Health Organization for Pudendal Education

kia kaha wrote:thanks, why couldn't my gyne have told me that a few weeks ago.
He says I have illioingual nerve compression too

OK. That makes sense, then. Yes, it would've been very helpful for some type of explanation from your GP. I'm not sure some of these physicians understand how much an explanation is comforting to us. Because I didn't really know what this devastating pain was, I called it "ovary pain". In the beginning, I would only experience it during my ovulation cycle. Specifically, in the lower abdomen, just below the iliac crest. Then it progressed to the electric shocks straight up the vagina and rectum. I had a total hysterectomy, but the "ovary pain" persisted. I was diagnosed with phantom pain, as I no longer had the ovaries. Then my diagnosis changed yet again to visceral hypersentativity. It wasn't until I found Dr. Conway a couple of years later, who performed an EMG of the ilioinguinals, that I learned it was a nerve issue.
Hugs,
Karyn

thank you so much Karyn
thats Exactly what happens to me!!!

I too was told I needed A hysterectomy, after they went in and took out a few small ovarian cysts which they said was the problem. But then said I had Adenomyosis, and inserted a mirena which they said would calm things, which it didnt.
So a year later they took the mirena out and did a biopsy on my uterus which came back fine, that it wasn't adenomyosis.
I have no endo and my cervix is fine.

But besides all that the specialist at the public hospital has repeatedly claimed the genesis of all my issues is my uterus is the uterus stemming back to just after the birth of my first child, ( now nearly 27 years ago) I did not start having problems till 2009.
tosser.