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Re: pudendal neuropathy - Baclofen + Ketriplin cream

Posted: Thu Mar 07, 2013 3:51 am
by Violet M
Georgina wrote:
Reading you can sit for so many hours is like a mirage for me now! :? but I'm so happy for you!and hope I'll get to that point as well!As everyone I want my life back :) thanks for your reply, it really gives some hope!

What was your path to recovery in brief if you don't mind?
best

Georgina
Georgina, I had pudendal nerve release surgery from Dr. Bautrant in France but I don't recommend that as a first step in the process. There are other less invasive things you can try first as I'm sure you've read.

Violet

Re: pudendal neuropathy

Posted: Thu Feb 13, 2014 5:54 pm
by Georgina
Hi everyone,

I'm back because I HAVE RECOVERED :D :D :D :D :D

I want to share this news because I think it can be of help and support to those who still are suffering!

I found the right cure after 1 year and a half, and that splendid doctor guided me to this point!The quality of my life has improved so much in the last month: I have much less pain, I CAN SIT (!!!!) for hours on my coccyx, I re-started some teaching jobs and when I'm 100% fine I'll look for a "proper" job :) decently paid ;) even loosing my latest job seemed a tragedy...but the important thing is really to get better and then life comes together by itself!

So many times I thought it was too difficult...but I always believed that recovery was possible. I just needed to find the right cure (standford protocol, no medicines) and I thank Prof. Pesce (Italy) and my strong will to recover and get back to life!

I wrote this post also to thank this forum that helped me with lots of info and human support!!!

Hope this post can be a "trigger" to NEVER give up :) trigger is the most appropriate word :lol:

Georgina - real name Erika

Re: pudendal neuropathy

Posted: Thu Feb 13, 2014 11:36 pm
by janetm2
Erika,
Excellent news for the rest of the folks on here looking for that recovery.Thanks for passing it along and best to you for a new job.
Janet

Re: pudendal neuropathy

Posted: Sat Feb 15, 2014 2:46 pm
by Violet M
Ericka, that's great news! ;)

I would be interested to hear more details about your recovery. It sounds like maybe you live in Italy so....did you travel to California for the Stanford protocol or did you follow it out of a book? I think sometimes it is called Dr. Wise's protocol since it's not officially associated with Stanford from what I've heard.

Best,

Violet

Re: pudendal neuropathy

Posted: Wed Feb 19, 2014 11:10 am
by Georgina
Violet M wrote:Ericka, that's great news! ;)

I would be interested to hear more details about your recovery. It sounds like maybe you live in Italy so....did you travel to California for the Stanford protocol or did you follow it out of a book? I think sometimes it is called Dr. Wise's protocol since it's not officially associated with Stanford from what I've heard.

Best,

Violet
Hi Violet,

no, I didn't come to California :) In Italy there are a handful of doctors who practise the stanford protocol, I immagine personalised according to training and experience with patients. The protocol we followed were internal massages (through vagina and anus) to relax the muscles. I also took some medicines but didn't do much to me. The great leap forward came after 2 months after stopping with Cymbalta 30mg, and after 8 months of massages. So the real cure for me was the release of tensions via anus especially (I had coccyx pain, impossible to sit, no burning). I didn't followed it out of a book therefore, but had a specialised Neuro-urologist to do it 3-4days a month. I had some exercises and simple massages to do at home, but the great job was done by the doctor.
Best,
Erika

Re: pudendal neuropathy

Posted: Sun Feb 23, 2014 2:45 pm
by Violet M
Thanks for the explanation, Erika. Glad this worked for you and that you are much better. ;)

Violet