Health Organization for Pudendal Education

the articles are great thanks but is there instructions on what excercises to do sunil ?

yes i did consult with conway when i talkd with him he said i may not have pn because at the time i didnt have painful sex but i cant see him or get the potter mri because my insurance wont cover i am in the process of getting a mortgage and have to obtain excellent credit for a specific loan ,after all this is over which will b awhile i can possibly go about a payment plan with conway

thanks sunil get u tell me what exercises u are doing the article dosent exlpain what to do ,thanks so much i will try whatever it is asap !

You might try Amy Stein's Healing Pelvic Pain book sold on Amazon -- or Dr. Wise's book A Headache in the Pelvis. These might be helpful if your problem is strictly due to muscle tension but maybe not if you have a nerve entrapment.

Not all types of pelvic floor PT are the same -- some are for people who have weak pelvic floor muscles that need strengthening but with PN patients, typically the pelvic floor is overly contracted and strengthening exercises tend to make you worse. So if you could get some PT from someone specifically trained in treating PN maybe they could show you some things that you could do at home. But I understand the insurance problem. If you could get a different diagnosis code now that your pain is changed, maybe they would pay again?

Violet

yes thank u i have the book & do some of the stretches i cant do them as much as she says i dont have time 2 stretch 2 hrs a day but i do them once a day b4 i walk with my daughter ,my problem with pt is like u already know my pain is very deep in vagina it feels like 8 inches deep and is a burning sharp stabbing pain ,plus always feeling like i have 2 pee ,because pt therapist recommend not going deeper than a finger ,it frustrates me cuz they never go near where the pain is and my ob dosent want me to try more pt but i will tell her it helpd my genital pain a lil bit but since my symptoms have changed it may benefit me to do with someone who is trained i just dont know if i can do this or not though id like to hear about anyone who has done pt with someone trained in pn & what did they do ?

Eva,

So is your internal pain on one side or the other -- or is it in the middle (towards front or back)?

I didn't know painful sex was one of the criteria for PNE. I guess as my PNE progressed it became painful but it wasn't at the beginning so personally I would not consider it a "make or break" symptom in the diagnosis.

For PT I had myofascial release and trigger point therapy but I think the most important thing I got out of PT was a proper diagnosis. In the end it didn't help and I went for surgery.

Violet

Violet M wrote:For PT I had myofascial release and trigger point therapy but I think the most important thing I got out of PT was a proper diagnosis. In the end it didn't help and I went for surgery.

Me, too!

thanks by trigger point do u mean with finger or with injections ? i had trigger point with finger and it was pointless didnt do a thing cuz my pain is deeper the genital pain wasent bad untill after pt was over go figure my pain moves around it can feel in front and other times in back sometimes just kinda feels everywhere in that area but it is 8 inches or so high .what is myfaseil release ?

sex is painful if the deeper is is there when i have sex otherwise its comfortable orgasms are normal, but genital pain has made sex uncomfortable lately when i spoke with conway he said its rare to have pn without having painful sex and didnt think i had it but wanted to make sure unfortunately i wasent able to see him

I had finger trigger point -- not injections. It didn't help though. Myofascial release is when they work on the internal muscles to get the knots out with their finger. That made me worse so I discontinued it.

It's common for pain to move around with PN and also as it progresses it can change over time. There are mild forms of PN and more severe.

Violet M