aand E I already had the symptom of hips vibrating when I lay on my side,.....I have not delved further into anatomy to see if there is a nerve directly involved.

SArah

oops sorry, meant undiagnosed pn/piriformis. My neurologist is in denial that any entrapment/compression by muscle is possible. I am in that no man's land of GP not wanting to know and hoping neuro will fix it all, neuro none idea and passing me back to GP who has no money, and blithely mentioned "Oh, there are always nerve blocks......"

Not bitter and cynical at all

Sarah

I had high sensitivity that grew to the point I could not be barefoot, could not sing or speak loudly as the viabration in my spine hurt so much, could not be in a loud place, on transport or even have my husband tap his foot next to me. Any hum or vibration or loud noise would be horrific. I got to the point of walking around on my toes in rubber shoes (which is sure to disrupt the pelvis as when our heel is on the ground and we walk heel to toe rather than on toe, our pelvis is in the right place to support the rest of our spine). This issue was getting worse and worse to the point of me sleeping 3 hours a day just to calm the nervous system and be able to carry on the rest of the day. It was a living hell and came to an end when a pelvic ligament was removed from my pelvis. My gyneocologist noticed things were 'too tight' in pelvis and put me straight into surgery to see what was going on. The ligament was removed and my Pn symptoms continued. I'm slowly dealing with them but that was by far the worst of my journey since my accident.

Hope that might help in someway...
Soula

Soula, could you please say what ligament you had removed? You may have said somewhere else but I have a short memory.

Just glad you are doing better.

Thanks,

Violet

I HAVE THE BUZZING AS WELL IT'S HORRIBLE.
it's all over my vulva, clitoris, right buttock and the sole of my right foot.

I hate it so much