...meds not working

[pizzarios]

Ok, So I went and saw a PT (listed on this very site) who actually studied with the PN PT lady experts in San Francisco. My first appointment was yesterday. She did an exam, and internal work - essentially put pressure and "irritated" the pudendal nerve, to see what was doing. I didn't have much pain/irritation at the time, but last evening the clitoral pain/itching started. This is a new sensation, as my problems have primarily been urethral burning and urgency. The pain today is as bad as it's been so far, with essentially the entire vaginal area feeling inflamed. As a side note, I saw 2 other, less pn knowledgeable PTs prior to seeing this lady, and nothing they did or prescribed as homework, initiated any pain.

I ask you, seasoned PN-ers, with PT history -

DOES PT USUALLY HAVE TO MAKE IT HURT OR GET WORSE, BEFORE IT GETS BETTER??

DOES THIS POST PT PAIN INDICATE THAT SHE KNOWS WHAT SHE'S DOING, OR THAT PN IS ACTUALLY WHAT I'M DEALING WITH??

ps: She suspects in addition to pn, also some bladder and urethral prolapse, both grade 2. YAAAAAYYYYY!!!!!! :\

[helenlegs 11]

I know that many people post about a flare up from PT sessions. I would give them a ring to get some definite feed back, but what you have said above is not unusual. The PT will obviously know where they have targeted and your post session reactions to their therapy will probably give a good indication of how to proceed. Hope the additional pain diminishes quickly tho'
Will the pain management Dr target medication or coping strategies or both? Here's hoping that you get some advice that will work for you. Let us know what they both say.
Take care,
Helen

[Budgie]

Hi Pizzarios. Hope things are improving for you. What Helen said in the last post is absolutely correct. Physio can and often does flare things up before it settles again. I've been having physio in the UK for some years now and that nearly always flares things up for a day or so afterwards. Hang in there, it will improve if it hasn't already.

Have you been to see the pain management doc yet?

Neil

[Violet M]

Pizzarios,

Liz and Stephanie have a blog that tells what a good PT session should look like.

http://www.pelvicpainrehab.com/blog/201 ... sion-like/
http://tinyurl.com/cmomsuf

The PT's listed on the website are not endorsed by the HOPE organization. Even though they have had specialized training, as with all providers, there will be great ones and mediocre ones and I have no idea where yours fits in. From my own experience, my first PT session with internal work was incredibly painful and left me with such a nasty pain flare-up I felt instinctively that it was not going to work for me. I had been exercising heavily and I think that the nerve was impinged on by a ligament and PT just irritated it further.

Some people prefer to put off surgery as long as possible and in that case it would make sense to continue with PT to see if it will eventually help you. Some people do get better after trying PT for awhile. For PNE pain, I did not find it very helpful.

Violet